Glaucoma ( closed angle ? ) I think diagnosis

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hi 

I recently been diagnosed with glaucoma , I’m  a 50 year old female with a family history of glaucoma ( my maternal grandmother) within 2 weeks I have undergone 2 unsuccessful laser treatments , an awful rise in eye pressure 54 in one and 37 in the other , I had so much pain and sickness I actually thought I had something worse happening to me , I hadn’t been told that this diagnosis could cause these symptoms. I have just had another laser treatment which so far they say was satisfactory ! Whatever that means . Does anyone on here have any information for me that can put my mind at rest . For instance how do I know when my pressure is rising ? How do I make it clear to A&E check in staff that it is vitally important I’m not waiting for 2 1/2 with such high pressure ? 

I await some hopefully comforting information 

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5 Replies

  • Posted

    My wife has Glaucoma and lost most of her sight in one eye, but her pressure has never been as high are yours.  My wife's eyes were damaged when the pressure went up in-between six monthly check ups, we had thought everything was under control.

    We bought an icare tonometer which helps us self monitor the daily fluctuations.  This has really helped us and our doctor prescribe the correct dosages of eye drops and given everyone a clear idea of the diurnal pressure fluctuations.  I think you should try and get a hand held tanometer

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    • Posted

      Thanks for your reply . I have never heard of this but will certainly look into purchasing one , I think it will put my mind at rest . I’m sorry to hear that your wife has lost sight in one of her eyes 😔 this is obviously my concern too . Good luck with the future 

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  • Posted

    Hello Kim

    ​I hope what I say now gives you some hope and lessens your anxiety. I had a very rare case of sudden onset acute narrow angled glaucoma in 2015. This was triggered by a medication I was on called Amitriptyline. Over a 24 hour period it started with my right eye watering from the outer corner of eye, followed by the most intense pain (like trying to give birth out of my eye) and then the whole eye going very red. My neighbour took me to my GP emergency appointment (this had now been going on for over 24 hours) and she sent us immediately to the Eye Clinic in York Hospital and told them I was coming. We got caught up in rush hour traffic by which time I had a Halo of what seemed to be white gauze with bright yellows and oranges behind it and was retching consistently. The Eye team were waiting for me and started using various eye drops to get the immense pressure down in my right eye and fought for 3 hours or more to do this. By this time I had gone blind in the right eye and the left eye was following (if one goes, both go). I heard the Registrar saying he only had a 2 hour window to save my sight and he was visibly becoming agitated as the drops were not achieving what he needed them to. All this time I was retching with the pain but had to put my complete trust in him. And then he suddenly seemed to relax and over the next hour he got the pressure down enough for me to be admitted overnight and have emergency laser eye surgery first thing next morning. At 7.45am I met the most marvellous registrar who spent the whole morning doing this emergency procedure (4 hours) and eventually succeeded opening up my very narrow drainage channels in the lower eye and keeping the eye pressure down in both eyes. He was and still is my Hero! He told me that certain eye shapes (often what they refer to as Mongolian, Chinese etc) were prone to this type of Glaucoma and that I would be seen very regularly 6-9 months thereafter. I will add that I have no idea where in my family tree this eye shape came from as I had a Welsh Father and English Mother!  So far my dear, my pressure seems stable in both eyes (18 at last check-up) and although I have now developed cataracts (medium) they are not yet ready for removal. I have lost some peripheral vision in my right eye which I will not get back but that wonderful team saved my sight and I cannot thank them enough. So, what I am trying to say is this - just because your first 2 laser attempts did not resolve your problem, but you are now told that the 3rd has, celebrate and do not worry. You will be checked regularly I would hope and any sign that the pressure is creeping up again will be dealt with quickly. I had no idea when my eye pressure crept up to be honest and I am not sure that I had any signs of it at all until my outer eye started to water and not stop. Because my laser treatment worked I do not even have to use eye drops at all but cannot comment on whether or not you will need them That is up to the Eye Clinic to advise you and please always do exactly what they ask you to do. Our sight is so very precious and knowing we are in good hands should give us peace of mind. I live in the UK and can only speak for our system here by the way.

    ​I do hope that this experience of mine and the wonderful outcome is helpful to you Kim and I wish you well in the future. I am always on this forum and if you wish my support in any way please do not hesitate to post. x

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    • Posted

      Elizabeth you have made me feel so much better ?? I have also lost slight peripheral vision in my right eye which I can deal with. Giving birth from your eye made me laugh as that’s exactly how I described it to my husband , I can’t praise the NHS enough to be honest they have been great once I got through A&E but that’s not their fault I had to wait so long . 

      I am just hoping that it has been caught and treated in time , fingers crossed 🤞 thank you for your lovely message and I also wish you all the best for the future x regards Kim 

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