Genital Herpes: Useful info for those looking for answers like me!

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This discussion has been locked due to a period of inactivity.

Ever since I suspected genital herpes (GH) and was recently confirmed to be going through a primary outbreak of HSV-2 (ugh, the "bad" one), I have been researching the topic like crazy! Guess that's a pretty normal thing to do, lol, and I'm sure many others here have done the same.

Anyway, I thought it would be helpful to share everything that I have learnt thus far, and I will continue to add to this thread as I come across more useful, interesting and/or relevant info.

Genital HSV symptoms https://patient.info/forums/discuss/comment?discussionid=482438&commentid=1776485

Testing for HSV https://patient.info/forums/discuss/comment?discussionid=482438&commentid=1776488

Does having one HSV type protect you against the other? https://patient.info/forums/discuss/comment?discussionid=482438&commentid=1776489

Autoinnoculation (self-contagion to other areas) https://patient.info/forums/discuss/comment?discussionid=482438&commentid=1776492

When is genital HSV most contagious? https://patient.info/forums/discuss/comment?discussionid=482438&commentid=1776494

Genital HSV transmission risk https://patient.info/forums/discuss/comment?discussionid=482438&commentid=1776497

Antiviral meds for genital HSV https://patient.info/forums/discuss/comment?discussionid=482438&commentid=1776501

Natural treatments for genital HSV https://patient.info/forums/discuss/comment?discussionid=482438&commentid=1776503

Genital HSV and increased risk of HIV https://patient.info/forums/discuss/comment?discussionid=482438&commentid=1776505

Transmission risk via inanimate objects, swimming and blood https://patient.info/forums/discuss/comment?discussionid=482438&commentid=1778698

Genital herpes and menstruation https://patient.info/forums/discuss/comment?discussionid=482438&commentid=1778703

Genital herpes and BV and yeast infections https://patient.info/forums/discuss/comment?discussionid=482438&commentid=1778708

Is there a vaccine for HSV-1/2? https://patient.info/forums/discuss/comment?discussionid=482438&commentid=1778714

Possible complications of genital herpes https://patient.info/forums/discuss/comment?discussionid=482438&commentid=1782789

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  • Posted

    Dear FelizCastus,

     I posted a message on this forum a while back (Nov 2016) about a possible herpes outbreak that I was experiencing. I had textbook symptoms and everything went back to normal after 3 weeks (thanks again for your answer back then). Sadly, I didn't get the blister swabbed at the moment. It's June now and I haven't had any recurrences so far. Also, I took an IgG test mid March and it came back negative for both types. I talked to my doctor, told him about the symptoms I experienced in Nov) and he said there was nothing to worry about and it was likely something else. The problem is my symptoms were indicative of a herpes outbreak (fatigued, painful nodes, flu like symptoms and a very painful bump that appeared in the wet inner side of my labia) so I'm a really confused. How accurate are these tests? I have been reading about the difference between IgM and IgG but the information I’m getting is related to false positives and not false negatives. How likely is it to have a false negative result after 15 weeks? Thank you so much smile

     

    • Posted

      Hey there! The HerpeSelect IgG test for HSV1 can in fact miss some cases (supposedly 1 in 4), and since you've had no outbreaks since, if it was/is herpes, it *could* be HSV1... or it might not be herpes at all. It's a shame you weren't swabbed at the time. If you ever get the same symptoms again, go get it swabbed and typed asap.

    • Posted

      Hi! So nice to talk to you again. I'm confused but as you said, it's a shame I didin't get it swabbed back in November; guess I was in shock. I will wait and see if it happens but I know for now it's uncertain. It's also hard to have "the talk" with my potential partners when I'm not even sure if I have it sad Not good for the dating life

      On another note, this thread has given me more answers that any doctors have seen so far. THANK YOU!

    • Posted

      That's so great to hear, and thanks for saying! smile

      I wouldn't worry about disclosure if I were you. The HSV2 IgG test doesn't have that issue, so if you had HSV2, it would have shown but it didn't, so you're negative for that, and that's the one you should disclose if you had it. gHSV1 is just the cold sore virus in an awkward location, but it is actually less infectious genitally than orally, yet people with oral HSV1 don't disclose. Some would argue that they should, but then again, most people with oral HSV2 don't even know they have it, so they can't!

      Putting all of that aside, you have been tested, and for all intents and purposes, you are negative. It may not have been herpes anyway. I would thus not worry for now, nor would I disclose based on all of the above.Your dating life doesn't need to change. 👍

  • Posted

    just found out i had herpes a week ago from today... been taking my meds and doing everything suggested of me but it still burns when i urinate to where im having to fill the bathtub with water to dilute my urine a little bit so the burning isnt as bad... is that normal to still have the pain when i urinate after a week..?
    • Posted

      It should be much better by a week. Maybe you're just taking a little longer, but that's nothing to worry about. Each person is different. You also need to dilute the urine from the inside, so drink lots of water. Have you increased your intake?

  • Posted

    Hi FelizCastus!

    I was wondering if you had any information on whether daily antisupressant medication would be helpful? I had my first OB 8 months ago and haven't felt any symptoms or new outbreaks since. But I am with a new partner. I understand that the daily meds are more for individuals with higher frequencies of OB's but I was wondering if it also lowered the transmission rate from asymtomatic shedding?

