GCA which I have had since November 2012
Posted , 4 users are following.
Firstlt in general I feel fine, walk every day bit of swimming bit of gym classes, life has pretty much carried on as begotr I got the symptons
started on 60redsca day
slowly reduced now recently gone from 5 (which I stayed on for about 6 weeks, then started the slow reduction to 4 predict a day, which I feel fine on
but this last week in the evening I start to get, what feels like neuralgia,
a sort of ache jaw and gums, not painful just a bit nagging.
do you think I should try 4 in the morning and 1 in the evening (back to 5)?
my Dr says I should be off them by mid summer?
any advice please Eileen or anyone that has similar symptoms.
Jerse Royal
0 likes, 4 replies
EileenH Jersey_Royal
Posted
Is that how you usually take your pred - split like that? And is that your GP or your rheumy?
Jersey_Royal EileenH
Posted
but I will go back 5 pred for a week and see it the neuralgia ache goes,
I do feel really well during the day though.
we don't have a rheumy here in Jersey just my Dr. Who is really on my case, but of course what you say Eileen makes sense, only off Pred when your body tells you all is well, Well sort of, is it true Eileen that Pred stays in your body for about a year after you have come off them?
EileenH Jersey_Royal
Posted
Pred sometimes doesn't do muscles and tendons a lot of good and they take time to regenerate - cells are dying off and being replaced all the time and obviously it takes some time for them all to be renewed. I can't say I feel at all affected by the 4mg I'm on but I do know ladies who've said they didn't feel entirely "back to normal" for a year or so after finally stopping pred.
As I say, pred istotally excreted from the body after a few days - if you want a drug that stays in your body then the bisphosphonates are your baby!
Jersey_Royal EileenH
Posted
it helps so much.
I'm on holiday at the moment for a couple of weeks, so it's always knowing niot quite what to do when the dreaded problem arises, but your advice re the neuralgia type aching gums and jaw in the evening,
I have gone back to 5pred.
thanks Eileen
and feel happy already.
thanks