Gluten problems

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I've recently been increasing my gluten intake in preparation for celiac testing.

Since doing this I am beyond exhausted, depressed and feeling really faint. I feel I've had a real set back.

It's been two weeks now since the tests and ive been avoiding gluten again during this time.

I still feel awful and was tempted to increase my thyroid meds but I don't know whether this could still be the gluten causing it?

I know it can take a while for gluten to leave your system but Does anyone know how long gluten can cause this sort of exhaustion?

Thanks

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9 Replies

  • Posted

    Hi Caz, I'm extremely gluten sensitive. It seems to take several months for my gut to heal after a gluten exposure. I haven't found anything that really helps with the gluten exposure. You could try some natural immune system boosters such as turmeric and grapeseed extract. Liquid chlorophyll is fantastic for maintaining energy levels.

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    • Posted

      Thanks for the advice Catherine! It's much appreciated. I was really disheartened and thought it might be my thyroid but sounds like the gluten problems could be lingering for a bit longer. I'll try what you have said above - thank you for the suggestions! smile

      Just out of curiosity do you have celiac or a general gluten intolerance? I have a feeling the results may come back as an intolerance rather than full blown celiac for me

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    • Posted

      Hi Caz, I don't know which I have. I was unable to get genetic testing done, and cannot tolerate wheat at all under any circumstances, so eating it in order to trigger an immune response to be detected is out of the question. You see how ridiculous this is? 

      My sister was able to get genetic testing and she found found to have an extremely high possibility for developing celiaiics. I am far more sensitive than she is. If I get even the slightest bit of gluten, I'm extremely ill.  Trace amounts will cause problems for a few days. I'm talking for about trace amounts allowed by law in gluten free foods. Higher level contamination, such as a reused pan in a restaurant will last for weeks or as much as three months for me. I avoid grains mostly because there is a level of what they call cross reactivity that other grains can trigger, resulting in an immune response.

      For the stomach pain following exposure, I've found pepto bismol to be the only thing that you can buy to help. A home remedy is aloe vera juice mixed with flaxseed oil (a tablespoon of each), seems to smooth the gut pain and get the stuff out faster.

      I had several horrible infections a few years back and I suspect, these infections triggered the sensitivity. I'm in the US and prior to figuring out to avoid gluten products, I did notice a huge difference between the wheat here and in Europe.  The wheat products in Europe did not seem to trigger as severe a response. So I suspect there's some process wheat is exposed to in the US that adds to the immune system trigger for gluten sensitivity.

      In the end, it doesn't matter what the diagnosis is if you get sick from gluten. Nobody goes to that much trouble to change their diet if it's not a really serious problem, right? Seriously, there are plenty of other hobbies or ways to be crazy and obsessive than avoiding wheat. 

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    • Posted

      Hi Catherine

      Yes I can definitely see why you decided not to participate in the tests. I am wishing I hadn't now but the gastrointestinal specialist didnt seem to think it was a big deal.

      I guess it depends on the quantity you consume and your own individual sensitivity to it that determines how long the effects last. I imagine this will last a few more weeks or months for me x

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  • Posted

    I'm not sure it could be hours to wekks ro months,  I went of glutton 3 months ago, also no dairy, no foods wifh additives, no sugar you get the pictire.  Anyways I have only started to feel better in the past few weeks.  So you my have some time to go, also buy distilled water  for Hypothroid issues I drink bit over to leathers a day it's only a dollar a 4 l jug and it contains in floride.  

    You our may want to add antinflamitorry foods and spices to your diet as well as antioxidants,  cinnamon is a great one, don't to mention vitamin c ad d3.  B50 complex look it up may give you a lift as well as magnesium.  Good luck.

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    • Posted

      Wow I really got to proof read distilled water in the store contains no floride,  also eat 3 Brazil nuts a day not to many because that would be toxic.

      i gave up on all wheat, barley, carbs.  I don't know if I will ever start eating the gluton free stuff anymore I really don't miss the carbs.

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    • Posted

      I'm with you Pam. It's a lifestyle change you get used to like anything else. Once you get the hang of it, it does get easier to avoid grains. I do mostly root vegetables, potatoes are a nice treat on occasion. If I do grains, I avoid bread because the yeast enhances the immune response/ crossreactivity trigger.

      I have to admit that eating out is a huge pain though. It's very difficult to get a restaurant to go to the trouble to use a clean pan for some reason,

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    • Posted

      I have not eaten out since I started this in October, I have been to my I laws for dinner, I usually bring my own vegetables,  hemp milk for my matcha and stevia.  they no dairy, I just usually end up eating the roast.  I Tell them not to fuss over me I am a big girl and don't mind what they eat.  

      I just made a weeks worth of steamed greans, and froze them individual.  I have had to add extra fat like flax seed oil, coconut oil, nuts and seeds because I lost like 20 pounds in just a few months from just avoiding processed foods.  I do miss pizza, and Chinese food but no soy,  soy sauce is also said to be bad for the thyroid.

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    • Posted

      Thanks for the advice pam. Yes I've heard that about Brazil nuts and fluoride I'll try it. The gluten stuff took some getting used to but now I'm fine with it and getting used to it

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