gluteal muscle fatigue10

I personally prefer to go for half a milligram at a time over a period of four weeks. It is suggested that you should not reduce more than 10% at any one point.

at 13 mg I STARTED LOWERING by halves or even 1/4s. .. OFTEN at 13-12 I've failed and have had flares.. so I'm taking even smaller steps this time.

So I'd recommend not only super slow but also super small amounts when you get close to 10mg and under.

Good Luck!

Try half a mg and, if you aren't already, use a slow method like dead slow nearly stop which introduces the new dose gradually and helps avoid withdrawal symptoms.

Just grabbed my phone to reach out to any fellow PMRer's in re. to me being so SICK of feeling like a walking dead & here is such a similar message ! I too have horrible fatigue, I can't stand it, feel like a zombie too. And, to those that don't have our disease, including many Dr's., sleep, naps, don't help. I'm on 15mg. prednisone & it's not doing much at all, but my side effects from it are pathetic. I see my Hematologist tomorrow, she did many tests, 2-wks. ago, so we'll see all results. We love her, she's great. She really believes my debilitating symptoms are allot from 3-of the 7-meds. I'm on, but especially the steroid. been on it 5-yrs. straight, since diagnosed, went as high as 60mg. as low as 5mg. Help...is anyone else dealing with such incapacitating fatigue, also much overall body aching & pain. I was a fitness nut, speed walked daily, YMCA member, healthy guy. I gained 45 pounds & so bloated & swollen I can hardly move. I have the moon-face, camel hump, & all !! Thanks & Prayers to all my fellow PMRer's.

I'd be inclined to either use a slow approach to the taper - like Dead Slow and Nearly Stop

https://patient.info/forums/discuss/reducing-pred-dead-slow-and-nearly-stop-method-531439

or drop just 1/2mg at a time if you have tablets you can cut. Or mixing 5mg, 2.5mg and 1mg of either enteric coated or plain pred allows that too.

Frances, I was a bicycle rider, normal weekly 100-120 miles a week, with 100 ride at least once a year. At one point when I joined the forum I was in a wheelchair. I started very slowly 1/6 of a mile walking with a cane a 10 - 15 minute rest, then another 1/6 of a mile. I was very very discouraged. The 30 mg of Prednisone was turning me into Dr. Hyde. Sometimes I was scaring myself. I was gain weight over 20 lbs. But with the help of some great people on the forum I got moving and DSNS tapering have been reducing, currently on 3mg and stabilizing before going to 2.5mg. It is not easy and most people will never understand the pain and fatigue. But I believe we most stay active, positive and try to smile, I think it helps. For me back at normal weight, 3 days a week at the YMCA, 3 days fast walking and looking forward to a great season skiing. Good luck stay with it. 🙂

I'm in the same boat. After a year on pred I am down to 12.5 from 24. Tried to go lower and failed. I now plan to stay on 12.5 for another week and try 12mg again.

I was diagnosed in May 2019 and tapered fro. 20 mg to 17.5 two weeks ago. I have found my physical recovery is not linear. overall I have progressed from wheechair at diagnosis to mt current activity level of around 40% of pre PMR. However there are days when I my muscles are just too tired to move , glutes , thighs and shoulders. like trying to swim in an ocean of peanut butter.

Are you seeing any progress from pre-PMR days or is your fatigue constant? I guess that's what is so different about this disease. no predictably.

Yes! I got so weak I felt like cellophane. I needed a walker or a cane my hips were so weak. I asked my doc for PT. I found a very competent practitioner; I also have a mostly fused spine resulting from scoliosis correction surgeries so my hips do not swing normally. Over several weeks my condition improved immensely. However a therapist who pushes too hard can be counter productive. It's important to start slow and rest frequently; improvement will follow. My therapy actually includes the Pilates discipline- modified of course.