Going with Focal Laser Ablation for BPH
Posted , 73 users are following.
Ok, I have decided, I am going in the next 21 days for FLA. I have picked dr. k if the schedule of my wife's treatments can allow it along with his schedule. He is busy with some complicated PCa cases as well as talking about a partially self funded clinical trail scenario for BPH patients.
If I cannot line up with him, his associate is Walser and I will get him as they still work together at the same hospital. Maybe I can get both involved and get a double bang for my buck. I will let you know soon.
3 likes, 1293 replies
changejobs j12080
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j12080 changejobs
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i dont really know. I know they remove tissue in the Rezum and I do know it is somewhat radom in the removal process. Meaning it is targeted to an area but not pin-pointed to in design like laser removal is precise and targeted.
You would need to talk to an FLA specialist. The only one I could recommend is Dr Karamanian and I know he would tell you the possibilities and then the specifics of your case after he look at your MRI. IF you get an MRI it would show you what is left after the Rezum. Then you could make a decision with the facts at hand.
Tucsonjj j12080
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kbm123 j12080
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Kindly,provide the contact of Dr K in Houston.
Thanks in advance.
stan98754 kbm123
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Hi KBM ,
all depends on your exact problem definition . If you have enlarged median lobe protruding to bladder and causing " pressure valve " on bladder neck, I consider FLA as Best solution for you . But you need 3 T MRI scan first and consult all the problem with experiences doctor -for instance Dr. K from Houston . Pls see my beast - protruded median lobe totally blocking bladder neck . I'm after FLA at April 3rd. and FLA is my life changer. Cost is about 21K. Stan
stan98754
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TKM stan98754
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Thomas
TKM kbm123
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KBM,
There has been some anecdotal evidence that FLA does not work well for small prostates. Search through this discussion and some other's having to do with FLA. This is not backed by any clinical evidence, partly because not much clinical evidence exists. If you contact Dr K or another who performs FLA, ask him about it.
Thomas
Thomas
kenneth1955 kbm123
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jimjames kbm123
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Hi kbm,
I see you're new here. Have you looked into any of the established procedures like Rezum? FLA is relatively new and had no trial data to support it. I'm not saying it's not a reasonable choice for some men but you really should look into ALL the alternatives before making a decision. Also, as has been stated, men with prostates your size have reported poor results. But as also stated, anecdotal reports aslone is unreliable but that cuts both ways.
Jim
stan98754 TKM
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stan98754
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Airman stan98754
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My prostate is a pretty normal size at 30cc. I have read like others that the small prostates seem to have difficulty with FLA. I have been in touch with Dr. K and am close to making a decision. As always any info you care to part with would be appreciated.
Please tell what size was your prostate? And how successful was FLA for you?
And thanks for all your posts, yours and everyone’s posts have probably helped many of us lurkers in one way or another
stan98754 Airman
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Hi Airman ,
are you from Europe ,too ?,Or are you night bird ?
Here in Central Europe is just 9 , 15 AMi. .
Of course I'm not doctor , but so long time interesting to BPH problems that have some knowledge already. Can you send me lateral MRI scan ? ( from side similar to my scan ) There will be more clean visible anatomy of median lobe. My prostate was just 45 cc , e..g not big, but as you see from my scan , the median lobe is really huge and causing obstruction of bladder neck . The correct name of this diagnose is OML - obstructed median lobe. Probably your diagnose is similar. My FLA from April 3rd. 18 is success.
I think ( just think ) that in case of OML diagnose , FLA is the Best solution ,even if your prostate volume is 30 cc, due to problem is OML and not the rest of prostate. FLA can solve this OML very effectivelly dur to full control on MRI visualisation during the procedure , so the doctor can ablate with laser exact parts of OML and not to harm fatal structures --- nerve bundles , ejaculating ducts, bladder neck , urethra chanel , external sphincter,... I think no other method for OML is so effective as FLA. Maybe REZUM , but doctor has no such good visual control as in case of FLA. Anyway all written is just my point of view, surely pls consult with Dr. K for FLA and with another very exper. uro about REZUM. I dont reccomend you any other method for OML. Happy decision , Stan
Airman stan98754
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I plan on talking dr. K again tomorrow and discuss the areas he sees as the blockage. The MRI and cystoscope photos show the elevated bladder l guess u called it OML. Either way with a small prostate this seems to be the most serious issue as I surmize there is not enough density in the small prostate to cause the kinds of symptoms associated with BPH. It seems that it is more like bladder neck obstruction.
so you are 5 months in?
