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Going to the negative place...moving back to the positive place.

Posted , 9 users are following.

Wil816
Wil816

Headed back to work in two weeks. I'm literally frightened to go back. When I was last at work I went through a terrible uti and LS flare up. I couldn't sit and was going to the bathroom every 15 minutes. I was so uncomfortable I couldn't concentrate on my work. I had to take many days off to go to numerous doctor appointments. At the same time I was caring for my elderly frail parents. As the days get closer to my return to work I get more anxious. I'm afraid that the stress will cause another flare up. Intellectually I know that I'll be okay but I worry. I also made the mistake to go to another LS support site and everything I read seemed so negative to me (ex. Clobetasol doesn't work, clobetasol won't stop the scaring and fusing.) I was feeling okay in terms of the LS. I'm healing slowly but healing. The skin still feels thin and now I'm experiencing nerve pain. I believe it's part I of the LS but also from sitting in  an awkward position at work to avoid the bladder and vulva discomfort. My left pelvic, sciatic, leg, foot, left side of my vulva and clitoris hurt. I mentioned it to the vulva specialist. She thinks it's neurological nerve pain. I hope  this will be resolved before I return to work. I became weepy and sad for bit but I am back to being proactive. I will schedule an appt. with a neurologist, acupuncturist and chiropractor.  Any wise words... Don't want to  focus on all the negative as if there is something positive of LS. Well I think Morrell may have said something like this," we go  for  a check  up twice a year which is a good thing since we get screened for cancer more  often than most women" Morrell sorry if I didn't get your words right. I'm thanking you for the wise words. If it's not Morrell thank you even if I've forgotten your name. 

1 like, 22 replies

22 Replies

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  • kate207
    kate207 Wil816

    Posted

    I totally agree with everyone here, stress really is the killer. I gather from your post that your situation is less stressful now re. caring for your parents? Try to concentrate about the good things about returning to work -do you have workmates whose company you enjoy and that you can share an occasional laugh with? Can you treat yourself to the occasional coffee or lunch out?  Don't worry about the negative thoughts you see in other sites, these will be from the minority whose symptoms are not under control - most of us have reached an accommodation with our LS and while its a bloody nuisance its not life threatening. I help out with a carriage driving for the disabled group weekly and when I see teenage stroke and spinal injurie victims I thank God I've only got LS!
    • Wil816
      Wil816 kate207

      Posted

      Thank you for helping  me come back to the middle. Yes...it is the minority who don't have their LS under control. I'm grateful that I don't have some terrible health/medical condition. I remember working at hospitals and hearing and seeing some sad and unfortunate situations. I have to put this in prospective. Thanks for your support!
  • kate207
    kate207 Wil816

    Posted

    Sorry about spelling -should have been injury! Another thought -could you get a cushion that would relieve pressure on the vulva, a doughnut one maybe?  Tell work colleagues that your chiropodist says you have sciatica caused by an injured coccyx, no need for personal details!
    • Wil816
      Wil816 kate207

      Posted

      I will invest in nice pillow and since I am seeing a chiropractor that will be my excuse to use the pillow. You're right I don't have to tell anyone my private business. Having LS is anxiety producing enough I don't have tell everyone about my LS.
  • josephine06597
    josephine06597 Wil816

    Posted

    HiWil816,

    so sad to hear of you distress, but I think we all feel like that with a flare up.

    I have been useing a small amout of Dermovate each morning, and I wash with E 45 Emollient wash. I havn't had a flare up for 3 years.

    I know you are not supposed to use it every day, I feel it is a lesser of two evils. Take care Jo. 

    damage 

    • Wil816
      Wil816 josephine06597

      Posted

      Have had any side effects from using it everyday? It doesn't seem like it. That is good  a suggestion...which knowing me I will adhere to. 
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