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getting so depressed with vaginal astrophy

Posted , 8 users are following.

elizabeth84086
elizabeth84086

Had scans and bladder camera all clear, specialist said use ovestin everyday for another 3 weeks as vaginal astrophy, was using it month beforehand.

went back drs as no improvement, bladder terrible as burn all time,cant sit , lay most of time,

been on vegifem pills inserted for week and ovestin for round vagina and bladder and steroid cream twice daily on sore bits outside vagina.

Been going on months, now breasts getting very sore,

feel as if life taken over, im a carer as well.

any advice please

Dr has told me to use all above things for month daily,

thankyoi

1 like, 14 replies

14 Replies

  • Anonymous111
    Anonymous111 elizabeth84086

    Posted

    How old are you?

    So are you using Ovestin and Vagifem?

    Are taking any medications or vitamins?

     

  • Suki_girl
    Suki_girl elizabeth84086

    Posted

    Ovestin alone worked very well at curing my vaginal atrophy and uti problems. Could it be something else? I know how debilitating such constant pain can be and how it affects your quality of life and abibility to function on a day to day basis. My heart goes out to you.

    I was diagnosed with vulvodynia around 4.5 years ago and had to live with the constant searing burning and lack of sleep for some months. I was finally pain free after 2 years.

    Could your atrophy have caused you to develop vulvodynia? It is very difficult for drs to diagnose if you have atrophy because the two conditions have overlapping symptoms so they are most likely to blame the atrophy. However, the irritation and damage caused by atrophy can lead to nerve damage (hence the vulvodynia). It is worth investigating.

    Amitriptylene will help with the pain and help you to sleep, whatever the cause.

    • elizabeth84086
      elizabeth84086 Suki_girl

      Posted

      Thanx suki, my gp wont give me amertripylene as i was on it for 14 yrs for back pain and had to come of it 2 yrs ago as affected eyes, 

      could certainly do with sleep, i will ask gp about vulva when see him in three weeks, just feel as if going mad with discomfort esp in bladder.

      sitting seems to make worse, best position laying, friends think putting it on,

      No one knows till get it,

      Thanx elizabeth

    • Suki_girl
      Suki_girl elizabeth84086

      Posted

      I understand totally. I couldn't sit at all. I worked mainly from home on the computer so I knelt on my chair. Driving was horrible too. I stood on trains. Then I discovered ring shaped cushions designed for women to use after they have given birth. The cushion supported my bum bones but the hole in the middle meant there was no pressure on my vulva area. The fact that sitting makes it worse sounds like vulvodynia. The nerves are hyperactive and hypersensitive and respond to touch and pressure as pain. Eat way to test: get a cotton bud and touch lightly all around the vulva, if you feel pain then the nerves are overreacting and that is vulvodynia. If you find you do have it, I can tell you how I cured mine. In the mean time try not to put any pressure on that area by sitting or tight clothes. Dab very gently with loo paper after you have urinated. Try not to aggravate it. I found coconut oil soothing (raw, virgin, organic, cold pressed) and applied it after every time I visited the toilet. Sorry you cannot take amitriptyline - that was the only thing that helped me sleep.

    • elizabeth84086
      elizabeth84086 Suki_girl

      Posted

      Thanx suki i will try it and see,spoke to gp on phone today aboht sore boobs and he said they shouldnt be affected,but to try vegifem for two weeks and if no different would take me off them, but hoping by then to see some improvement, hope is the word.

      As you say sitting so difficult, i have two discs out in back so physi told me to sit up straight, not easy with this,never want to get up in morning,

      willl keep in touch

      Thanx elizabeth

    • Suki_girl
      Suki_girl elizabeth84086

      Posted

      I know. I just wanted to stay in bed all day. Moving around also aggravated it. I was so fit before I got it. I did exercise boot camp once a week, belly dance once a week and occasional swimming and cycling. I could do a 4 minute plank. Then, once I got the vulvodynia I did nothing. Didn't even like walking a short distance.  My whole life changed. The further I walked the more the pain increased. I am pleased to say I have started belly dancing again and walking but I don't think I'll ever be brave enough to cycle (these hard saddles - no thanks!) or swim (chlorine on that delicate skin - no thanks!).

      Not sure about the sore boobs issue. I know that happens with oral HRT. But it shouldn't with local. My boobs haven't been affected by using the ovestin cream. I wouldn't mind if they swelled up a bit ....

  • wendy62425
    wendy62425 elizabeth84086

    Posted

    Hi Elizabeth

    My GYN had me start with using Estrace cream inserted  in vagina for 14 days then start Vagifem 2x a week.  It did take a few weeks  to feel "normal" again and to have quality of life....for some it could take longer depending on how severe the Atrophic Vaginitis is.   It takes a bit for the Vagifem to work in the vaginal area so you have to give it time.  We are all different and our bodies react differently to different medications..I know that I will have to stay on Vagifem for a very long time....and hope my body will be okay with that long term.

    Sometimes I put some Estrace cream on the outside area if I feel discomfort.

    This is what has helped me to have quality of life.  Before..... I was experiencing UTI's and sometimes did not have UTI but felt like I did which is part of AV......bladder pressure......much discomfort!

    I wish you well...please keep us posted.

    Best,

    Wendy

    • elizabeth84086
      elizabeth84086 wendy62425

      Posted

      Thanx wendy, find it so hard to even sit, did estrogen affect boobs as mine so heavy and sore,got to see gp in three weeks after month on vegifem everyday, he did say use ovestin on edges as well,,but i thought been on that before vegifem for month and no better, but i was putting it in by finger and app not far enough.

      Bladder always stinging but as blood in urine had tests and all clear thankgoodness, jusf feel as though ruling life as most comfortable place is bed,

      like you said bladder pressure is the most discomforting, 

      But i expect i will just have to wait and be patient,as you said takes time,

      GP says my constant nausea is anxiety, wish you well to,keep me posted, never spoke on forum but all my friends seem to think im making big deal of nothing,

      Thanx Elizabeth

    • susan556
      susan556 elizabeth84086

      Posted

      Elizabeth your friends obviously havn't a clue of the discomfort your in then. I wonder if the nausea im feeling is down to anxiety as well. 

      Sue x

    • Suki_girl
      Suki_girl susan556

      Posted

      Anyone who hasn't experienced this constant burning feeling of the private parts has no idea how debilitating it can be both mentally and physically or how much it can negative effect quality of life.

  • linda50940
    linda50940 elizabeth84086

    Posted

    I feel so bad for you. Wish I had some good advice. Please keep us posted. We care.
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