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Genetic Neuropathy

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jim37668
jim37668

I have genetic neuropathy and I to have more intense pain at night when I lay down.  I have found if I soak my feet at night before bed in ice water it tends to help so I get to sleep.  I have also lost all but two toes on my feet because i have gotten a few bouts of osteomylytis and had to have toes amputated.  I take Lyrica three times a day at 225mg each dose.  The Lyrica has been a God send for me as if without it I would be curled up in a fetal position without it.  During the day if I am busy with work and or up and around on my feet I tend to have very little pain.  It is not on my mind then.  Only other thing I have done that works at bed time to get rid of pain is to have about 4-6 shots of whiskey.  I can then get to sleep.  The booze may be bad for me but it cannot be as bad as Percoset which I use to use and I about bought the ticket back in 2009.  I also notice when there is low barometric pressure where I live it is worse.  If we have higher barometric pressure my feet do not bother me.  This has been driving me crazy for about 8-10 years now.  Both me an my brother both have it and neither of us are diabetic.  Anyone got a suggestion on what to do I would sure appreciate the help.  This is the first time I have written anything here.

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2 Replies

  • jeffrey64566
    jeffrey64566 jim37668

    Posted

    Jim, I am far, far better off than you. Just some numbness on the front parts of the feet. I was put on an anti-inflammatory (IC Diclofenac SOD EC 75 mg tablets twice a day) for another condition, which within 3 days made a marked improvement (50% less numb). It was only a 10-day supply, and I regressed after it was done. NSAIDs are bad for you in other ways, so my doc is having me try baby aspirin / regular aspirin (another NSAID but believed less dangerous for the heart). So far no results (3 days in). You may want to try NSAIDs for a short time to see if they help.
    • jim37668
      jim37668 jeffrey64566

      Posted

      I am way past those stages.  I have had neuropathy for I would guess to 12 years or maybe more.  I have taken Percocet like it is candy and paid the price for it back in 2009 when I basically had a nervous breakdown.  I have pain almost every night.  If  did not have Lyrica I would be in so much pain I would not even no what to do,  I do know if I drink about a 1/3 of a fifth of bourbon I can then fall to sleep at night.  If I soak my feet in ice water for 1/2 - 1 hour before bed at night and can then fall a sleep on some ocassions.  Use to go to bed with a "Tens" unit at night on each shin and sleep with it on all night long.  That gave me relief and I guess I will buy another "Tens" unit to maybe get back to normal sleep again.  I just want some relief! 

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