Gerd / gastritis effecting tummy, throat, mouth and bowels?

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I'm not entirely sure whats going on with my body any more..

(Diagnosed with gerd, gastritis and hiatal hernia after endoscopy a year and a half ago)

I've changed my diet completely. Sleep raised in bed. Do light exercise 5 days a week.. basically before someone suggests these sorts of things I have tried everything that I know of.

I've been on pantoprazole for a year and was on omeprazole for 5 months prior. Completely changed my diet. Haven't touched alcohol nor a cigarette in 18 months. I don't eat anything deep fried.. No onions no tomato absolutely nothing spicy. Actually pretty much all I can eat is bread, potato and some veg and some fruit. I can barely eat meat any more either. Anything I eat burns my stomach when it goes down, my stomach burns for hours after.. then I get that infamous 'gnawing pain' which wont go away until I eat.

Anyway, about 6 months ago 2 of my teeth crumbled away, I've only had the fillings in for about 5 months and they are both brown and stink.. Im sure its due to reflux.. My gums bleed every time I brush my teeth, no matter how soft the toothbrush is. They even bleed when I eat food.

A couple of nights ago my throat became inflamed, it burns even when drinking water. It feels like there is pressure in my throat near the top of it. It hurts to swallow.. my tongue is coated with yellow stuff. My mouth is dry. My breath absolutely stinks and has done for months, even before the teeth incident.

I'm always nauseous. Some weeks I'm only getting about 10 hours sleep over the entire 7 days because all these symptoms keep me up. My gp is at a loss.. they don't really listen to me anyway. My consultant at the hospital makes me wait a whole year for my next appointment, thats after the last one had to be brought forward by my gp calling him and telling him it was urgent.. He saw me for 5 minutes, said I had reflux.. gave me some anti sickness then asked me to leave. I'd already been diagnosed with reflux and given anti sickness by my gp?

Guys, I'm only 20 years old.. I'm 20! I was never ill before this and now my entire life has been turned upside down by something my doctors seem to think is 'simple'. 

It's past the point of effecting my 'quality of life'.. it has literally taken my life away. I can't do anything anymore. I'm always in pain, feel sick or am being sick.

If you got this far down and managed to put up with all my moaning then thank you,

If anyone has any idea what is going on with me then please feel free to comment..

Also, if there is mistakes in here or it doesnt make sense in parts, I've had 1 hour sleep in 48 hours so I'm not at my grammatical best right now!

 

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  • Posted

    Hi Abbie!

    First, I want to say that I am SO SORRY to hear that you are having SO MANY issues with your GI tract all at the same time! For being just TWENTY years old it is very concerning to hear of all of the things that are happening to you!

    You mentioned that your diagnosis was a year and a half ago. Prior to that can you think of the last time that you felt well? I'm trying to think of possibly some illness or event that happened that could have started you down this difficult path.

    Regarding your teeth, did you seen a dentist, periodontist regularly prior to all of your issues? Could your teeth/ gum issues be a contributing cause of your problems rather than just a result of your gerd, gastritis and hiatal hernia?

    You may have strep throat which can be quite problematic to your entire system.

    I'm thinking an infection which is causing you to feel so badly.

    Do you have a fever?

    Often the medications we take can cause issues in OTHER body systems. I would wonder if the medications you are taking MIGHT be increasing your problems.

    A trip to your dentist might offer more insight into your condition.

    Have you tried yogurt? Yogurt with active cultures can restore healthy bacteria that can get your GI tract back to a healthier place. This helps me greatly, and I definitely know when I need to have some yogurt to balance out my system! It is especially helpful after a colonoscopy cleans out your regular intestinal flora!

    Something else to try is eliminating gluten. Our daughter-in-law was having severe stomach issues and ended up in the ER following a dinner at a local restaurant. Turned out she had Celiac Disease and was allergic to gluten! After eliminating gluten, within a week she was able to stop all of her stomach meds. Within two weeks she felt better than she had for years. Certainly worth a try!

    These are some of my thoughts based on your symptoms and my experience with stomach issues. I would also suggest getting a second opinion from a different doctor who is more sympathetic to your situation. When we feel bad we feel BAD! We want HELP.

    Please let us know how things go for you. I hope you will be able to get answers very soon that will help you toward feeling much better.

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    • Posted

      Thank you for your reply!

      The illness literally came on over night, one morning I woke up like this. I had felt extremely well up to that morning.. I even started a new less stressful job 3 months before this started and my health was improving because I had time for myself!

