Good days with CFS/ME?
Posted , 9 users are following.
This really confuses me, I have 2 or 3 weeks of feeling dreadful, I can't do anything and I'm literally sofa bound then I have a couple of days of feeling a bit better and then a day where I'm sure I'm better and only have 1 or 2 symptoms but then the next day I'm back to being sofa bound and awfully ill again 😕 It's not always in that order but my symptoms and health changes a lot from day to day, I am also vitamin D deficient and started supplements last Thursday so hoping they help or magically cure me lol.
Does this happen to anyone else? What can I do to stop getting so ill after a couple of good days? X
0 likes, 12 replies
Tea_belly lau188
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lau188 Tea_belly
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Alexi lau188
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lau188 Alexi
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jelelly lau188
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The other week felt like I had my sparkle back again after being on a roll decorating and went quickly downhill.
I hate cfs and after 2 years still can't befriend the illness x
lau188 jelelly
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Do you manage to work with this illness? I had to give up last November as my job was very hands on and energetic and I was too unreliable x
Fidd lau188
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lau188 Fidd
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wknight lau188
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Pacing is the key here. What I learnt by lots of trial and error was how much I could do on a good day without feeling bad the next. Once I established that base line I then didn't drop so much so I spent less time feeling bad. Very, very slowly I started to increase my level of activity on good days.Â
Its been 2 years now but I feel like I am back to probably 85% of my former self which is a great place to be.Â
So Pace yourself and learn to say No. Its a lot of pain in the sort term for long term gain, best of luckÂ
lorraine62801 lau188
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sandy53965 lau188
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Â
Tea_belly lau188
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