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gfr 45 info please

Posted , 2 users are following.

Cassicastle
Cassicastle

hi, 12 months ago i had a nephrectomy due to to cancer,

now my gfr rate is 45.  stage 3 according to my gp.. gp has referred me to a nephrologist, waiting for appointment i am so worried  with only having one kidney. i dont know much about this yet or what to expect, can this be reversed ? i am not diabetic, high bp on med for that but it was only borderline,

i am slim eat healthy and am  active. dont smoke anymore. age 59 and female.   also i am due to go on holiday for a month in a few weeks and am worried about going,

any info would be very much appreciated,

thanks

0 likes, 3 replies

3 Replies

  • LynQ
    LynQ Cassicastle

    Posted

    Hello,

    Try not to worry.  At 45 your GFR is ok and should not affect your quality of life much.  Your doctor will be able to give you good advice on how to protect your kidney as much as possible and with care, your GFR could remain stable for a long time.  You will need to keep an eye on your blood count and make sure there is enough iron in your diet. You can go on Patient View which allows you to keep an eye on the results of any medical tests.  The hospital should set this up for you.  It is very scary when you first find out.  It should not affect your holiday.  My GFR is 27 and I travel to lots of other countries.  Good luck with your renal appointment.

  • Cassicastle
    Cassicastle

    Posted

    thank you lynq for the info,

    i dont know how a gfr of 27 my afffect you but i hope your doing ok,

    can i ask whether you are able  to be covered for travel  insurance,as this is another worry i have,  

     my quandry is whether   tell the insurance company as  i  have yet  to see the consultant and have not had a diagnosis.

    am tempted to say nothing,

     

    • LynQ
      LynQ Cassicastle

      Posted

      Yes, you can get it.  I insure with Staysure- it costs more if you have any medical conditions- (I have several).  I'm doing well although my GFR is only 27.  I take an iron supplement and keep an eye on my BP- try to keep it under 140/90. Think it might be a bit of a risk not to mention to the insurance company as it would void your insurance if you had to claim.  Seems a bit unfair as you have not had a diagnosis-not all stage 3 GFR people are diagnosed with CKD according to the NICE guidelines 2014, if their eGFR creatinine is between 45-59 and their eGFRcystatin is more than 60 ml/min AND they have no other marker of kidney disease.

      All the best.

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