Generalized Muscle Twitching
Posted , 65 users are following.
Hello All,
I am so frustrated I have no idea what else to do. Currently I am suffering with generalized body wide muscle twitching. They initially started in December of this year after I had a twitch in my right shoulder. I decided to google the symptoms and ended up in the worst panic of my life. I thought at first it could be MS and I then learned of ALS and my twitches exploded all over. I went to a neurologist in March who did not want to do the EMG and she said it was something called benign fasciculation syndrome. It took some time but the twitches became less frequent but never went away. In July I had a full physical and my GP stated it was nothing and could be attributed to stress or somatization of symptoms. I began an accelerated nursing program and now I can't concentrate because I am scared to death again because the twitching has come back.
My biggest problem is the unbelievable amount of discrepancy there is related to the subject. You can look on any site and it states that "muscle twitching" is a sign of MND. There are people who have been diagnosed who say they started out with twitching as their first symptoms. There are people in their 20s saying they have been diagnosed with the illness. Then there are hoards of people who state twitching is related to anxiety and stress. That it is benign if no other symptoms are present. I just do not know what to think.
I am 27 and have never been diagnosed with GAD or anything but I have had a very stressful childhood. Maybe I do need to see a psychiatrist?
If anyone has these issues please let me know. I would love to discuss them I hate this so much
10 likes, 110 replies
chloe81984 michael49023
Posted
I'm not sure if this thread is still active but I'm looking for advice. I've had muscle twitching for a few months now and my anxiety has convinced me I have ALS. The twitches are often random and body wide but recently have been happening on my upper thighs after I've been for a walk. I will sit down after my walk and they are really noticeable on both sides of my thighs (feeling not seeing).
I don't have any clinical weakness but my left thenar muscle is definitely smaller than on my right hand. Would weakness come before atrophy?
My GP has referred me to a neurologist but the appointment isn't for another 2 weeks. I do suffer from anxiety.
mark31579 michael49023
Posted
This is a great thread for information. Sorry for the long post. I've had muscle twitching for about a year now. After a week of the initial twitching I told my doctor . She said to drink water and that i may be dehydrated. I increased my water intake for about 2 weeks and nothing happened. After looking up solutions on the internet about supplements and getting more rest to cure the twitching , i tried it and nothing worked. I then went to an urgent care walk in facility about my twitching. They took a blood test and found lime disease. They gave me meds for it . I finished the meds and still have the twitching. I tried dealing with it as much as I could but couldn't. I told my doctor again and this time she gave me a blood test and methocarbamol for the twitching. i took the meds and nothing happened. Blood test came back normal. After a few weeks i went to another walk in clinic . They told me to go to the emergency room. I went, they hooked me up to all types of machines, gave me a blood test and MRI. I was there for about 5 hours. Just like i expected everything came back normal . Everyone told me to go to a neurosurgeon. I let my doctor know and a appointment was set up. I took an EMG and everything was normal except my right triceps area where most of my twitching occurs. Now im just waiting for my neurosurgeon to get the information from the doctor who performed the EMG test. It's been a month since the test and he should have got the results by now but said he didnt smh. All this testing and poking with needles and getting shocked with the EMG and i still have the dam twitches all over . Sleeping is a nightmare, Daytime i'm active but resting or trying to sleep I can feel every twitch all over.
mike03282 michael49023
Edited
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joshb1 michael49023
Posted
I have been dealing with BFS for five or six years. I've been running long distances for over 15 years. Mine started as calf twitches in my left leg after long hard workouts. It progressed into constant twitching and cramping at night. sometimes the cramps were so bad I could not sleep all night. I went through all the blood work and found no abnormalities. I went to a neurologist who did an EMG (which sucks) and found no issues, no signs of ALS. at this point I still suffer pretty severely with my left leg and my right leg has started some minor twitching, but no cramps.
