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I found out I had Gilberts syndrome after a bad reaction to antibiotics in june last year and ever since I've been ill. My boyfriend is going to leave me. My sister has stopped talking to me after I didn't go to her wedding because I was ill. I am about to drop out of university a year away from finishing my law degree. I've lost half of my body weight. I eat (at most) twice a day which might be jam on toast or a salad if I have the energy to make one. I have a fever 24/7. My stomach hurts. My eyes hurt. My ears hurt. I've stopped talking to everyone, other than my Mother and younger Brother. Every month a few days before my period, I get severe pain through my stomach, I go yellow and even had a seizure last month. I've had every test a doctor can offer, from blood tests to brain scans to spinal fluid tests, and nothing comes up but Gilberts Syndrome. I feel like I'm going crazy, I looked at myself in the mirror the other day and punched the mirror and cut two of my fingers because I couldn't stand what I've become. I cry every night alone in my apartment because of my fatigue and pain.
Can anyone give me ideas to make myself feel better? I've tried every diet and supplement, is there a drug that reduces the amount of billirubin, anything? I'm certain my problems are from gilberts syndrome, because I only started feeling like this as I went yellow and I've read about other people taking antibiotics that trigger it. Also, are there any doctors in the UK that accept the fact that Gilbert's Syndrome can do this?
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