Genital Herpes & Constipation?

Posted , 50 users are following.

Hi all!

I contracted genital herpes earlier this year(March). To make a long story short.. during my initial outbreak I not only had a few bumps down there, painful urination, etc. but I also had a very strange pain in my tailbone and lower spinal area. It was almost a jolting sensation going off down there. I had done a little reading afterwards and it seems as though the virus may attack that area in certain individuals. With that said.. here's where it gets strange.

About a week and a half or so after my initial outbreak, I started noticing a slight change in my GI system and bowel movements. They slowly started becoming less frequent and I found myself unable to fully "empty" my bowels. I was bloated and constipated more frequently. I wasn't sure what was going on and explained the situation to my local doctor. I thought I had eaten some bad food. He had prescribed laxatives, increased water intake, additional fiber, etc. The laxatives were a bandaid solution at best just providing temporary relief.

Fast forward a few weeks after that and still no relief. I'm finding myself taking laxatives daily - sometimes double the dosage with barely any relief. At that point, I decided to go to a GI specialist. He ran numerous blood tests, took stool samples, checked for an obstruction, etc. You name it, they did it. Unfortunately, everything came back 'just fine'.

At this point.. I'm more or less losing my mind here. I've always been healthy, monitred what I ate(for the most part), drank plenty of water, took fiber, etc. And now I can't remember the last time I had a solid bowel movement. There isn't really any pain - I'm just severly constipated and backed up. The doctors that I've spoken to(very few) have stated that herpes should not affect the GI system. Then I came upon this study(for those of you who haven't seen it):

http://www.ncbi.nlm.nih.gov/pubmed/27281569

Yale research team believes that herpes virus may kill off colonic nerves causing constipation.

I guess the questions I have are.. who else has experienced this? And can it really be related? Any insight, advice, tips would be amazing! This has been a nightmare for me.

Thank you!

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  • Posted

    Hi, I am 34 and male. About a year ago, my bowel movements were perfect: I eat a meal and then 1-2 hours later, I poop without any problem and barely has to wipe since it comes out so smoothly. Then I started to get constipated towards the end of 2017. I could still work hard to get an empty stomach but then it would pile up again and the cycle repeats. About may-june of 2018, I could not get an empty stomach. Sometimes, it accumulates very bad then I only poop when I have 3-5lbs of poop. And it seems my stomach won't relieve the last bit and it accumulates again!!!

    The last few months were very bad, my back start to hurt and upper body and don't feel hunger or wanting to go to the bathroom (dead stomach). I took some probiotics and colace. This helped but I still couldn't get an empty stomach and always leaves a little bit left. Now I always want to go the bathroom but can't poop sometimes (very annoying too).

    I didn't notice my constipation related to any break outs but I have had break outs before. It feels like something in my body won't open up to relieve the poop rectum into the or something like that. So I just heard std viruses now can attack your stomach nerves. The sacral nerves aka sacral chakra controls nerves that your brain tells your body to poop and sacral chakra is related to sex. So stds basically are attacking the sacral nerves!!!

    https://www.bladderandbowel.org/bowel/bowel-resources/how-the-bowel-works/

    Will focus 100% on this and check back in 2019!!!

  • Edited

    After three years together, my partner has unfortunately contracted herpes. His symptoms began 13 days ago, and he has not been able to defecate without a laxative for a little over a week, so 4 or 5 days after the initial outbreak. I never experienced constipation from herpes, and I had no idea it was a possible side effect. After doing a lot reading, especially of this thread, I understand that herpes can permanently damage the nerves of the colon and bladder leading to chronic problems. After a lot of research during the last week, I've reached some conclusions, with a possible hope for treatment:

