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Getting worse, getting nowhere...

Posted , 7 users are following.

jon54193
jon54193

wow if it's CP that I have, it's hell! The pain is constant and it's all over, crippling me. Life is over. I again had 3 speacialist tell me it's not my pancreas. Had a weekend of drinking some beers, eatling good food, felt good but now 2 days later I'm in trouble again. throbbing left side under ribs, abdominal pain all over, HUGE back pain, heavy legs and numb hands/fingers. If I sit in a car for more than 20 mins I can't even get out....EVIL! It seems like I can't straighten my body when walking.

Another consultation is 2 weeks, not sure what I'll do before then. Trying to hide this from ppl I know as I already had comments with ppl shocked that I was still ill after 18 months of this cr*p and suggesting it ws all in my head. I wish.

Hope everyone is ok, we're not alone that's for sure.

Peace, always.

1 like, 9 replies

9 Replies

  • cynthia63868
    cynthia63868 jon54193

    Posted

    you must get this sorted jon, dont wait 2 weeks go to A&E and pester them, I know what you are going through with the back pain, mine was pc but yours may be a benign tumour pressing on the nerves, suggest that to them and plead for some oramorph to kill the  pain. CYNTHIA
    • emmab
      emmab cynthia63868

      Posted

      Hi Cynthia,

      Can I send you a private message about CP.

      Kind Regards

      Emma

  • lawrence1969
    lawrence1969 jon54193

    Posted

    Jon you must check it out ASAP don't take anything forr granted please. The sooner you see them the better. Don't wait for 2 wks thats to long. In my case i would tell you that majority of the locum doctors don't have a clue of what to do. They look for easy ways out by prescribing medication i.e paracetomol, ibroprofen and ask you to comeback. It is very dangerous to leave things to the last minute. Best of luck
    • jon54193
      jon54193 lawrence1969

      Posted

      problem is if I go to A&E they will check my blood and it will be fine and they will say it's not my pancreas and send me home! Ridiculous I know...
    • amanda57806
      amanda57806 jon54193

      Posted

      Yes I went to the ER and they took blood and said it wasn't my pancreas.  I told my son (that took me to the ER) that I know my body and that it is my pancreas.  They took exrays and said oh it is your pancreas.  I honestly don't think they know what they are doing.  My problem started from a side affect from HIGH BLOOD PRESSURE PILLS.
    • jon54193
      jon54193 amanda57806

      Posted

      Sorry to hear Amanda - They found a problem through Xray?

      Confirmed at CP?

  • Gem1384
    Gem1384 jon54193

    Posted

    Hi Jon,

    I hear your frustration! sad

    It's the same here for me sad im managing the best I can on what pills I have (paracetamol) and herbs. I've got the pain management consultant today. That's gonna be interesting! Lol!

    I'm guessing the beers have set you off into more pain sad I know it's hard to hear it's not your pancreas and then you wanna eat normally and have a drink. If I eat even s bit normally I have horrendous pain sad I would hate to think what alcohol would do to me. I'm Honestly too scared to try any!

    I don't know what I can say, are you on amitriptline? Or any prescribed medication? You need to be on something!

    Thinking of you!

    • jon54193
      jon54193 Gem1384

      Posted

      Thanks Gem.

      They send me home and say I'll be fine in a few days, no medication....as nothing comes up in bloods or scans..18 months on...

      I can hardly move my hands! 

      Hope it went well today. 

       

    • Gem1384
      Gem1384 jon54193

      Posted

      Are you not under a gastro consultant?

      I saw the pain management guy, same person I saw 10 months ago.

      He agreed that things haven't got any better and the pain has got worse. He doesn't want to increase my amitriptline as he doesn't want me doped out of my head at 31 years old with 3 kids to look after. As I'm still breastfeeding, they're limited to drugs so he suggested a lidocaine infusion. Which I have agreed to (I'm willing to try anything). I'm unsure about it though. I've started to read up on it, sounds like they send most people with chronic pain down the same route. He had said don't remove my gallbladder as it will probably increase my pain. He said he sees a lot of people who have their gallbladder removed and their pain increases and get worse. So now I have no idea what to do sad

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