      My dentist has said that its reflux that has damaged my teeth, I have had fillings in the past but never any problems with my gums or teeth breaking, she can see the erosion on the backs of my teeth.

      No fever!

      I have had tests for celiac and gluten intolerance and did cut it out for 2 months but absolutely no improvement.

      I haven't tried yogurt but have heard that pro biotics which you can find in some yogurt are good for thinks like gastritis.. So I'll give them a try.

      I'm seeing my GP in 6 days but my consultant won't see me until September.. The last time he saw me was last September so it will have been a year.

      Thank you for your interest and advice, I'll take any I can get right now!

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  • Posted

    Dear Abbie,

    sorry to hear about all this ,i too just got the wammie,what i have found is to really help is probiotics and hemp powder banana and chia made with almond milk blend and drink and then i drink chicory with almond milk 2x per day,,,,i know the teeth thing too mine are just a mess....not sure why this happens but finding ways to get out bodies back to normal is crucial! so far this has been working....

     

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  • Posted

    Hi abbie and I'm sorry that you are having such a lousy time.You can try tonic water for the nausea; it contains quinine, which is wonderful for settling the stomach. Peppermint helps too. for the bleeding gums, get some horse chestnuts, when they are about later in the year, and make an infufion of them/ Avery small sip, rinsed quickly through the teeth and gums will help strengthen the blood vessels in the gums. I used it once and never had any more trouble from bleeding gums. It's very very bitter, so have something nice to take the taste away straight after, but it does work very well and very quickly. This was recommended many years ago on TV by the great David Bellamy, in his series 'Bellamy on Botany' when telling us that an infusion of horse chestnuts is a cure for the 'Farmer Giles', cockney rhyming slang (of course) for piles. I used it successfully for them too and never had any more problem. It seems to be good for both ends of the digestive system, so maybe it would help anyboy with bleeding in the stomach, but I wouldn't like to drink it! ReadAvoid milk and eat an apple to reduce reflux. Nobody can guarantee anything will work, but in your state any help is better than none! Good luck, and as you can't get conkers until late summer, there is a cream preparation available that contains horse chestnut and you should be able to get it from the usual store.
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    • Posted

      That should of course read 'an infusion of horse chestnuts'! If using the cream, just a thin smear along the gums with a cotton bud may help. I hope so.
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  • Posted

    Oh abbie, I'm so sorry that happened to you. I'm also in the middle of this LPR struggle that sometimes push me to the edge. What I learned however is to be super strict with your diet. Choose only bland alkaline food that are soft to the stomach. Observe small frequent meals strictly also. Probiotics helped me and some digestive enzymes. It also helps when I go slow walking with the morning sun to increase your vit.3 levels. I do this while taking famotidine, an H2 blocker because I have adverse reaction to PPI especially omeprazole which made my throat really sore. Hang in there and pray.
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  • Posted

    Hi Abbiie,

    I'm sorry you feel this way. ;-(  Now, I don't really know how to help you or even relate to your problem but I have a couple of suggestions.   First why are you taking PPI's if they are not helping, or are they?  You need to get a 2nd Endoscopy and depending on the results consider surgery or stretta therapy after they do that 2nd Endoscopy. I see you have been taking PPI's for some time now, you could be deficient in many vitamins so I suggest you take Calcium, Magnesium, B12 (or B Complex liquid or sublingual) D3 and K2 right away, I mean like yesterday (ASAP).

     

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    • Posted

      Is a Vitamin - Vitamin K2 works synergistically with a number of nutrients, including calcium and vitamin D. It helps move calcium into the proper areas in your body, such as your bones and teeth.  I believe with all the PPI's Abbie has taken at such a young age she is diffecient in all these important vitamins for healthy bones and teeth.  Now, acid will do that to you so she has to get a 2nd opinion and further study because based on her problems she is  very good candidate for a surgery or stretta and she needs to act NOW. ;-(
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    • Posted

      Did you tried dgl and aloe vera for your reflux? I cant take ppi and I dont want to tried zantax after my terrible experience with ppi. Im taking dgl and its helping me.
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    • Posted

      I guess this question if for Abbie, right?  btw, Zantax is not a PPI. Is a H2 blocker.  But I agree with you, PPI's are not good for long term and should not be taken unless you have no other option.
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    • Posted

      The question its for you. I read that you can not take anything...I know zantax its no a ppi. But after my experience with ppi Im too scared to try it...off course Im worried about the damage cause by acid reflux...now im using natural medicine.

