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  3. Polymyalgia Rheumatica and GCA

good news

Posted , 14 users are following.

odiecass
odiecass

Its been four years. November of 2008 I came down with what I know now are typical symptoms of PMR . I was finally diagnosed January of 2009 and started on 30mg of Prednisone. Instant relief.Then I found this discussion group. Great group of people.

30 days ago I was able to stop the pred. with no symptoms.

I know PMR can return but what a great feeling to finally be off prednosone.

I am only posting this so other PMR sufferers can know there is a light at the end of the tunnel.

Good wishes to all fellow PMR sufferers and try to stay positive

 

7 likes, 18 replies

18 Replies

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  • LayneTX
    LayneTX odiecass

    Posted

    So very happy for you!!! Happy dance!

    Bless you for sharing with us, it does give me hope and encouragement!

    May you never experience this PMR again!!! 

    Yea! Yea! Yea! I'm still dancing in my head for you! 😃

  • odiecass
    odiecass

    Posted

    Thank you all for the good wishes.

    When I first was diagnosed with PMR the only information that seemed current and correct came from this site. I didn't contribute that much but I read it every day, sometimes more than once, and always picked up something new.

    I even met a future friend Ray. He was also another male PMR sufferer, which is rare and also an avid bicycle rider like me. Ray passed away a couple of years ago, massive heart attack while riding his bike near his home in Cornwall. We always said we would ride together on my next trip home to England, we never did but I will always remember him from this site.

    Well again thank you all for your encouragement over the years.

    • EileenH
      EileenH odiecass

      Posted

      Who did he post as odiecass? One of the sad things about most forums is that when someone disappears from posting you never know why. The NE of England support forum is lightly different as many of us have also become friends outside the forum so you usually hear when someone is having a particulalry bad time or has died - but if someone posted and their family knew nothing of it they just simply fade out of sight.
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