Posted , 2 users are following.
I was diagnosed with a left glomus jugulare tumor in 1996. At that time, surgery was not an option. The tumor was too deep. It started at my jugular bulb and grew toward my brain stem, rather than up into my ear canal. It was treated with radiation. My most recent MRI, July 2007, indicates it is probably growing again. There is some question because my MRI center recently got a new magnet. It is unknown whether the tumor is growing, or if it is just a better image.
I see a surgeon next week. In anticipation of that appointment, I searched the web for information.
Imagine my amazement at finding so much information! And people who actually have this same tumor. I looked for others in 1996 and a time or two since then, with no luck.
I have mild to sever frequent headaches. I lost some hearing in both ears and have a real hard time with tinnitus. Hearing aids help mask the tinnitus, as well as improve my hearing. I am off balance and dizzy every day and have lost my balance, falling to the floor twice in the last month. I walk with a cane but was not using it both times I fell.
I feel very blessed that the tumor is not maglignant and unlikely to become so. I would love feedback from others who have had their tumor for ten plus years...those who were unable to have surgery...and others with experience of this very unusual tumor.
Thanks, Paula from the middle of the USA
0 likes, 4 replies