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    • Posted

      aloe vera burns my stomach, i think it has a alkaline level of 4 (dont quote me on that) which is still to much for me.. but yeah i did try!
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    • Posted

      I tried aloe vera with negative results, did not try dgl.

      In my case I might have low acid instead of high acid which is normal for people over 50 but the sysmtoms are the same because the valve is allowing the reflux to go up the esophagus and throat/vocals. Depending on the reults from a test I just took I might start taking HCI with pepcin to try to normalize the acid on my stomach.  Zantax is alot safer and you can always try it for 60 days or so and if it doesn't work stop. Just like you I would try anyhting before medications, but sometimes you have no option.   btw, just yerterday I was watching a TV program and they said USA is 5% of the world, and 75% of prescription drugs comes from the USA alone. WOW, talking about what money does to you. ;-(

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    • Posted

      I'm taking hcl and it help a lot. I take 3 with lunch and dinner. My doctor said that people with low stomach acid usually feel worst taking ipp like the food sitting on your stomach...that was my case. My acid reflux come 8 month ago for the first time...after a few month in hell I went to naturopatic doctor because gastro dr only offer ppi or zantax which I dont want to take... the new doctor did a breath test and I have small bacteria overgrow (SIBO). She said that acid reflux its cause by low stomach acid, h. Pilory or SIBO. I didnt know I had SIBO because I dont have the main symtomp (Bloating) She said that if I eradicate SIBO the acid reflux will be gone. Im doing the treatment my reflux its better but still have it everyday doesn't matter what I eat...Im doing herbal antibiotics and if this doesnt work I will take regular antibiotics.

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    • Posted

      Sounds like you are in the right tract.  I did the breath test as well not to long ago and they found nothing.  I also have done numerous test which shows  I have mld reflux on my esophagus/throat/vocals but as for my stomach all they can find is Mild Inactive Gatritis.  But like always all they did was give me PPI's and H2 Blocker which have done nothing for me.  So my next step if nothing shows on the results I'm waiting for is HCI - I'm also getting off anxiety pills (slowly) so I'm at a low dose right now, but I noticed that the main reason I still need these is for sleep so I'm also going to order Magnesium L-Threonate which I read is good for sleep, brain function and when you have brain fog.  I already take probiotics and B Complex, D3 and K2.  Was taking Magnesium but I thing this new Magnesium will work better for me.
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    • Posted

      I feel like my food just sits in my stomach also but, I had this feeling even before I started PPI's. Even hours after eating I feel stuffed up to my neck and I haven't been eating much. My stomach always feels like it is in my way if I bend or sit I feel like my stomach is full even if it is not full. I feel bloated all the time except when I get up in the morning. I have been on PPI's for about 3 weeks, I thought they were helping but now I'm not sure if it is diet change or pills. I have an endoscopy on Jun 9th, so I hate to try and get off from them and feel worse until then and Dr will probably just tell me to get back on them.
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    • Posted

      It sound to me like you could have SIBO. The sendation of food sitting on your stomach, feeling full after a few bites, bloating, costipation or diarrea are symptomps of SIBO. When you have SIBO like me and take ppi you feel worst because the ppi "cut your acid" and the food stay longer on the small intestine and the bacteria keeps growing because of the lack of acid and fermentation. I dont know if a gatro dr can order the Breath test for SIBO I got my with a Naturopatic Dr. The Dr explain that all the bacteria created gas and that gas created pressure and the acid reflux happens. If you have sibo you cant eat carbs or sugar because those feed the bacteria.
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    • Posted

      If you have low stomach acid and take hcl there is a high posibility that your acid reflux stops. I hope that its the reason and you are free from this nigthmare!
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    • Posted

      My gawd I am running out of foods that I can eat. I gave up most sugars, don't eat much bread, I tried giving up dairy but I decided, for now, to eat fat-free dairy as I just found out I have an allergy to almonds. Gave up most fruits which I love, don't eat meat other than fish and chicken, I bought some gawd awful protein powder that you have to lay your ears back to swallow it. I felt better immediately taking the PPI's, it made the nausea stop so I could eat. Thankfully I will be having an endoscopy in a month to get some answers. I will bring up SIBO when I see the GI Dr. I have heard this Dr is good so I have hope at this point. Wish you luck also.
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    • Posted

      That sounds typical of a hiatal hernia too! Constant fullness and you are more aware of pressure in your stomach. Hope you get it all sorted!
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    • Posted

      Thank you, I feel like a marsupial with a newborn. I have lost about 12 pounds now and I should feel thin but NOT so much. I hate to move to much as I get vertigo with this also.

       

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