GCA and lack of balance

Posted , 8 users are following.

Theclack of balance started three months after my TA had been diagnosed and is going worse gradually,

Does anyone ever heard about these two health conditions happening in same time?

0 likes, 12 replies

12 Replies

  • Posted

    Hi

    I was diagnosed with TA near the end of Oct last year \and with in weeks of taking a high Dosage of Pred my balance was effected. I do not beleive that it is TA that causing the problem it is Preds. I am now down to 3 mg and my balance still has not improved it has also effected my spelling which has seemed to gotten better. What is your dosaged now

    Good luck

    • Posted

      You aren't the only person who claims their spelling has got bad on pred.  I think my spelling is usually good, but typos, now that's another story!  However I wonder if this is related: an inability to find the word I want sometimes.  It's very distressing as I worry it's an early sign of dementia.  But if it's just "pred brain" maybe it will get better some day?

    • Posted

      'Treacle Brain'  - it was christened on the myfunforum for pmr& gca.

      Then we also liked 'Steroid Brain Fog' 

      It does get better.

    • Posted

      Hi, I call it Roid Fog smile  sometimes I just can't find that word and it drives me crazy smile

    • Posted

      Well how about   these two to add.

      'Polywhotsit' and 'Giant Thingy' confused

  • Posted

    Go to the thread on 'Your Ears' and read up on it and apply to take part in the research survey which is being conducted on what you are experiencing.

    Use the search box, top right hand corner and type in Your Ears.

  • Posted

    Yes I had balance problems and then diagnosed with TA, seemed to settle after steroids but on reduction had a flare and balance problems started again, seem to me they go together!
    • Posted

      That is why the research survey is so important and everyone should fill it in - we need 500 responses.
    • Posted

      Yes, they may go together for some patients.

      It started for me after 3 months I had been diagnosed of Temporal Arthriritis.

      If not for that I would be ok since my TA comes without any pain, so I would say is it is not so bad.

      Throug the Forums there is tha opportunity to exchange our experiences, to know we are not alone and wha is specially great - the opportunity to help others.

      Take care

  • Posted

    83 known side effects as well, but nobody gets them all.

    The 84th is not listed, known as 'Treacle Brain' or 'Steroid Brain Fog'

    Read up on GCA on PMR GCA UK North East Support. Loads of info and links to support groups.

    Knowledge is Power.

  • Posted

    I wish I knew what a "TA" is!!

    Thanks, Barbara

    • Posted

      Temporal Arteritis = old name

      Giant Cell Arteritis = new name

      Reason, they discovered that it did not only include the Temporal Artery, but can and does affect all arteries, but mostly presents in the temporal artery,

      That is why everyone diagnosed with PMR has to be told straightaway what the symptoms are for GCA.

      Everyone should read the British Society of Rheumatologists on the Diagnosis and Treatment for both PMR and GCA.

      They are on this site and can also be found on the NHS, BSR,PMR GCA UK North East Support, PMR GCA Scotland, PMR GCA North West and PMR GCA uk - all their websites.

      Knowledge is Power.

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