Giant mystery

Posted , 7 users are following.

My doctors know I am sick, and they are treating me symptomatically.

However, not one can figure out why I am sick. I have been clinically diagnosed with

Self fusing vertebras at three levels of my lumbar spine

Restrictive lung disease

Excessive lumbar hyperlordosis

Obstructive sleep apnea

Muscle weakness and neuropathy.

I have lost all reflexes in my heel as well as sensation

In the same foot.

Inflammatory gastritis

And Gerds.

Chronic dry eye/uveitis

Am I wrong for seeing this as my body is fighting

Against itself? I have been tested three times for

Ankylosing Spondylitis, tested negative all times

And I have no other Rheumatoligical markers.

Someone help me understand what's going on with my body?

I'm 34, and a mother of 3.

0 likes, 3 replies

3 Replies

  • Posted

    Im sorry to here about your illness, it

    was difficulty for me to finally get diagnosed.

    I suggest you could get your Primary Doctor

    To refer you to an Infectious dieses

    Doctor /specialist in your area. You may want

    To google search one for your area.

    I pray that you feel better soon.

  • Posted

    Hi Tara,

    I'm sorry to read your very long list of problems, no wonder you are feeling so ill.  

    I'm wondering if you have been seen by a Rheumatologist, if not it might be beneficial to ask your GP to refer you on. 

  • Posted

    Hi Tara,

    ​Findout if you have had an ANA test (Anti nuclear antibody test) this is the test that will tell you if your condition is auto immune. This test was the breakthrough for me, before, I was treated symptomatically just like you.You can read about the test online. Also, read about the Symptoms of Lupus and Sjogrens Syndrome, the dry eye, GERD,

    ​Apnea, could be related to a form of Lupus. The average time it takes to get diagnosed with Lupus is 7 years, because of all the different symptoms. You may be mild or severe but the disease is progressive so you must pursue a diagnosis to your issues and not give up. I hope this helps, good luck,

    Sally

     

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.