At this point I cannot find any correlation between the severity of the twitching and anything that I do physically or mentally. I even took a several month break from running and working out and that did not affect it. I have no medical evidence to back this up, but prior to the muscle spasm starting I dealt with piriformis syndrome on the left side for about a year. I feel my twitching may be related to a nerve compression, but not sure
the only relief I can find is in taking a lot of magnesium. I take a magnesium supplement throughout the day, and take magnesium and potassium before I go to bed. most of the time this is enough to calm the nerves so that I can sleep.
linda21041 michael49023
Posted
I know this isn't how your post started out - but seems replies have become predominantly about getting the COVID vaccine then getting benign fasciculations (muscle twitches). I received the Moderna vaccine and shortly after the second dose started noticing twitches in my calves. They have spread and are random in my thighs, back, above the ears, arms . . . just about everywhere, but consistently and almost constantly in my calves and left bottom eyelid. This has been happening for four months now. I have seen a neurologist who did blood tests, a nerve conduction test, and an EMG. He said it was BFS, gave me some diet suggestions, and said to see my primary care doctor for anxiety. There wasn't anything he could do. Come back in six months. 😦 When I asked, he said it wasn't from the vaccine. But it seems to me that there are a lot of us coming down with this condition after getting the shot.
sam33553 michael49023
Posted
my spasms started in mid may of this year and it freaked me out. i waited
it out for 3 weeks before seeing a neurologist. I had covid in january this year and i think that is what may have caused this to trigger. i see a lot of ppl saying the it started after the vaccine for them. I saw neurologist in june and he said its benign. they felt worst in the noght when i laid down and were so much more obvious. in july they stopped for about 5-6 weeks and i hardly felt anything but i was a bit more relaxed and less anxious too i feel. But end if sept i started noticing the spasms in the body started again but not as bad as how they were in may/june. Ive had some burning previosly in random areas but since sept i feel the burning and pain more in my left arm. However, its not continuous and some days indont feel it and somedays its there and painful. ive felt similar pain in right upper arm but its not as bad. also pin and needles in varies areas. i had an appt with neurologist last week (3 month followup) and he prescribed anxiety medication to take on days that stress is too high. i havent tried that yet and holding off.
i think as time progresses, it is assurance that it is nothing serious. its been 5 months for me, and i dont have any muscle weakness. please know that muscle weakness is not being able to hit gas pedal , or lift a coffee mug. tiredness is okay to have and thats a sign of BFS also. prayers for all
sam33553 michael49023
Edited
i also found that this below which is same symptomas BFS can also happen after covid virus or the vaccine
https://www.mayoclinic.org/diseases-conditions/guillain-barre-syndrome/symptoms-causes/syc-20362793
josh23955 michael49023
Edited
hi Michael, I am exactly the same, had these twitches for 3 years now. mostly they are always there, reduced periods of stress tends to make you feel them less. it is pretty terrifying to begin with as Mr Google isn't your friend. main differential with MND and benign fsc syndrome is with MND your muscles would thin and waste. and obv MND isn't a good outlook. what you have is most certainly benign.
Rose55830 josh23955
Posted
do u get them in your head/scalp aswell ?
josh23955 Rose55830
Posted
not really Rose, but certainly everywhere else. assume you are getting them there?
Rose55830 josh23955
Posted
yeh everywhere including my head/face
Sofi4563 michael49023
Edited
Hey there ! This post really describes how I'm feeling. About 8 months ago I started having these twitches, I googled them and learned about ALS, after that my already overly anxious personality (iI have gad ) just went berserk . I went to the doctor who ran some blood work and prescribed vita D because I had basically nothing. The twitches subsided ever vanished. Then about 3 months ago I started having sciatic pain, and bam another ALS sign, my twitches came back almost instantly, I couldn't live, I was always crying it was horrible. I finally got the courage to see a neurologist, she says it's probably just sciatic pain, but doesn't have an explanation for the twitches. Then she shows me a video of twitches so I can pick which ones mostly resemble mine, and in the video it said ALS. She said it meant nothing, it was just an example, but it was enough to trigger a panic attack. She told me to do an EMG plus a few blood tests just to relax me. But guess what? It had the opposite effect. now after that stupid video I'm absolutely paranoid and petrified something will come up for sure. I can't even muster the courage to do the exam. I just have this sinking feeling it will say I have it. I cry all the time, I feel depressed, and the twitches have gotten worse too.. I'm 27,female, no other conditions apart from anxiety , and