Gluten free Bread Lichen Sclerosis

Yes Chrisy LS is certainly auto immune related and nothing to do with your diet! Diabetics don't eat lots of sugar and people with food allergies and intolerances avoid those items. A balanced and healthy diet is always important. 

LS is best managed by specialists and in my case more than one specialist as I attend a LS clinic in Melbourne at a hospital.

 

Dear Kathleen,

I completely disagree with you. My LS is very well managed now I have made certain dietary changes - no sugar, dairy or gluten. I use no steriods or any other medication internally or topically. Lots of sufferers of LS have found the same. Also I don't agree that LS is best managed by specialists. I think each individual has to manage their own recovery from doing research and trying different approaches.

To each his own and I agree to disagree. I like my dairy and have enough issues without putting myself through abstinence unnecessarily. Research is good but as I proved yesterday on a totally different issue seeing someone with qualifications and years of experience is invaluable not only for myself but to help others too. Choosing medication for osteoporosis is very difficult but having one person with deep knowledge was worth a million dollars. I trust that kind of experience and knowledge.

I suppose there is nothing I could eat or drink that wouldn't be worth giving up to keep control over my LS and its nasty symptoms. I would have thought having osteoporosis the first thing you would give up is dairy considering what an inflammatory food it is.

Ha ha, very funny! Dairy is the best source of calcium and vital along with vit d to protect the bones. Research is great so long as you have some experience in research as not everything is worthwhile information. 

There are plenty of calcium / vit D foods that are rich in calcium without causing an inflammatory response. Do you think all vegans are suffering with rickets! I must say I do not understand your attitude. To give up dairy (or any other food) for a few weeks to see if your symptoms disappear/reduce seems a mighty easy way to deal with LS instead of going down the prescribed drug route. Each to their own I guess. Good luck with your battle with LS!

Vegans give up meat. Nothing is killed to provide milk or eggs. Rickets are not caused by lack of protein!!! 

Vegans dont eat any animal product or by-product i.e honey.   Rickets are caused by a lack of calcium and vitamin D. Obviously vegans are getting their calcium and vit D from other sources. I am not a vegan but I know alot about animal welfare and commercial farming production and to say nothing is killed to provide milk and eggs is not actually true but I cannot be bothered to get into another pointless argument with someone who is naive and blinkered.

Oh yeah, and uneducated.

I think if we compared our level of education I would not be the one lacking! There is a big difference between searching and researching. The latter is done in a scholarly fashion. Do what you will, but do not sell your ideas as carefully researched material because some people may endanger their health by removing important food groups from their diet where no studies have been carried out to prove a link to LS.

And I guess you still believe the earth is flat

Sorry, I don't think this is the way to find a cure for LS together.  Openmindedness is important, as well as respect for each other's thinking.  All thinking is important, educated and not educated perhaps creative thinking.  

Since no cure has been found yet, I don't think that anyone can say that they have or know the absolute truth.  

Please, ....

Hi Hanny

I just do not understand this women. Im not sure she actually has LS as this is a forum for sharing our success stories on what is actually working for us as individual. She seems determined not to believe in anything unless it has been prescribed by a doctor. I just don't get her.

Heaven forbid, I'm a creative thinker and keen observer.  That's how I solve most problems and issues.  Though I also compare notes with doctors.  I just ask them the 'why's' and I get answers that then are helpful again.  They are scientifically trained and I can creatively solve.  Together we are more.  

We are all part of a web!  Each person is of value, as is nature and all the rest around us.  No one needs to be pushed away.

There simply is 'another view' that may not necessarily be yours.  I've experienced that doctors do not all share the same opinion either.  One and the same problem - I had at one time, three doctors and three different thoughts.  Interesting observation and experience it was.  You probably have experienced same.      

Hi Claire

If you are talking about me, no I am not sure I have LS or not. I do display some symptoms, tdermatologist did not bother doing a biopsy I am going back to the GP for an appointment. In the meantime I think it is important for us all to share information of what works for us. I thought that is what this forum was all about to support each other. I have received some invaluable info from others such as using coconut oil. Clob did not work for me which is another revelation I shared on the site, and a few other women had problems with it when it was discussed. I hope this site continues to be an invaluable source of information and that people will not get aggressive or derogatory in their postings as this approach is no use to any of us.

I don't think it was you they were talking about, just two members with totally different views trying to get their point over as we all do at times.  Don't worry.  Your right this is a forum to voice our opinions.  Long may it do so.  We sometimes get a bit heated as this topic is so important to all of us.  Yes you are right it is important to share.  Wishing you well.

Hiya,

No i wasn't talking about you.