Getting doctors to take you seriously and getting a diagnosis

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My OH has had trouble getting GP's and so called specialists to take him seriously with problems in the gastric/abdominal area. Long story short it was suspected he had bowel cancer and he got a referral to be not even seen by the specialist and told it was something minor by a junior...without even looking at him or reading the referral notes. They didn't even get his name or age right.

Since then he has been passed back and former, has some internal investigations but due to very high amounts of pain they haven't been completed. I feel that the only option left is have a look inside by a diagnostic laparoscopy since colonoscopy is unsuccessful for completion with him and he has similar troubles with the inflated ct scan.

If this is undiagnosed cancer which it still could be as now has very swollen lymph glands, although I know there could be other things happening, then how do we get them to take seriously and get something done?? He has even been told that it's unlikely due to his age -late 30's, which we all know is rubbish!

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4 Replies

  • Posted

    It is true that bowel cancer is much rarer when you are younger.  The doctor is right in saying this.  I was worried about pancreatic cancer when I had stomach pain and they couldn’t see my pancreas on the ultrasound. I questioned my doctor on this and he also told me it was unlikely at my age; I wad 42 at the time. His information was correct  because I was diagnosed with IBS and my symptoms have got better.

    However, since you are struggling to get a diagnosis change your doctor.

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  • Posted

    Hi Sarah55897.  I am so sorry and get very upset when I hear of the treatment someone has received.  Has your OH been to Emergency?  Usually if in emergency one gets test & sent to specialists quicker than through ones GP.  I sure hope help comes very soon.

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  • Posted

    The reason i say that it is rubbish is because i know of a few people personally that have been diagnosed with bowel cancer under the age of 40 and the statistics are rising. You are told to take the sum very seriously, ones that i won't list here, but doctors don't seem to take them seriously.

    We have been to a&e but and get referred for a colonoscopy from there which we went back for but as said above they can't complain them.

    Changing to a different surgery might be an idea but then we feel that we would have to start right from the beginning

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    • Posted

      Changing to a new surgery should not pose any problems because both your paper and electronic records would be sent to your new doctor so you would not have to start from the beginning.  A new surgery would mean a fresh look at your OH's problems.   I have changed surgery because of moving house from Scotland to England and there have been no problems for me. Your doctor would simply consult your medical notes from where your previous doctor left off.  When you feel you are running out of options, seeing someone else would still help.

      While you have heard of people getting bowel cancer at a younger age and these stats are rising, the incidence of this is still considered rare. Your doctor is still correct in saying this and is not fobbing you off.

       

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