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Hi, I'm 23, and I had/have had glandular fever and strep throat. I want to prefice my story by saying, that I have a high pain tolerance and I'm not overly dramatic. unless something is super sore it doesn't bother me.
This all started about two and a half years ago. i had a sore throat for weeks and eventually my tonsils got so swollen and sore that I couldn't swallow. Got rushed to hospital cause I couldn't breathe. They also got infected and had pus on them.
I got my tonsils out, which was quite an ordeal. I had to be readmitted to hospital though cause the pain was so bad. The wound where they took them out didn't heal properly, and the blood didn't clot like it's meant to. Two weeks later I was having a bath and then blood started pouring out of my mouth along with "stringy congealed " bits. Maybe 10 cups worth. I got rushed to the ER (as I had already filled the bathroom basin at home with blood by the time the ambulance arrived).
The throat specialist at the hospital tried to stop he bleeding but didn't, and so they knocked me out and took me into theatre and stopped the bleeding. Ever since then, my throat has been sore every single day and I have tried to find answers, to no avail.
Right after my tonsils came out, I was taking a mixture of codeine and paracetamol to try keep the pain at bay. Not bad to start, but you get used to them and they stop working. To be honest the only pain meds that helped me were tramadol. Also for my sore throat, there are these difflam lozenges you can buy, and they also come in a spray bottle form too. Tramadol and difflam are the only thing that helped with pain relief.
Two years on I still have glandular fever and I am tired every day, and my throat hurts every day . I lost my job recently due to showing up late (because of glandular fever and being so tired, combined with my boss forcing me into having to do shift work, which made it even harder to sleep). Now I don't have money to go to specialists or anything like I was doing whilst working.
One thing I found that helped my dry sore throat a little bit was to stop eating dairy. No milk, no cheese. They have inflammatory properties and arent good for your body. That has helped a very small amount. Also, probably obvious, but no alcohol. Even one or two beers and my throat is sooooo sore for the next three days.
I'm not sure if/when I'll ever get better and it's causing me to be depressed and lose ambition. I'm run down constantly, and always sore. Have been to many different throat specialists and taken many different pills, but none have worked. Throat is constantly dry, so to combat this, I am constantly drinking water. The problem is, I end up drinking so much water that I feel sick, and have to pee every twenty minutes. If I don't though, the pain is unbearable.
Don't want to give up, but this cost me my job, all my savings, my ambition in life, and my friends. Don't know what else to do with my situation personally.
Have left out some details (like the 50 odd visits to my GP, 20 odd visits to specialists etc etc). Main points are above.
Anyone been through anything similar? Specialists and GP last time I went basically said we have done everything we can and they were really sorry. No official cure for glandular fever, and they aren't sure what to do with my sore throat anymore.
Any comments/advice/anything appreciated. I really didn't know how much my health mattered but I would give anything just to feel normal again , as this has really affected my life.
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