Getting the right team of doctors
Posted , 6 users are following.
Hi all, Russ again. Thanks for the feedback, very helpful.
The one difficulty that many of you and now me seem to have is finding the right doctor. My pulmonogist does not seem to think that I am very sick, if I am reading him right. Being a nurse for 30 years I think understand this phenomenon. I was the well one, and could not experience what my patient where experiencing.
I'm not sure if I should seek out a knew docotr or maybe even find another doctor who can treat my many infections like an Infectious Disease specialist. I usually can not get see my pulonologist when Im sick and usually go to the medicine clinic. I just finished a 10 day round of Avelox. They did chest xray and I was advised to have my Pulmonogist read it and get back with me. Thst was six daus ago.
By suggestion I will see an Immunolgist. It sounds like some of you have had a bit of struggle to get the ship going in the right direction. Does it just take persistance or did you luck onto a doctor who undrstands how important constant and consitant vigilance is needed to stay up with BRX.
Hope you are all doing well,
Russ
0 likes, 11 replies
Bela1957 Russell27NOLA
Posted
Thank you and wish you the best
Russell27NOLA Bela1957
Posted
I think one of the reasons for prescribing long term antibiotics is the number of infection a patient is having.
I have not tried any natural remedies and that is a next step.
There are few people on line who use natural remidies. Maybe you might wnat to put a another discussion topic out abot it. I would like to hear also.
Have an awesome day,
Russ
charles97600 Russell27NOLA
Posted
Every day I do 2 to 3 cups Ginger Tea with organic honey (I grate the ginger myself and soak in boiling water,I make about 4 bottles each time)1tsb. of Munuka Honey 1 in the morning and one before bed.
then 8oz of water with Apple Cider Vinegar,use omly Organic Vinegar with the Mother in it I do 3 glasses per day. Then I take Vitamin D.
Note I still Nebliz to help remove Mucus and so far have been maintaining what I feel is helping.
Regards,
Charlie
ida44484 charles97600
Posted
Like you I also drink ginger tea daily and sometimes I'll add some Manuka honey. I take Vitamin D and C and I mix green powder with my OJ and gozzle it down daily.
I also use a netipot every night to clean out my nose.
I feel very healthy and strong and I rarely get sick.
Best,
Ida
Russell27NOLA ida44484
Posted
Russ
ida44484 Russell27NOLA
Posted
I'm actually following your advice and changing the time I do my physio to later in the day and it seems to work well.
I'm wondering why you would try to change your time, since iI believe you said that it's so easy for you to get your stuff out in the evening?
Anyways, I'm just thinking that you shouldn't try to force anything earlier in the day when the evening works well for you.
Just a thought!
Best,
Ida
charles97600 ida44484
Posted
Just a side note ,Manuka Honey I was told should be taken straight and not added to warm or boiling water as the benefits of the bacteria fighting source is weaken,you may want to research it, seeing it is not cheap you need to get all mthe so called benefits.
Stay well
ida44484 charles97600
Posted
Thanks for the heads up. You are right; it is very valuable information, since Manuka honey is so expensive. From now on, I will just eat a teaspoon of the honey by itself.
Thanks again,
Ida
elizabeth49611 Russell27NOLA
Posted
We will be moving at the end of the month to be closer to our daughters, it's near a big city that has Bronchiectasis specialists.
My specialist here also suggested that I see a immunolgist, which I did. I now have monthly IV to help with my immune system.
Stay healthy, Elizabeth
ida44484 Russell27NOLA
Posted
I'm on my fourth pulmonary doctor and I have only had BRX for four years.
I believe that we have to be our own best advocates and seek out the best doctors possible.
My first pulmonary doctor was an alarmist. She woiuld go; "Oh my god, this is so bad." She would have me take any test/exam possible and I swear it made me even more sick. I had more exacerbations with her than with any other doctor.
So I did a lot of research and found the best pulmonary department in my area. I talked to a lot of people and was in everybody's face until I found out which doctor I believed would be the best one for me. However, I could not get to see him for two years and had to see his colleagues. The main office always told me that he wasn't taking on new patients or he was working on his research. Through back ways and a lot of manuevering I finally got to see him last month and he was fantastic. He is now my primary pulmonary doctor and I see him again in June.
So, my advice to you is to do some research, talk to nurses, patients, scour review sites, etc and be persistent until you find a doctor you feel very comfortable with. It's totally worth the effort.
Best of luck,
Ida
Russell27NOLA ida44484
Posted
Again thanks for your support and advice. Also, good health and good cheer to you on the St Patrick's Day!
Russ
May rht road rise to me your feet.