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GCA/PMR

Posted , 6 users are following.

darlene36688
darlene36688

I'm a 69-year-old female.

Diagnosed in August with GCA/PMR.

My doctor has been gradually decreasing my prednisone. Currently, I'm at 12.5mg. Have been on this dosage since Thanksgiving.

I am having problems with headache's & soreness in my scalp.

I have neurothopy in my feet & have been taking gabapentin for about 2 year's I'm at the highest dose of it 2400 mg. daily. Recently my feet have been bothering me at bedtime & I only noticed it once the prednisone was reduced.

I don't know if there is any correlation here or not. Just find it to be odd.

Does anyone else have foot problems with GCA/ PMR? 

I see my rheumatologist on Monday. He is a very good doctor.

I go to MUSC (Medical Univ. Of S.C.) one & one have hour's from home but worth the drive.

Didn't want to bring it up & look like a fool if there is nothing to be concerned about.

The fatigue is really crazy with this autoimmune disease.

Prior to the GCA/PMR diagnoses, I was diagnosed almost 2 year's ago with Sjogrens Syndrom...yet another autoimmune disease.

Just more of a curious question.

My feet have really been bothering me at bedtime.

Thanks.

1 like, 25 replies

25 Replies

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  • amkoffee
    amkoffee darlene36688

    Posted

    I also get painful legs from the knee down to my toes. I don't know if it's from PMR or a circulatory problem but mine always happens in the evening before bedtime and makes it very hard to sleep because it hurts so much. However I have found that if I put compression socks on it really helps the pain a lot. You might give that a try. But as Eileen said you need to report your scalp pain and headaches to your rheumatologist.

    • darlene36688
      darlene36688 amkoffee

      Posted

      I will report this to my doctor on Monday.

      He already knows about the headaches & sore scalp but I always reiterate it when I talk to him. 

      It's only my feet that I have a problem with not the legs. I don't know if the compression stockings will be of help But I'll give it a try.

      I'm so happy I discovered this group. Everyone is so helpful.

      If I'm having a bad time I can read all the comments and know I'm not the only one (unfortunately).

  • amkoffee
    amkoffee darlene36688

    Posted

    I forgot to mention to you in my earlier post, but I to have Sjogren's syndrome. It is my understanding that this disease can also cause joint pain. I don't attribute any of my pain to Sjogren's simply because I think my pain comes from other sources. Do you belong to any Sjogren's support groups? There is a good one on Facebook if you do Facebook. And I believe there is also a group for Sjogren's on this site.

    • darlene36688
      darlene36688 amkoffee

      Posted

      I don't belong to a Sjogren's support group.

      I am on fb so I'll look into that group.

      Once I got hit with GCA/PMR I didn't know what to think because I was dealing with some Sjogress issues. I didn't know if they could be combined or not.

      This is still pretty new to me & I've done a lot of research on the GSA/PMR.

      I see my doctor on Monday.

      Thank you for the response. It really means a lot to me.

      Hope you are doing well at the moment. I know it's a day by day thing we deal with.

       

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