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Good Day or Bad Day?

Posted , 2 users are following.

Lizzie_Ellen
Lizzie_Ellen

Blood Tests tomorrow - Consultant Wednesday so I have been trying to think how to explain to her the difference between a good day and a bad day. This is my formula:

Good Day: I can get out of bed! I can shower, wash and dry (even style) my hair. I can get my pants on, get my jeans on, even get a jumper on over my head. I'm pleasant to those around me, I smile and joke. I shop and clean and walk and cook. I am human!

Bad Day: I heave myself out of bed (and groan) I shower but have to leave my back wet because its a journey too far for the towel. My hair stays greasy and lank (arms won't reach head). I have to use the John Wayne method of getting my pants on ie: sit on the side of the bed with one leg outstretched. Throw the pants (lasso fashion) in the direction of the outstretched leg in the hope that pant leg hole and leg connect in an orderly fashion! I wear elasticated joggers and any top that fastens at the front. I'm grumpy (well my dearest says so) and I pass on anything other than the bare essentials of the day. Luckily for me I'm having far more good days than bad days at the moment and hope that this is the same for you all. Fingers crossed my bloods reflect the way I feel at the moment.

From Lizzie Ellen who is: Well dressed, with good hair and a dry back today!

:lol:

0 likes, 8 replies

8 Replies

  • Green_Granny
    Green_Granny

    Posted

    I'm so glad it's a good day for you and hope you don't have to pay for it tomorrow. PMR is so unpredictable!!!! I think almost the worst thing for me is feeling I can't look forward to anything in case I'm having a grot day!

    Seriously tho' isn't it hard explaining how you feel to the \"experts\"? The best I come up with is that I feel I'm walking with someone else's legs. Not much control. Oddly enough I've never had the really bad early morning troubles, getting out of bed etc. I actually feel worse when I've had my morning dose of pred. Then it wears off and I get going a bit more.

    I've learned to lay in some convenience meals to produce on the \"bad\" days, or simply the days when I have done more than usual so I don't tempt Providence (or whoever has control of PMR).

    I don't know about the rest of you but, boy, do I feel the cold! I go round with a hot water bottle almost strapped to me permanently. You know the thing about what would you save first if your house was on fire? My lovely hottie in its furry cover! I also bless my computer, first for this site and then all the shopping I do using it. Great secret, which I'm not supposed to know about, I think I'm getting a new one for Christmas! Wrap up all of you and keep snug, Green Granny

  • Mrs_G
    Mrs_G

    Posted

    Definately know the Good Day Bad Day syndrome !!! But this week it has been bad bad bad !!! I overdid it at the weekend doing lots of work out in the cold with my horses !!! And yes I do regret it !! I could have done lots more than that before PMR Its hard not to do things when jobs need doing My husband is fantastic but he still works so he doesent have unlimited time I have also had a horrible cold so have kept myself very quiet this week I think the pains and stiffness are getting a bit better I have upped to 5mg from 4mg The other problem is we were booked to go to Spain for Xmas and New Year on BRITISH AIRWAYS !!!!! I got fed uo with all the will they wont they yesterday and have now transferred the flight to later and booked Xmas only in Lanzarote !! We will now be travelling on our 40th Wedding Anniversary on Xmas Eve !! My choice for my Anniversary would have been Xmas and New Year but I dont think my PMR would stand the cold !!!I am hoping the sun will do me good I also have a Hot Stone Massage booked for Sat with someone who specialises in doing this for people with muscles problem Had one a few weeks ago when I had pulled a muscle behind my knee and couldnt bend it and it was FABULOUS and afterwards I could put my trousers on without doing very strange movements !! The tops of my arms have been bad so thats where I need it now Cant wait !! Was hoping to reduce steroids before Xmas and was going to have blood tests but I have decided to just tread water Not being in pain is the most important thing Happy Christmas to everyone and a great New Year to all PMR free I hope Special thanks to Mrs O and Mrs K for all the extra work they put in to give advise to us all and what would we all do without this website !! Regards Mrs G
  • MrsO-UK_Surrey
    MrsO-UK_Surrey

    Posted

    Hello Mrs G and I'm not sure I'm deserving of your kind words but thank you soooo much.

