Gland extraction
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I have sjogrens syndrome and have been asked by my consultant to agree to a lip biopsy. Can anyone please offer any advice about the benifits and experiences of this proceedure?
Mo
0 likes, 14 replies
shaq26875 maureen_43624
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maureen_43624 shaq26875
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I'm not sure my reply to your message went yesterday so just incase let me thank you again for your advice.
Mo
debraUK maureen_43624
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maureen_43624 debraUK
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not sure my reply to your message was sent correctly yesterday as I cant see it in the chain. So just incase please accept my thanks for your reply again. It must have been very scary for you but I'm so pleased you recovered.
Best wishes Mo
debraUK maureen_43624
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All the best with your decision and management of SS X
christine26761 maureen_43624
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christine26761 maureen_43624
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maureen_43624 christine26761
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thank you for your advice and best wishes.
I have had SS for three years now, confurmed by two blood tests a year apart.
One consultant at Guys said last year that it was a regular procedure but up to me. The consultant I saw last month said it was essentual to monitor
progress of the disease in relation to secondry conditions. That would indicate futher tests later on!
My instinct is to refuse it at this stage.
Thank you for taking the time to reply, take care of your self.
Mo
christine26761 maureen_43624
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maureen_43624 christine26761
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My father was a cockney as well! Yes Guys is great....but conflicting opinions
So depends in who you see in the day.
Best wishes ti you both,
Mo
christine26761 maureen_43624
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😘
jordan58854 maureen_43624
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maureen_43624 jordan58854
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thank you for your reply,
yes could be to assess for other conditions and I have had ME in the past that is very close to lupus. SS confirmed by two blood tests iver three years so no dought of this diagnoses.
i am going to refuse the proceedure unless the consultant can convince me of the benifits.
Thank you again Jordan.
Mo
jordan58854 maureen_43624
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