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Going to have Ablation , feeling worried

Posted , 7 users are following.

connie93106
connie93106

I've been reading the forums for a couple weeks now and they are encouaging but I'm still feeling worried.I've had Svt about 20 years. I have gone 6 years without a episode then I had 3 in 14 months time.I have never had sucess in stopping it on my own, always end up with a trip to th ER to get it back to normal. I had an ablation scheduled 10 years ago but started reading about it on the internet.I was afraid I would be in the 2% that had issues and I cancelled it. My dr mentioned it when I had one last year but I put it off. After my last episode , she has me on a 2nd beta blocker.I have it scheduled for July but I keep going back and forth . 

0 likes, 12 replies

12 Replies

  • ciaran33745
    ciaran33745 connie93106

    Posted

    Hi Connie. Its normal to be wary of any hospital procedure. I've had quite a few medical conditions, including a fatal cancer diagnosis, but in my opinion SVT is the scariest ailment I've known in my life. 

    Ablation cured my SVT 5 years ago. Its very unlikely that it wouldn't cure yours too. No matter whathappens, its extremely unlikely your quality of life would be any worse.

    Do it smile 

    • gillian95988
      gillian95988 ciaran33745

      Posted

      Hi ciaran, I have often said thing's like that to my husband re the cancer diagnosis...(Although have never had one) I work with cancer patients. I personally think it's because SVT is so unpredictable and debilitatang, it has tottaly ruined My Life... I know they say it's Not life threatening but I still cant get my head around that when it starts! And because i've had one 8 beat run of nsvt picked up on the monitor this also frightens me although the doctors have said nearly everyone will experience a run of nsvt in their life!   

    • ciaran33745
      ciaran33745 gillian95988

      Posted

      Hi Gillian. I know. Rationally any cancer is much more serious than SVT but SVT makes us quite irrational!

      Apologies if you've already answered this, but are you going to have an ablation?

    • ciaran33745
      ciaran33745

      Posted

      Sorry, I now see you've answered that already below...best of luck with the ablation. Hopefully afterwards you'll be on here like me arguing for the merits of the procedure smile

    • gillian95988
      gillian95988 ciaran33745

      Posted

      Thanks, just back from the hospital with Another one... By the time I got there it had came down to about 145! and my bp was really high (probably due to panic) I am now kicking myself and wished Ihad just sat it out... Didn't help that when there the consultant said if it had sayed as high as it was in the house I would have had to have iv adenosine which is a "horrendous feeling" (His Words) That really freaked me out!     

    • paullie
      paullie gillian95988

      Posted

      Easier said then done Gillian : (....I do try as best that I can to break it at home, or else my day/night will be spent at the ER : (...the iv adenosine is a strange wet noodle feeling, but it's not horrendous...sorry they said that : (

       

    • gillian95988
      gillian95988 paullie

      Posted

      `Thanks Paullie, I know as if i'm not anious enough!!!I understand that it can be good to know what it's like But "Horrendous" just makes me feel Even More Terrified... Wet noodle..." I Can Do That" biggrin Probably asked you this before - But how long and how high is your heart rate  before you go to A&E and do you panic? I feel totally fed up with it all now. I'm still waiting to hear about the ablation! How about you?    

    • paullie
      paullie gillian95988

      Posted

      Yes that was a terrible description choice...mine is much better lol...my svt rate is usually over 200...I will try for a good 1/2 plus to stop it on my own, because I really don't want to spend time in the ER, I have too many other things I could be doing : )...yes I always get nervous, its just so hard not to : (

  • judy89357
    judy89357 connie93106

    Posted

    Connie, your experience sounds so much like mine. I also have had svt for 20 years and after having episodes for about 8 years, then went 5 years without an expisode.  The last few years I have been having more severe episodes and usually can not stop them on my own, but have to go the the ER for adenosine.  I have scheduled and cancelled one ablation, but I think I am going ahead with it this summer, because I am tired of being in fear of an attack. I have always been very active, but now the svt is interfering with my life too much. We have to have faith that we will be alright and the ablation will be a success so that we won't have to live in fear of an attack any longer. 

  • paullie
    paullie connie93106

    Posted

    Connie, I too have had svt for almost 20 years....are there things that trigger yours...there's many different ways to break an episode, you've tried them all?

  • ann82027
    ann82027 connie93106

    Posted

    I,m in the same situation as you, waiting to go to Barts for ablation, i,ve just turned 70 and had a major bout in feb where it had to be put back with adenisone.   I,m on Bisoprolol 1.25 and feel so tired all the time, its also affected my breathing.  A lot of people who,ve had it said its the best thing they had done but i,ve also read some who have had after effects, very difficult decision indeed.
  • gillian95988
    gillian95988 connie93106

    Posted

    Hi Connie, like you I've had svt for many years undiagnosed for many until caught on monitor in December 2016...

    I have now decided to go ahead with the ablation as no matter what it can't be any worse than living a life worrying when your next episode will be...

    I have been off work for 3 months, I never went on holiday last year and won't be going this year as the fear of it happening is just too much... 

    It has not just ruined my life but also my husbands and kids life...

     

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