    I am sorry to hear of the bad days you have been suffering this week - it's just amazing that doing that bit over the top can cause PMR to really rebel. I have had another recurrence of my neck/throat muscle/swallowing discomfort recently which went away for a few days and then reappeared immediately following a hectic day on Tuesday (I hit the shops in Richmond AND Kingston (not exactly pacing myself as recommended!)) so I only have myself to blame....PMR obviously has no respect for the Christmas rush! Happily, it's eased off again today - I've been out for lunch with the lady neighbours and we had a good laugh which I think really is the 'best medicine'! I have followed it up with a walk with hubby in the freezing cold (long johns and hood invaluable!).

    That Hot Stone Massage sounds interesting and even more so as it benefited your knee. Hope it works for your arms as well so that you can have a pain-free holiday away over Christmas and apart from wishing you a very happy and peaceful Christmas and New Year, I also send you many congratulations on your 40th Wedding Anniversary - have fun!

    MrsO

  • MrsO-UK_Surrey
    MrsO-UK_Surrey

    Posted

    Hi Lizzie Ellen and I hope you're having a \"dry back day\" today! Your posting really did make me chuckle. Also hoping that you had good results following your blood tests and that the rheumatologist was pleased with you! Now enjoy that holiday and have a very happy, peaceful and as pain-free as possible Christmas and New Year!

    MrsO

  • MrsO-UK_Surrey
    MrsO-UK_Surrey

    Posted

    Oh Green Granny, we can look forward to a lot of lovely postings from you in 2010 then on that \"present you're not supposed to know about\"! Hope hubby is fully recovered and that you both have a lovely Christmas and healthier 2010.

    MrsO

  • Lizzie_Ellen
    Lizzie_Ellen

    Posted

    Definitely a dry back, reasonable hair day today! Thanks for asking about my Hospital visit Mrs O. My results were amazing. CRP down to 5 from 36 - my ESR has never been up. I almost feel guilty posting this as I feel really quite well at the moment and I know a lot of you don't. My Consultant is delighted and wants me to reduce the Prednisolone very slowly, says it will take a year or more and there will be setbacks. I understand that from reading the posts on here. I'm on 15mg and she's hoping to get me down to 10mg by April. We'll see. Good luck with Lanzarote Mrs. G and Happy 40th Anniversary (just had a look and its 23 degrees there at the moment 8) !). Anyway, hope you all have as good a Christmas as possible.

    Regards Lizzie Ellen

  • Green_Granny
    Green_Granny

    Posted

    Dear Mrs G. Do tell us more about this hot stone massage --- the only massage I've had, by a physio who didn't seem to know much about PMR was just to strong and made me ache more. So where would do it? Cost etc? Maybe something to look forward to in the New Year, and boy do we need things to look forward to!!!! Someone told me to make a list of \"cheering up things\", some indoors, some outside, with as much variety as poss. and trot it out on days that need a boost. So that's going to be one of my New Year resolutions, plus losing some weight after Christmas of course. And getting down the steroids.

    Coming back to massage, I've had an Indian head massage which was lovely except that I think one would have to say leave the shoulders alone, maybe one would get it half price!

    Anyway have a lovely break away, and a happy Christmas and a healthier New Year to you all, tho' I expect I'll be back on this site again before then.

    Love to all, green granny

  • Mrs_G
    Mrs_G

    Posted

    Hi there and Thank you all for your good wishes We are now looking forward to Lanzarote after cancelling all the other arrangements and then Br Airways strike being called off !! Still its warmer in the Canaries and raining in Spain !! The Hot Stone Muscle massage certainly didnt hurt I couldnt bend the back of my knee for about 10 days before I went and my calf was terribly painful but afterwards it was great It is advertised as Injury & Muscle Rehabilitation Therapy and the lady who does it uses a tecnique used on her when they wanted to operate on her for Carpel Tunnel Syndrome (tecnique used in America ) My sster in law has an illness far worse than PMR and I dont think would be still walking if it wasnt for this lady She is based in Dorset and it is an hour from us but I dont care !! The tops of my arms have been really bad this week after clearing too many ditches and steams last weekend ( Why did I do it I ask myself !!!!) Next year I shall get to grips with this PMR and lose the weight I have put on Lots of resolutions to make Best wishes to all
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