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Im new to all this so i am not sure if I'm in the right place but anyway here goes...
So I have been ill for about a year now, going back and forth to the hospital/ doctors trying to see what problem i have. I have been suffering from jaundice, severe fatigue, nausea, dizziness, brain/memory fog, cold hands and feet, ringing ears, and just feeling ill all the time. Ive been having blood tests every so often and showed that my bilirubin levels were high. The doctors didn't do much about it and put that down that i had ebv which is from glandular fever and it would soon pass. Well guess what it didn't. i had to miss around six months of school as i was so bad. i was constantly in bed sleeping, i hardly ate, i felt weak and just didn't want to do anything. My teachers probably thought i was lazy to come into school as they kept ringing me even though i explained the situation so i had to get my doctors to write a letter explaining everything.
Cut long story short, this has been going on and off, and lately has been getting worse to the point it's affecting my everyday life again. I started a new college course hoping it would help but my attendance is poor and im worried they will kick me out. Couple weeks ago i had another blood test. I finally found out i had this thing called gilbert's syndrome. Me being me I started searching what it is and how to treat it. I read that it usually has no symptoms or very mild ones which shouldn't affect your daily routine.
so now I'm worried if it's not gilbert's syndrome (even though i had a blood test to confirm it) and could be something else, as some of the symptoms lead to other liver diseases. I'm also being currently referred to a gastroenterologist.
I just want to know if anyone else has experienced these symptoms and if so how to reduce them or how to deal with this. i feel very sad and lost and I'm worried about my future
I appreciate all the advice and support.
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