Gilbert Syndrome Fatigue negative life impact
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I've been diagnosed with Gilbert's Syndrom around 2 years ago. I never thought much of it as I was getting used to being tired. In most cases during working ours when lunch came around I would go to my car and sleep for my lunch break whitch will help me through the rest of the day. But I have now started a job where my lunch breaks are to short and I am in a new country where I have no car anymore, so no lunch break sleep. My fatigue lately is so bad that I am scared that I will just fall over and sleep.
I have taken up excersise again in the hopes that the activity will boost my energy, but my body feels so numb that it is sometimes difficult to even try to excersise. The fogginess of the mind that goes hand in hand with tiredness is the worst for me. My mind feels like information is passing right through it, which makes my career life extremely difficult.
I understand people like to say that it is a harmless illness, but it impact my life negatively. I need to know if anyone out there has found an effective diet, or something to get rid of this overwhelming fatigue that is releated to this ilness?
I can handle my stomach cramps as I found probiotics does wonders for that, even yoghurt if I eat enough of it, but this fatigue and foggy brain I cannot handle anymore.
0 likes, 12 replies
nicholas51113 kafrie
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kafrie nicholas51113
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kay68728 kafrie
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kafrie kay68728
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issy13138 kafrie
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WRITE DOWN EVERTHING! To decrease the stress, brain fog and tiredness, write down a to do list so you don't strain your brain having to remember everything.
Try not to work full time, I know it is hard if you have bills and everything but when I worked full time I became so stressed I was gagging daily. Make sure you get everything out of the way as soon as possible to ensure you don't have more things to do the next day, Make sure you have weekends of doing nothing to recharge your batteries and definielty sleep early and rise early, makes a huge difference. Hope this helps!
Good luck
kafrie issy13138
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bobby1022 kafrie
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thomas86219 kafrie
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bobby1022 kafrie
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Well I went to a psychologist and he diagnosed me with ADHD at 18 percentile, normal adult dose of ADDERRALL xr is 40mg per day.I take 10 mg once or twice a day depending on lengh of work hours and started feeling normal, brain fog is gone. used to feel sleepy faced before all day since morning, now better. Have a feeling that Gilberts syndrome may be associated with low dopamine levels in brain. Adderrall is definetly working. The first day i skip it, I feel very down get used to it by 2nd day but quality of life is bad compared to days I am on it. I do have rash on my legs (moisturizer helps). I bike about 8 miles four days a week. Feel like Adderrall numbed me to painful feelings (I used to feel pain to refocus my eyes) but it is helping.
MaxKolbe kafrie
Posted
Have you tried kefir for your pro-biotics? My wife makes her own kefir. It takes awhile to get used to, but I really like it. Also, if you have never had kefir before, begin with just a little bit. I drank a whole glass the first time and felt like I had the flu the rest of the day. However, after that I could drink it with no problem. I drink about a cup every morning.
mette0395 kafrie
Posted
Heeey
I just wanted to tell you that I have Gilberts and that I suffer from the exact same things as you. It is so hard 😦 I see that you posted 8 years ago and just wanted to ask if you have gotten better in the meantime?
dream93381 kafrie
Posted
I used to wonder why people said they feel energized by exercise. I just feel exhausted. I've found that meditation helps a lot with fatigue. I do two 20-minute periods a day. Just simple mindfulness seems to relax and recharge the body far more than just sleep.