    Have you had any experience with this kind of research?

    Thanks always

    • Posted

      Hi there! Which HSV type do you have? The daily suppressive meds are primarily for gHSV2, so if you have infrequent gHSV1, you may not need to really take anything.
  • Posted

    Hi. I am very new to this. Was tested last week bc I thought I had a yeast infection. Turns out it is HSV 2. I am trying to stay as positive as possible. I had a blood test and it came back negative but I also had a culture done and that came back as HSV 2. I got it from my partner who has had no symptoms but he is the only one I've slept with in the past couple months. He will be tested this week. Neither of us are on medication yet. My doctor is out of town until next week.

    Obvioulsy, we cannot have sex during an OB, that would be so painful. But if I am experiencing an OB and he is not, and so far has not, can I give him oral sex? What are the risks of this?

    This forum has been so helpful with information and tips. Thank you for keeping up with it! I greatly appreciate it.

    • Posted

      If you and your partner both have it, as is most likely the case from the sounds of it, and if your outbreaks aren't excessive, there's actually no need for either of you to go on any medication, except to treat outbreaks as and when they occur, and even that's optional. Make sure he is tested for HSV2 IgG antibodies, not IgM.

      Assuming he has it, there is no risk to him whatsoever if you were to engage in oral sex. If you haven't already, you could potentially acquire it in the mouth as well, however, although oral HSV2 is very infrequently recurring and not very infectious. After 4 months, you should have immunity to acquiring HSV2 elsewhere on your body.

    • Posted

      Thank you for responding so quickly! Is there a drawback from being on the medication? I would get on it just to avoid having another outbreak. This is a horrible pain. Do you know if there is any correlation between the severeity of the initial OB and reoccurences?

      I have not contracted it in my mouth yet, I'm not sure how I haven't though. My mouth was involved the time I aquired it down below. I do have HSV1 cold sores but I rarely get them. Would this protect me from HSV2 of the mouth?

    • Posted

      The first outbreak is nearly always the worst by far. Recurrences tend to be waaay milder, believe me. If you're lucky, just a single lesion that's only sore to the touch (so largely unnoticeable otherwise), with none of the burning urination, body aches and whatever else you might have experienced with the first outbreak. Recurrences also heal much faster (up to or within a week).

      Taking the meds daily for suppressive therapy is not an issue, and valacyclovir and acyclovir are both well tolerated with no side effects for most people, and can be taken for years. However, if transmission isn't an issue in your current relationship, then unless you find out that you get horrible, frequent recurrences, there's really no need.

      Experts usually advise new patients to see how it goes in the first year without any meds. I did that and decided I don't need the needs unless I end up with a negative partner, as my recurrences turned out to be pretty mild and unbothersome, plus not all the time. So, it's up to you at the end of the day, and if you can find a doctor to prescribe suppressive therapy, but personally I'd see how you go without first. Good way to learn your triggers, if any, and how to identify the start of an outbreak, too.

      You may have acquired it orally but without symptoms, or maybe you didn't acquire it there at all. Not a big worry either way. Oral HSV1 might offer a little 'protection' against acquiring oral HSV2, but in general HSV1 does not really do much for HSV2 other than minimising symptoms (most asymptomatic HSV2 folk are asymptomatic due to pre-existing HSV1).

    • Posted

      Thank you, you have really given me some hope in this mess. I hope I am as fortunate as you and the recurrences are mild and few and far between.

      How is it transmitted by shedding with no symptoms? I'm assuming that is how I got it. Is the "shedding" all the time or is that sporadic, as well?

    • Posted

      It can be really devastating and stressful at first, but things will and do get better over time. It took me a few months, because I had to deal with this alone (that's another story!), but now I can confidently say that I am emotionally back to normal, no more stressed than usual, and I didn't have to give up or drastically change my former lifestyle, which was initially a fear of mine.

      Recurrences also tend to improve over time. The first year is often said to be the worst, and I have noticed a big improvement in my second year. Don't forget, I'm not on the oral meds, not even for recurrences (but you can certainly do that to try to abort or hasten a recurrence, by the way; that's known as episodic therapy versus daily suppressive therapy). I just use acyclovir cream to hasten healing.

      So it gets better, and it might even prompt you to lead a healthier and fitter lifestyle on top of your former one. That's what I did. Same lifestyle as before, but with a greater health/fitness slant, which also helped me out with the stress, etc.

      As for shedding, yes, most new infections (~70%) are due to asymptomatic shedding, whereby virus is shed via the thin mucosal skin of the genitals (no lesions required), which do not act like a barrier like regular skin. That's also how people get infected, as the virus can enter genital mucosal skin, not just shed from it. Asymptomatic shedding is sporadic and it's impossible to know when it's happening, unfortunately.

    • Posted

      If my partner and I both have it now, does being re-exposed to it matter? Thats all I think about when being intimate now and it is a definite mood killer sad

      Thank you so much for you info and support. I appreciate the honesty and transparency. I'm glad to hear that you have made peace with yourself. I hope I can acheive that one day too.

    • Posted

      You will. Just give it time. smile

      If you both definitely have the same HSV type, then re-exposure makes no difference once you have both passed the 4-month mark. That is when full antibodies are produced, thus protecting other parts of the body from acquiring the virus.

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