Glaucoma Suspect at 35. Kind of Freaking out!

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may26103
2

Few months ago I noticed  my left eye was blurry when I looked at things that are far. Went to the doctor and she prescribed glasses as I was nearsighted. 1.75. However she also mentioned that there is a bit of cupping in both eyes and to get some tests done. She measured by eye pressure at 10. 

I went to another doctor (eye surgeon)  immediately as I was not sure of what happened. He checked by eye pressure and it was 18. and said the cupping can be hereditary.

Did the Glaucoma tests,  Visual Field test and  OCT ON. 

He said it was all normal and come in for annual eye pressure checks. 

After I started wearing the glasses I felt tightening on my left eye. and also I read on the internet that variation of 8 for eye pressure may not be normal. I went to see the doctor again after 2 weeks. When he checked by eye pressure it was 20.... Still he said that I am a Glaucoma suspect and there is nothing that can be done and to get a test done again in 6 months. I feel very scared and feel that I do not have enough information on this. 

Please help me to understand this better if there are similar cases. 

Please help

May

 

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10 Replies

  • Posted

    There is something they can do!   They can put you on eye drops to lower the pressure.    My pressue was found to be about 27 when I had my first eye test in 1990!   My age at that time was 46.     They just kept me under obesrvation for 7 years, and when pressure went over 30, they put me on eye drops, but said that I still didn't have galucoma.     Now, 28 years later, I am still on eye drops and can still see OK.   They still say I haven't got glaucoma, just interocular pressure.  -  

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    • Posted

      Dear Alcantara,

      Thank you so much for taking the time to reply. It is heartening to know positive stories like yours. I am just so concerned about the hike in pressure and if it can rise so suddenly. I am hoping I will be as lucky as you... 

      Did you have any other symptoms than eye pressure?

        

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  • Posted

    All they can do is monitor you as you have normal pressures they may not be terribly concerned ensure you have an OCT every year or so until they are sure you have glucamateous damage or raised IOP I doubt they will treat. The main thing is that it's monitored my optician failed to notice damage at 29 years of age by the time I was 34 and diagnosed I had advanced loss of vision in one of my eyes.

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    • Posted

      Dear Phil1234, 

      Thank you for replying and I am sorry to hear about it. I am also concerned if my doctor properly looked at all my tests as it was on my own that I went again and got to know eye pressure has risen to 20 from 18. I am also afraid. 

      If you don't mind me asking, How long ago was this? and after diagnosis is it under control now?

       

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    • Posted

      I think anything under 21 is considered normal however I was only 22 and 23 mmHg at presentation but there are other factors to consider I was diagnosed 4 years ago and it's still showing signs of profession so will probably have to have surgery soon but consultants are reluctant due to a higher risk at a young age hopefully it will work out I understand your fear and anxiety as I have gone thru it all and still do. It is far more treatable when it's caught early so you're in a good position even if you don't think or feel so. Goodluck.

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  • Posted

    Hi. As Alcantara says above, if you have high eye pressure then they will give you eye driops. But the important thing is not to try and diagnose this yourself via information on the internet. You need to be under the care of a qualified ophthalmologist who will do the eye pressure and other tests and prescribe drops for you as needed. They may say that drops are not needed yet but they will keep you 'under observation'. Or they might put you on drops to keep the eye pressure down and to prevent the glaucoma from developing.

    I was put on drops initially to keep my eye pressure down and the ophthalmologist sometimes said that they were not really needed but that she wanted to err on the side of caution. Unfortunately due to other factors it turned into glaucoma but because I was already 'in the system' of surveillance they picked it up early on and were able to adjust the eye drops accordingly.

    Being a glaucoma suspect might just mean that you have higher eye pressure than ideal. Keep going to the 6 monthly appointments. Try to only read stuff on the internet from reliable / responsible sources. 

    All the best

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    • Posted

      Dear Dambudzo,

      Thank you for replying and the information... I have read so much about it my head is spinning. I shall take your advice. I am also thinking of going to a different doctor with recommendations and a doctor who will explain things to me. I am sorry to hear it turned out to be that and if you dont mind me asking... Is it under control now?

      I am also trying to come to terms with this big burden I feel that is weighing me down... The thought of losing sight... my son is just 4 and we were thinking of having another kid... and now... everything has changed....  I figuring out how to live normally knowing that there maybe a dark outcome.... 

      I suppose I am not that emotionally strong... 

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    • Posted

      hi. i fully understand your fears. I had regular tests every six months or so because of hereditary risk, and i never really thought about it until one day they sent me for more detailed tests - they must have noticed something deteriorating. They were quite surprised that when they gave me my first bottle of eye drops I just burst into tears. Now, several years on, I am getting used to the idea that I have eye drops. The clinic letters used to say 'high ocular pressure' but one day I noticed that the ophthalmologist had written 'glaucoma', and that was quite a shock. 

      the important thing is to get monitored and to use the drops if prescribed / required. and yes, find a doctor who has the time to explain, or look for a glaucoma association. I can still see and I've been using drops now for nearly 12 years.

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  • Posted

    May,

    My first eye test in 1990 was because my left eye hd gone slightly blurred and I thought it was just that I needed reading glasses.   That turned out to be the reason, and the specialist said the pressure could have been high for ages.     But even so, as I said, I was not put on drops for seven years.     Over the years, the pressure has gone up and down, once as high as 34, but all they did was change the drops.     I didn't have any symptons that I could put down to pressure, although I was allergic to Simbrinza eyedrops that made my eyes itch, go red, a sore.    Within 24 hours if changing eyedrops, I was OK again.   I worried about it all at first, but as the years passed, I just carried on with the drops and it faded into the background of my mind.    Lots of people here have had similar experiences.     Strangely enough, the eye with the highest pressure sees perfectly, and I can even read without glasses in the right eye.    The left one, has normal (for me) pressure, but needs reading glasses to sharpen things up.   

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    • Posted

      Dear Alcantara,

      Thank you for this... 

      It helps... 

      I am so glad there is a place like this to talk to people with similar situations... 

      Report Reply

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