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A quick introduction of what I have been suffering from since the age of 22, I'm now 50. At first no doctor in the UK knew what was wrong with me, because the symptoms were very rare, after 2 years I was eventually diagnosed with Torsion Dystonia, then came Focal Segmental Dystonia, then last year I hit the final Generalized Dystonia.
It effects my neck, shoulders, arms, hands, hips, lower limbs, ankles and feet. When I applied for ESA, it was granted without even seeing me in person (I was expecting a face-2-face examination at least). I have to use many disability aids, mainly for mobility (I have a car on the Motability Scheme, that was not cheap, with a £499.99 deposit), the bath/shower I have was adapted for use by a request from my Consultant Neurologist.
Now, for Generalized Dystonia I am taking Clonazepam, Artane, Madopar, Amitriptyline and Tramadol; and every 3 months Botox injections in the neck on both sides and my shoulders. Even with all these medications I still suffer in extreme pain, from all my main muscles which are cramped a majority of the time. The trouble is Botox only last around 8 weeks in the body, it takes 2 weeks to work in the system, and after 8 weeks it's gone. So then I have to wait another 4 weeks before the next dose cuts in. My Neurologist has said that it can be administered in the legs to ease the muscles from being in a permanent spasm.
Has anyone else been offered Botox in heir legs before? The reason I ask is because I have heard mixed views with Botox injected in to the leg muscles.
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