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Going to school

Posted , 6 users are following.

skelly53
skelly53

My son is 12 years old and gets stressed very easily but does not talk about what makes him stressed and hides his feelings. Every morning going to school seems quite happy but once there every morning usually only lasts about an hour before he has a seizure. Has anyone got any ideas as to what we can do to help prevent this.

 

2 likes, 10 replies

10 Replies

  • mary50992
    mary50992 skelly53

    Posted

    Dear Skelly,

       Has your son been tested? EEG,CT scan or MRI. What does your doctor have to say about the seizures? Seizures are uncontroled moments. Meds can prevent them from happening but are not a cure. I have had seizures for over two years now. I had all the tests and went to a seizure clinic. My daughter takes care if me during my seizures and actually knows sometimes that I'm about to have one just before one happens. We have had a trying time of it. Does your son get a warning behand...feeling, smell or flashing lights or colors? If so he can come to know these are warnings and he should get himself into a safe position or tell someone. The ground or floor. I have laid on the floor. Wearing a bracelet with a warning printed on it is wise. Have your son tested. I'm here to talk. Mary

    • skelly53
      skelly53 mary50992

      Posted

      Hi Mary 

      My son has had EEG and MRI scan and both shown up as clear. My son is in the unfortunate position of having epeletiic seizures and pseudo seizures. He says it starts going black from the top of his eye sight he described it as a shutter coming down , also gets a headache.What worries me is the frequency of the pseudo seizures. As being new to this I'll be honest I even wondered if he can trigger them himself just for the attention.

  • jacqui77011
    jacqui77011 skelly53

    Posted

    Hiu Skelly, my daughter started the same way at the same age.  She is now 17 and still has them.  Once you have had all the test (suggested by Mary), if it is non epileptic seisures, there is nothing much you can do as there isn't much known about them (medically).  You do however need to make your son understand the importance of getting somewhere safe and protecting his head.  School need to be made aware that they need to keep his head safe (put pillows/cushions underneath his head).  My daughter has ended up with concussion twice and it is scarey so try and avoid it by protecting the head.  We purchased a load of pillows and school gave her contact points to go to if she felt a seisure coming.  She usually gets a 10 - 20 second warning before she has one to get herself to a safe place.  This is important so that he can get safe, lie down and protect his head before the seisure starts.  This doesn't always work for my daughter because she hasn't had enough warning on two occassions which has resulted in her getting concussed.  Shout if you need any further details but I'd begin by getting your doctor to refer you to the hospital to get the EEG, CT and MRI done.  I am away for a few days but will try and respond on my return.  Jacqui
    • skelly53
      skelly53 jacqui77011

      Posted

      Thanks Jacqui we wondered if they get less frequent as he gets older. 

       

    • mary50992
      mary50992 skelly53

      Posted

      Dear Skelly,

         I am wondering have you had blood work done on your son? Is he lacking and key vitiams such as vitiam B12 or D3 etc. How is his throid function? He may have fewer seizures as he grows older. My oldest son who is 41 years old now actually had epeletic  seizures as a child and has none now as far as I know. He was on meds for them  but they did have their side effects.  Please tell me how you can tell which kind of seizure he is having when they happen, epeletic or nead?

    • jacqui77011
      jacqui77011 skelly53

      Posted

      Hi Skelly, they frequency varies.  She only tends to have them at school so she'll go the summer holidays without any seisures.  Sometimes she has two in a week.  I am afraid there is no pattern.  Her triggers are fluerescent lights, flashy lights, strobing lights so ambulance or police lights and winter bicyle lights along with project and computer back lights don't help.  
  • 80zmom
    80zmom skelly53

    Posted

    Hi Skelly53, I am going through the same issue, "NES" only happening at school for my 11 year old.

    Turns out she was being bullied.

    Curious, what help is your son getting?  

     

    • skelly53
      skelly53 80zmom

      Posted

      Hi 80z , My son is getting a lot of help from the school and from the medical profession. My son is happy going to school and wants to go, at the moment he is going in just 2hrs a day. In the main my son has NES with an epeletic siezure thrown in every now and then. The trouble is we get different messages from different medical staff as to if wether they are Epeletic or NES.We are getting help from a child psychologist, and the consultant who is Epeletic specialist has recomended home tuition for three months then a hospital school for a month . Try anything that may help.
  • sophie40201
    sophie40201 skelly53

    Posted

    Hi, this happened the same with i'm 14 and three years ago i would love going to school then as soon as i got into school i just to have a seizure. I had EEG and ECG also with blood test and brain scan's they all came back clear. I know go to a psychologist, because i worry alot of the time. Into to three years of fainting and fitting i have been diagnosed with non epileptic attack disorder. I hope this was helpful.
  • ash100
    ash100 skelly53

    Posted

    Hi Skelly53,

      I started having NES when I was 15.  My NES are due to anxiety and stress.  Over the last decade I have learned a number of things which have helped me.  Perhaps some of them could help you and your son.

       Sufficient sleep, balanced diet, daily yoga and/or meditation help me manage every day stress.  Mint chewing gum and the smell of a relaxing essential oil help me at school and work.  The thing that has helped me most is an herbal supplement called Passion Flower.  It has effectively prevented or shortened my NES.

      Assuming he can tell when a NES is about to happen, develope a practical plan for when he feels a NES coming, what to do and who to have with him.  A plan can help with the stress of the uncertainty of what to do when one does happen. When a NES does occur reduce the stimulus around him.  Lower the lighting, reduce sound, and limit the number of peope in the room with him.  The person(s) with him need to be calm.  I have found that stress induced NES will feed off the stress of another.

      Please understand that NES are painful and extreamly overwhelming, especially for those who are conscious through the seizure.  Your son may not yet have the words to describe what he is experiencing.

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