TKM Airman
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Your images are very clear. Are they 3T MRI ? I have also heard of a MP 3T MRI, where MP is multi parametric. Are they MP, and do you know what multi parametric means ?
Thanks for posting your images,
Thomas
stan98754 Airman
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Im 5 months after FLA . No CIC anymore, nightmare ,.... But as you see I have damaged bladder with plenty of diverticulum ( see upper bladder wall ) . In addtion I have trabeculation of the bladder , occured from repeated obstructions in the urethra - 12 years of BPH . When an obstruction occurs, the muscles walls of the bladder have to work too hard to move urine past the blockage. This leads to a thickening of the muscle walls and a loss of elasticity. Thats why my bladder current capacity is just about 250 -350 ml . It will be very difficult to obtain some elasticity back. Stan
jimjames stan98754
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Stan: Thats why my bladder current capacity is just about 250 -350 ml . It will be very difficult to obtain some elasticity back.
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Actually, loss of bladder elasticity will more often INCREASE bladder capacity, not decrease. Sounds like you may have OAB and need bladder retraining. I don't know your history but I wonder if that might have been your functional problem all along as I suspect it has been with others who have had possibly unnecessary surgeries. Or perhaps you had a full urodynamic testing prior to FLA in which case I stand corrected?
As to CIC -- which you refer to as a "nightmare" -- a nightmare to me is a surgery, often unecessary, that potentially can make a situation worse, not better. Many here therefore have found CIC not a nightmare but a godsend and btw CIC can often restore bladder elasticity as well if not better than any surgery because it empties and decompresses the bladder completely.
Jim
Airman TKM
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Interesting to note that GE and Siemens are preferred manufactuers of 3t MRI machines according to Donnie at Dr. Ks office.
Airman stan98754
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i can’t decipher much other than the protrusion which is pretty clear. There are probably over hundred images that make little sense to the untrained eye. I cannot get properly oriented and some are just plain awful.
Anyway you u seem to have an eye for this, I do have mild trebeculation and the beginnings of some diverticulae. Ultrasound and the cystoscopy revealed that last year. The urodynamic testing looked good for bladder fucntion post a successful procedure.
Here we are big on turp for small prostates and aside from all the horror stories and the enevitable RE considered a “successful” long lasting procedure for te elevated bladder neck condition
how many times a day we’re you CIC?
I’ve just started with the flex coude a few months ago and have a enterococcus infection, 6 weeks of antibiotics. I really want this all to end so my brain can engage in something else!!
stan98754 jimjames
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CIC, nightmare - there is misunderstanding
. CIC is very usefull practise and helped me to buy time for my procedure decision . Nightmare was night nocturia, 3-4 times awaking a night....
Now all these is the past ,e.g. CIC, nightmare - nocturia + 3-4 awaking . Sorry for my english .
jimjames stan98754
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Jim
eric1962 jimjames
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I will post a video that we made a few weeks ago showing real-time urodynamics by MRI, done at the same time as the mpMRI. Basically, patients have to fill their bladder before MRI (drink water) and wear a condom catheter. We do the video sequence in MRI (no contrast needed) and can calculate maximum flow rate, urinary retention volume, etc. The mpMRI is done after the video. This really maximizes the information and tells us who can benefit from FLA for BPH opposed to those who cant. If I can figure out how to upload it, I will by Monday for all to see. I think this is a new and different way to see anatomy and function in a single setting with no invasive procedures.
Cheers! eric
jimjames eric1962
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Hi Eric,
First a belated welcome to the forum! We have been waiting for some time for a medical professional familiar with FLA for BPH to show up! So thank you and please try and stay around.
You have mentioned your association with Dr. Sperling, who many of us are familiar with. That said, for some reason none of Dr. Sperling's patients have shown up here, nor has anyone here been able to get any data from Dr. Sperling after contacting his office. The dozen or so patients here who have had FLA for BPH all had their procedures done by a Dr. Ara Karamanian in Houston with the exception of one done by his associate, a Dr. Walser (sp?).
Can I ask if your are an MD who has personally performed FLA for BPH or do you work with Dr. Sperling in some other capacity?
What some of us here are looking for here is some study data for FLA for BPH. Do you know if Dr. Sperling plans on publishing anything soon? We are familiar with data on FLA for PCa but it's really the FLA for BPH data we want.
We want to know what kind of results you are getting, what type of patients it has been most effective on, and how durable is the procedure. We have also had a small number of retro ejaculation reported, one case of a numbed penis head, and would like to better quantify those types of sexual side effects as well.
