gilbert syndrome
Posted , 4 users are following.
hi im a mum of 4 and im 28.i found out i had gs when i was expecting my second child in 2005 when they took blood.i have`nt been told much about it the doc`s didnt say much it`s nothing to worry about.but the past couple of mnth my hands have started to shake my older child who is nearly 10 keeps asking me if im ok so she is starting to worry about me.i take dizzy turn`s most days and my eye`s are always yellow but all i get told is there`s nothing to worry about is this normal. [/b]
0 likes, 4 replies
DavidN
Posted
I saw a few posts down in Australia they are hopefully doing serious research into this condition as am sure a few on here are as fed up as I am with it !
Wish you luck and all the best and you're not alone !
- David
mum_of_4
Posted
DavidN
Posted
It's 3:55am and yet again I cant sleep. Having never had insomnia before in my life it's something I'd previously lived without happily.
I remember a while ago the medical profession had the same attitude about \" ME \" or \" Yuppie Flu \" as they called it. They have since conceeded that it is a life altering condition. Hoping one day Gilberts Syndrome gets the same recognition as am sure like yourself I knew what \" normal \" was and the changes this condition has made to my life these past 17yrs has changed me beyond all recognition.
Feeling sick and tired all the time is not normal and for GP's to assume we're happy to try and live our lives feeling horrible is just flat out depressing.
I think the problem is that the severity of it seems to vary greatly. I've read posts online about many people who live with it but are unaffected and didnt even know they had it. So it's a strange condition how it can make some feel terrible and others, nothing.
Always hoping to see more recognition and appreciation and of course research into this condition as like yourself previous to my diagnosis I'd never heard of Gilberts syndrome either.
Take care of yourself and again wishing you all the best also to all the other people who are having problems with their lives because of GS.
- David
Debsf31
Posted