Going against the 'grain'? Not me!
Posted , 6 users are following.
Hi, fellow diverticularians(?),
I'm 56, male, and was diagnosed by colonoscopy in 2012 after having a number of years of 'management' issues (or lack of,) for what was provisionally labelled "a touch of IBS" by my GP. I have to say that I have never been hospitalised - or even medicated - due to a 'flare-up' ....yet!
I don't think it's just good luck. It might be that the amount of pocketing is minimal - or that the proximate cause of my problem is (as yet, undiagnosed) intractable colon, but I can only share again what has kept me from darkening GP doorways and A&E trolley queues. The word is Bisacodyl. It seems to send some screaming in fits, muttering, "last resort" and "you don't want to rely on that!" kinds of sage-like 'wisdom'. But the evidence is that I only feel mildly uncomfortable every week-to-ten-days, prior to medication/evacuation by a single 5 mg pellet. The reason? Because pockets will fill up with whatever they will - seeds, porridge, cellulose, fat - and it will embed and ultimately rot! As I have said before - and in light of so much suffering by posters here who carry on holding onto rotting matter for months - I must pose the question, "what is so wrong with total evacuation every 7-10 days?" No rotting residues, minimal discomfort on a predictable basis with just the need to keep 'local' for one day after a night time dose? No more antibiotics - and a great feeling of levity when all has passed! Sounds almost good?
There are no foods I can't eat - because seeds or no, all residues will be discharged before they decompose. I figure that to medicate more frequently than 7-to-10 days is to risk loss of nutrients from foods eaten. I've stayed within my 10 year weight range of 14 to 14.5 stones using this strategy.
Bisacodyl is a stimulant laxative. I use it sparingly in this way and my bowel is still mine - in terms of sensation and knowing when it needs to 'go' over the 6-to-9 days after medication - before everything stops again.
I suggest it's a reasonable trade-off: Long-term use of stimulant laxatives vs. 3-monthly admissions .... ? 'No-brainer'?
See your GP and discuss.
Cheers,
Pete.
0 likes, 50 replies
jonnojohn CauliColon
Posted
I assume it's a prescribed drug and therefore a visit to my GP? I don't have antibiotics but eat almost everthing although there are things (onions in particular) which I find hard to tolerate.
What annoys me so much is the dismissiveness that you receive (yes, you and millions of others) when mentioning this awful and often debilitating disease. I suffer more from wind (farting, I don't use euphanisms) which, more than anything, I wish I could be cured of. (Jac will add a comment here)
Jon
jacqueline01135 jonnojohn
Posted
input. or should that be output ?
Thought porage was a no-no ?
CauliColon jacqueline01135
Posted
It strikes me that there is an unwillingness in some sufferers to accept that, 'sh** happens!' The pockets will fill and empty by hook or by crook. The only aim must be to avoid infection. The only way to do that is to clean up before the toxins take over! No-brainer? Yes, the risk of gut motility reduction is a long term unknown to me, but I repeat - I haven't been hospitalised yet.
Maybe the way forward is abut more radical!
Cheers,
Pete.
jonnojohn jacqueline01135
Posted
Apropos of nothing really but, did you know that a Swedish study proved that woman who drank full-cream milk (ie blue plastic topped stuff - non doorstep), are 70% less likely to develop breast cancer than those who drink semi-skimmed or skimmed
CauliColon jonnojohn
Posted
Oh!.....
Yes Bisacodyl is a prescription drug generic name. It's more commonly known as 'Dulcolax', which might be over-the-counter in low doses, not sure. It's prescribed in boxes of 100, so they last a good long time in my scheme!
Now it's interesting. I associate onions (fried in butter and olive oil!...) as a good thing. Not because they don't get stuck in pockets - because plainly they can - but because they help keep the rest of the gut moving! 'What's good for the goose....' might be a truism. In my scheme, the residues of onions are not a specific problem (disclaimer: "for me!"). In fact, I positively like them! - because they work on the majority throughput better than any other vegetable. Sure they make you windy, but is that a bad thing, really?
