good information
Posted , 4 users are following.
I've found some good information and a really useful 'overview' whilst searching online for something that I could use to give to friends/relatives to explain what fibro is and how it affects me. It's from an american based site but other than the drug names being different, it's very relevant no matter where you're located. It's clear and concise and has given me some real hope, plus it's something I can print off or email to people I know to better explain what I'm coping with. I cant put a link on here, it will be deleted by the moderators but if you go to myalgia dot com then forward slash overviewB dot htm you should find it.
http://www.myalgia.com/overviewB.htm
Emis Moderator comment: I have added the direct link and deleted the other post with the article copied/pasted as this may breach copyright. You can put links in posts, they will only be deleted if they breach the site rules.
2 likes, 16 replies
kaz_40 loxie
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loxie kaz_40
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kaz_40 loxie
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Boqer loxie
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kaz_40 loxie
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Boqer kaz_40
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kaz_40 Boqer
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Boqer kaz_40
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I'm just trying to relax today, recovering from yesterday *rolls eyes* yes, pacing is extremely difficult, I mean you have to do something at some point regardless of how you feel, it's rough, I get a lot of hip and foot pain which just doesn't go away and makes anything difficult.
Yes, I commiserate with you about your friend. I saw a neighbour a couple of weeks ago, on top of everything I had a bad sinus infection, and all she could say was how well I looked. There was no point in me saying anything cos like you say people aren't interested anyway, but you would think that just occasionally you would come across someone who is
Anyway, I hope you have a reasonable week too :D
Boqer
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kaz_40 Boqer
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kaz_40 Boqer
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Boqer kaz_40
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I also get finger/hand stiffness and pain but it's only just come on in the last few months. I really think it's important for us to encourage ourselves, no one knows better than ourselves how much we go through, and when we get through a rough time or manage to do something in the day we should congratulate ourselves for it. It sounds weird I know, but I think it's good to encourage yourself.
Take it easy and enjoy your day.
Gentle hugs
kaz_40 Boqer
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loxie
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I thought I'd share this as it was clear and easily understood and not too emotive. Neither my partner nor any of my friends really understand what fibromyalgia can mean and because there's no real visible signs they don't understand when I'm in pain or fatigued that it isn't just the odd ache or two or because I didnt take a nap etc. Not their fault, I didnt have a clue what this condition was before I developed it and even I don't understand the limitations sometimes either.
kaz_40 loxie
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