As to your the video of what appears to be a novel and non invasive form of urodynamics, of course we are interested. That said, traditional urodynamics have proven themselves over time in terms of reliability and predictability in helping to determine suitable candidates for prostate reduction procedures and in predicting outcomes.
Why not therefore use traditional urodynamics as well prior to FLA? I do understand that your novel approach is non invasive, but when compared to the surgery itself (FLA for BPH) traditional urodynamics is relatively non invasive -- arguably less so than a cystoscopy -- so I don't see any harm in measuring twice before cutting once.
Jim
hank1953 eric1962
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MichaelVM7 stan98754
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Stan
When did you have FLA? With Dr K?
You mention $21,000 .
I received an itemized cost for FLA from Donnie several months ago. For $28,500
That's more than a 33% cost increase
I don't understand.
Michael
eric1962 MichaelVM7
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Michael
The itemized bills that you can request from a hospital will differ than the cash pay price. These itemized bills are for insurance purposes only.
We have calculated the total bill for FLA, which came out to $42,000 just for hospital and professional charges.
For cash pay, many hospitals will typically charge 1/2 (about $20,000) since insurance companies also only reimburse about 1/2 of our billed charges depending on our contract with them.
The bottom line is that billed charges never equate with collections whether insurance reimbursement or cash pay.
kenneth1955 eric1962
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Eric & Michael
I do know that John the first guy that had it done by Dr. K. did get reimburse some of his money but he just had to stay after the insurance company
Take care.........Ken
DonnieRN MichaelVM7
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Hello Michael,
The list of CPT and ICD10 codes that I send out does not show the prepaid discount of $7,500. This brings the cost down to $21,000 for FLA for BPH with Dr. K. Hope that clarifies for you. I usually have been on the phone with someone before sending that out and have quoted them the $21K.
Take Care,
Donnie
MichaelVM7 eric1962
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Eric,
Thanks, very helpful. With what Donnie wrote (below), it makes sense to me now.
Michael
MichaelVM7 DonnieRN
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Donnie,
Thank you very much! Yes, that helps a lot. Really appreciate this.
Michael
eric1962 MichaelVM7
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Remember that physicians who do FLA in an imaging center (i.e Sperling , Karamanian, Hamilton) have no contracts with CMS or insurance companies so they charge based on what a hospital might bill and collect (donnie and Karamanian got that data from UTMB) or simply what the market will bear.
kenneth1955 MichaelVM7
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Hey Michael
This is to Michael and any men that are looking into any of the BPH treatments.
Has you know that I look into anything. I am not scared to e-mail a doctor for information.
I got a e-mail this morning from Dr. Bagla who has been doing the PAE procedure for years. I had a question for him. Will stopping the blood flow to the prostate are you not killing the prostate. Some one asked me this once before
This is what he told me: The background of the prostate will stay alive. The beads travel to the area of the increased blood flow which is what BPH has. Then the tissue will regress and shrink since it has lost blood supple. I have never seen and would not anticipate that the entire prostate could be infected by the PAE.
I find this very interesting. Maybe one of you were thinking the same thing...
Have a great day.........Ken
kenneth1955 eric1962
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Good afternoon guy's.
I was doing some research on FLA and I got a e-mail about a Phase 2 trail for cancer that is going on in CA. I was asking about the price and if any insurance was going to take it up.
All it told me was about the doctors that will be doing it and some of the other stuff you need to know. Where it is going to me. 10 sheets that have to be filled out with your information and stuff you have to know before you go for the treatment
Well it is being done in CA. They said that the Imaging and Biopsy cost is $300 for the MRI is another $500 and for the Treatment it is $25.000. They also said that they take Debit and credit cards and please call your bank to ensure that the whole amount will go through.
One thing I did not know or heard from any of the men that have had FLA is they do not want you to ejaculate 72 hours before the treatment so they can see the structures that hold the seminal fluids. Which is a good thing.
Most of the other stuff is about normal things that need to be done like any other procedure. If I get any other reply from any of my e-mail I will let you all know.
Take care and Happy Healing..........Ken
kenneth1955
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Good morning
Good morning all. We have been talking about many procedure. It is good that we have different ones because they are not one size fits all.
I got another e-mail from Dr. Bagla. I asked him about retro. This is what he said. We ask doctor should have our patients concern at heart. We are trying to help them with there urinary problem but we should not here them and there concerns.
In large glands I have seen a temporary reduction in the ejaculating volume in less then 3 % of the patients. So in other words it will come back to normal.
Take care all......Ken
kenneth1955
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That should read we should here them.........Ken
andrewcalgary jimjames
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eric1962=Dr.Eric Walser, UTMB's Chairman of Radiology