Cheers,
Pete.
jacqueline01135 jonnojohn
Posted
Speaking of oats Porage-----------Porridge ????
Maybe that was the cause of Laura's explosions
Might just try some , heaven forbid if I start !!!!!!!!!!!!!!!
jacqueline01135 CauliColon
Posted
Jon says it's good for your ""sole "" must be right
By the way a little less description of the rejection product would have
been nice Remember there are ladies in this forum.
Jac
CauliColon jacqueline01135
Posted
I just tell it how it is......
...... farts and all!
Pete.
PS Not knowingly sexist, btw!
jonnojohn CauliColon
Posted
The onions. I Iove them - fried in butter (will try with olive oil ) are delicious but they do make my gut ache with wind.
No, it's not a bad thing but becase I am excessive farter it can become socially unacceptable.
Perhaps I should emulate Le Petomane. He could fart 'God Save the Queen' - and did (at least for her son if not her). Help supplement my huge C.S pension. Jon
jonnojohn jacqueline01135
Posted
Do try porridge (or porage if you have to forage for it). I reccomend using milk. Pete must be a Scot. I know that a Scots friend/colleague during one overseas posting was amazed that I didn't use water and salt. Your friend and co-founder of Divi Diners. Jon (aged 14 and 3/4)
jonnojohn
Posted
CauliColon jonnojohn
Posted
"La'rndun, 'ere' " - or some such phonetic. :-)
I try to limit variables. Milk is a huge variable and people can develop intolerances spontaneously with it. I drink it, but it doesn't have to go everything! But the water-based porridge, sweetened with creamed honey (certainly don't need any more salt, either!.... ) is readily guzzleable. Plenty of taste from the things I have on-the-side!
I like creamed honey because of the therapeutic benfits of beeswax. Great in external poultices and similarly useful internally too, I reckon.
Cheers,
Pete.
PS Jon, I hope you aren't one of those militant minors! :-)
jonnojohn CauliColon
Posted
Incidentally, I have seen a note from the Moderator on this forum saying that naything 'uncomfortable' should be in the private message slot. Not sure where to find it. I want to ask you something. Do you or Jac know.
CauliColon jonnojohn
Posted
Your last signed off with ..."aged 14 3/4" - hence the 'minor' assignation of mine - otherwise just a play on the miners' heyday (no offence intended).
I haven't seen such caution. But then, having been legally blind for close to 20 years, I often miss such autocratic 'guidelins'!
Pete.
Blindness is my lot - DD is my hobby-horse? :-(
jonnojohn
Posted
Jon
jacqueline01135 jonnojohn
Posted
Jac
Emis_Moderator jonnojohn
Posted
See http://patient.uservoice.com/knowledgebase/articles/398331-private-messages Click the envelope under the relevant user's name to send a PM.
Regards,
Alan
jonnojohn Emis_Moderator
Posted
I don't know how I became so involved with an Indian young man called Amil (Penis problem) but he is in desperate need of advice which he tells me he can't get in remote India. He's sounds suicidal. Is there any help that can be given to him?
Jon
Emis_Moderator jonnojohn
Posted
We cannot get involved in specific discussions nor can we locate users or give email addresses out or contact users this way as it breaches the T&Cs. All I can suggest is wait for a reply or you can send him a PM but I would be very wary of giving any personal details in any message like your email address. I am not saying he is not genuine but the problem with forums such as these is we cannot always tell genuine users from possible trolls or scammers so care needs to be taken. If we see an obviously spamming user then we do deactivate accounts/delete posts but also rely on users reporting them to us.
Regards,
Alan
jonnojohn Emis_Moderator
Posted
He just seems so desperate (his limited English didn't help) and as a former Counsellor (not in matters sexual, I add), I just felt that I ought to put him in touch with an organisation that might help him.
I became too involved, I think.
Thanks, Alan.
jonnojohn Emis_Moderator
Posted
I am getting endless, endless posts 'advertising' what I think (because it's from India) a Call Girl Service.
Can ou stop these, please. I don't want to receive any more. I vae reported some and also replied to the ender saying that I would report to you.
with thanks. John