    • The chronic constipation should be identified as neurogenic bowel dysfunction. This term is usually used in relation to central nervous system disease or injury, like spinal cord injury or spina bifida. I have not seen the term used with HSV, but I think it should be. Neurogenic bladder and bowel dysfunction have been identified as possible consequences of herpes zoster (shingles).
    • Since neurogenic bowel dysfunction is considered the result of permanent nerve damage, the sites I've read speak in terms of "bowel management". People who have posted here have talked about their own bowel management regimes. This is hard to take, as it requires a major change in lifestyle on top of dealing with the lesions and relationship issues.
    • Treatment should begin as soon as possible after the first outbreak. Based on the comments I've read here, the damage to the nervous system seems to happen in the first week of the initial outbreak. I don't know if anti-viral medication will protect the colon nerves from attack, but it's the only defense we have right now. I have only seen one mention that treatment is URGENT after an initial outbreak, and why.At this site, https://www.austincc.edu/microbio/2421c/hsv.htm the author says "It should be noted that therapy for the first outbreak is critical because it reduces the risk of neurologic complications... Treatment should be started within 48-72 hours of the onset of symptoms." I have never heard a warning like this - it should be restated in all the public literature.
    • Stem cell therapy might be a treatment for neurogenic bowel dsyfunction. This recent article from the Oxford University Press describes how a patient's bowel function improved after stem cell therapy to the spine: https://academic.oup.com/jscr/article/2018/11/rjy300/5178586 Obviously the patient suffered from a spinal injury and not a viral disease, but the principle seems compatible regardless of the source of the injury.

    My partner started valacylovir 10 days after his initial symptoms, but I think it was too late. I strongly suspect that he will never get his full bowel function back. If his bowel function hasn't improved in 5 days, I will assume the worst, since almost every testimonial I've read says that it does not ever go back to normal, just manageable through a management regime. Hopefully the drug will stop any further degradation.

    In the coming days I am going to be looking into stem cell therapies for his bowel dysfunction. I have also read that stem cell therapy to regenerate nerves is more effective the sooner it happens after the injury. I don't know if anyone has ever been treated for virus-related neurogenic bowel dysfunction using stem cell therapy, so it seems like new territory. If anyone has any information or suggestions, knowledge of studies or treatment facilities, I would really appreciate it.

    • Edited

      Most of the patients here report that their bowel movement does recover over time. It's my experience as well. I've contracted HSV-2 a little more than 1 year ago, and nowadays it's like 2 months free period, no bowel movement issues, and then 3-4 weeks constipated period with an outbreak, when the 1st week is hard, from the 2nd/3rd week it gets more and more manageable.

  • Posted

    I've started a very expensive infusion therapy called IViG. It has helped many patients with neurogenic autoimmune bowel dysfunction. I also use a drug called Prucalopride (brand name Motegrity) which just got approved in Dec '18 for use in the U.S. it helped with enteric nerve function which are the nerves that control motility.

    • Posted

      What does "very expensive" mean? And how would you get those treatments prescribed?

    • Posted

      IViG stands for Intravenous Immunoglibulin and it cost like $15,000 per month. The virus triggered an autoimmune condition in me and also a immune Deficiency which is how my neurologist got it approved. I would suggest trying to get Motegrity (Prucalopride) prescribed. Retail is like $1500 for 90 days but insurance should pay. It help enteric nerve signals that control your colon.

    • Posted

      Oh wow, I'm sorry to hear that and I wish you best of luck and a good recovery! My issues are definitely less serious and easier to manage, but I will talk to my doctor about that drug. Thank you for the details.

  • Edited

    Hi,

    I'm checking back to this discussion and address some of its participants to ask them about a bit of a status report. As for myself, I'm about to close my 3rd year after the initial OB, and after a very hard 1st year, a much more promising 2nd year, and an even better 3rd year, herpes is barely noticeable in my life. I do get herpes "activity" in my body periodically, like once or twice in a quarter, but the blisters don't grow enough to pop out, just itching, and the bowel movement only have minor occasional irregularities, but it's not constipation. This proves that the "permanent nerve damage" story is simply, and fortunately, not the case.

    What about you guys, who reported here earlier, @triton, @JuliaAnna, @jan53585, @Nitelite007, @jz44lt and others, how are you??

    • Edited

      Thanks for checking back in!

      It's been a while since I've given any kind of update. I'm going into my 5th? year of having HSV2 and can also confirm my bowel movements have for the most part, returned to normal(took about a year). It seems as though some people may experience an initial shock/adjustment period. I will say that "Smooth Move" tea was phenomenal for me.

      For those of you going through this right now: just hang in there. It will get better. 😃

    • Posted

      @triton I've been following your posts from 5 years ago to the present 4 months ago. Thank you so much for sharing your insight and giving a lot us hope that the colonic nerves come back over time once our bodies get used to the initial shock. I am curious if you ever had numbness in the saddle area(rectum/genital area)? I'm having that now, 1 month into my primary OB along with severe constipation. I'm taking Miralax in the morning, Smooth Move tea in the evening and prune juice in between. It seems to be helping. And the numbness has faded just a bit. Let me know how you're doing and if you had any numbness accompany your constipation? Thanks!

