getting worse by the day
Posted , 4 users are following.
i am so tired of being sick. its like everytime i get a positive attitude and try to be optimistic, i get worse. i am in and out of sleep all day and even when i go to sleep i start to feel panicky so i dont sleep that well sometimes. i am very temperature sensitive. sometimes i feel like i have a fever and chills sometimes my body feels cold. i basically feel like i have a nasty flu 24/7 its getting harder to leave my house and im afraid that i will have to quit my job and have to move back home with my terrible family (i live on my own). i am only 19 & i feel like my life is ruined. doctors pretty much laugh at me bc my tests are always super normal. dont know how much longer i can deal with this.
0 likes, 2 replies
pet48859 lashae00
Posted
Bless you i understand your frustration. Gp’s can be pretty useless when it comes to cfs/me. Have you asked your doctors to refer you to a cfs/me clinic? They will give you lots of support. Keep that optimistic mind flowing as often as you can. Try not to stress, I know easier said than done but stress will set you back. Bare in mind, statistics say young people tend to have a better chance of recovery. Have you tried listening to some guided meditation? Be kind to yourself
Pet
Penchoteet lashae00
Posted
I really empathize with you, my dear. I've had ME/CFS symptoms since 2002. And you hit it right on the head when you said you felt like you have the flu. Exhaustion, aching all over, and feeling feverish or too cold are all part of this. As you probably know, there are no medical tests that will test for this disease; it is diagnosed basically by ruling out other diseases that act similarly. It is a chronic illness, and unfortunately, chronic illnesses often lead to chronic depression. There are people who have ME/CFS , but are able to have a full time job and do the things they want to, and on the other side of the scale are people who are home bound. Most of us are somewhere in the middle of those two extremes. It is difficult for healthy people to understand what chronic fatigue is, and they far too often unknowingly make us feel worse by saying something like "Oh, I'm always tired, too" or "it's all in your head".
I have some suggestions for you that help me -- if I do them. I'm in perpetual denial that I have chronic fatigue, of course, and I forge ahead doing things that distress me physically, mentally, or both, and end up
paying for it with two or three days in bed.
Several times a day, take a 30 second break to pay attention to the present moment. Concentrate on your breathing and your surroundings. That can relieve anxiety enough to help raise your mood a little and allow you to function better.
Pace yourself. This is very important, but extremely hard to do. Listen to your body and slow down or stop altogether when you get tired.
Avoid exposing yourself to stressful thoughts, people, or situations.
Google for ME/CFS information that you can share with your family and friends so they might be able to better understand what is going on with your health.
Seek outside help. Your own physician may understand what you are up against, or seek a good Internal Medicine doctor or a Rheumatologist. Psychotherapy is also especially helpful. Since really good sleep is essential for everyone (especially us), getting a sleep test would show whether or not you have sleep apnea. If you do, CPAP will take care of that and give you more energy.
Stay physically active to keep your muscles from atrophying, but don't go over your limit.
Don't feel guilty!!!! You are not responsible for this. You have it, and you are doing your best.
DNA markers for ME/CFS were found around 10 years ago, and medical research will, hopefully, find help for us soon.