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going against doctors order?

Posted , 2 users are following.

james22918
james22918

Hi,  has anyone ever experienced where your endo or GP has said that your thyroid results are in normal range but you feel hyper and have all the symptoms of hyper? I have Graves’ disease and have been on block and replace for 1 year and still feel hyper.  My endo says I should stay at 125mg of thyroxine but I feel like coming down to 100mg to see what happens.  Has anyone felt better lowering a dose even though it’s was against doctors orders? 

0 likes, 2 replies

2 Replies

  • linda187
    linda187 james22918

    Posted

    Hi James

    To my knowledge the Block and Replace method is only being used in your country.  I have never heard of anyone using that method in the Western world.  I have also seen when I first came on this Board that some people who were on it still didn't feel well.  In my case, I have Graves disease and while my Free T3 & T4 normalized, my TSH would not move.  So I found out about supplements and I got tested for each particular value before I started taking the various supplements.  I was deficient in Total Carnitine and Free Carnitine, I was deficient in Vitamin D (very important vitamin for good thyroid functioning) and I was low in Magnesium.  I would like to get all my vitamins, minerals and amino acids tested some day.  It makes sense that people who have run hyperthyroid would lose a lot of vitamins, minerals and amino acids from their bodies and replacing them helps with recovery, at least it sure did in my case and other cases that have posted here.

  • james22918
    james22918

    Posted

    Hi Linda, thanks for you reply.  I will look into this and fingers crossed it will help me. 
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