    • Posted

      Hi there!

      Sorry for the delayed reply back. I do remember having numbness in that area during the initial OB. But it did fade away with time. As of right now - I'm doing much much better! Bowel movements have returned to essentially what I remember them being before all this.

      For those of you going through this right now - please know it will get better. First few weeks/months may be rough, but from what I've continued to read, symptoms do start to ease up. Good luck everyone!

  • Posted

    Hi. I am experiencing exactly the same symptoms. I infact had developed a very bad case of constipation immediately after my diagnosis in 2019. Even time I had to poop I would have some amount of bleeding and extreme constipation, I then underwent a colonoscopy which revealed an anal fissure. I was put on a diet of fibrous food and powders. 2 Months later I Have a bad case of lower back pain and constipation and urine retention , but my doctors refuse to associate constipation with herpes, I had come by the Yale article too and its definitely herpes , I'm going to consult my doctor today and ask to be put on medication for this , I was also asked to get an MRI so please ask your doctor for the same that should make some revelations it's most definitely the virus wrecking havoc

  • Posted

    Yes. I am going through this now and yes, I too feel like I am going crazy. my doctor has put me on a prescription called Trulance which has helped but you are basically stuck at home cor like 2 hours after taking it. i have asked to be switched to a different drug call Linzess that I was able to briefly try and it worked well. Sadly, this just treats the constipation symptoms hut its better than nothing.

  • Edited

    Hi

    This is my first post.

    I contracted herpes virus on august 1, and got the first symptoms a few days later, just before leaving for a 1 week vacation.

    It was a nightmare, i thought I had an anal fissure and unfortunately, didn't see a doc right away.

    When i came back I saw a doc who confirmed it was herpes, and gave me antiviral therapy. Within a few days i felt better. During the outbreak I took laxatives because pooping hurt like hell. I had ulcers on the sphincter and they were bleeding. Urinating was also painful. I wish i had seen a doc before, to get the treatment right away.

    Anyway, what's done is done.

    First tests showed I was positive herpes 1 and negative herpes 2. I got tested 3 weeks later again and same results.

    I noticed i was constipated as soon as i tried to stop laxatives. I thought it was because of laxatives. So I tried to improve my fiber intake, drink more water, eat prunes, probiotics, and so on... It improved a bit, but it never got back to normal.

    First weeks were tough. I always had the feeling of been full and unable to empty. I was going to the toilet, but it was never a full relief. Strangely, I was feeling that something was wrong when i was contracting and pushing. Like the movement was not correct or weak. I felt that some parts of the colon or rectum were not contracting as before. That's my feeling anyway. My belly was always hurting, i couldn't easily sleep on one side.

    I always feel pain in the lower left abdomen. Sometimes it's diffuse, sometimes a specific point hurts. It looks like it's inflammated.

    I had a major abdominal surgery 10 years ago and each time I have symptoms in this area, I get very anxious. So of course, the constant constipation made my very anxious and depressed, to the point I had to take antidepressants. Being anxious increases constipation, it's a vicious circle. My doc requested a colonoscopy, and am still waiting for the hospital to set a date.

    Lately I've stopped most laxatives, i only take 1 ts of chia, 1 ts of metamucyl, and one ts of flax seeds every night, with lots of water. I get one bowel movement every other day, that never feels complete. I will try smooth move tea.

    The pills i take for depression and anxiety also have constipation as side effects. So basically, I'm constipated but don't know what are the percentages of it due to meds, anxiety, herpes.

    Generally, I've seen improvement over time. Of course due to changes in my routines. I drink more, eat better, more fiber. My belly doesn't hurt as much as before.

    I still have trouble pooping, still feels weird and incomplete. But at least I don't feel blocked anymore. I don't take antiviral every day. Maybe i should.

    I will try to do more sport, and move more.

    I will keep you posted about further developments.

    Thanks!

    • Edited

      Just read an interesting report about Johns Hopkins research showing that neurons and nerves in the digestive track DO regenerate themselves. would be fantastic news for us.

      Elizabeth

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