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Good Weeks / Bad Weeks

Posted , 5 users are following.

debby01
debby01

Hi

Does anyone else have times when they feel that the symptoms are worse than they have been for a while?

After being diagnosed in November 2016 with large bilateral PE's, I have found the last few weeks quite hard going when going out for a walk. I thought I was doing quite well but now get quite breathless and rapid heartbeats when walking.  I do have right heart strain due to the clots.

This forum is s great souce of support and advice smile

0 likes, 17 replies

17 Replies

  • lizzie70061
    lizzie70061 debby01

    Posted

    Hi Debbie yes I have found this too. Really frustrating as I was thinking I had improved so much. Then get out of breath on just a short walk. It makes it difficult to plan anything. I am 7 months from diagnosis and the same as you multiple bilateral clots with right heart strain. So reckon this is normal. Just carry on what we are doing we will get better. 😍 x

    • debby01
      debby01 lizzie70061

      Posted

      Hi Lizzie

      Thanks for your response, it is so nice to know that it is 'normal' to feel like this.

      I went for a walk around the village earlier and was breathless and rapid heartbeats after about 5 minutes, it is so difficult to plan anything.

      x

  • peter54321
    peter54321 debby01

    Posted

    Hi Debby,

    Yes, I am afraid that sounds like a fairly typical pattern of recovery (mine anyway). I think we get lulled into a false sense of improvement on the good days, then see a step backwards on the bad days. Looking back though, there has been a big improvement compared to when it happened. Mine was in August 2015 and if my memory serves me right, I was still quite breathless 5 months after the event.

    al the best

    Peter

     

    • debby01
      debby01 peter54321

      Posted

      Hi Peter

      Thank you for this.

      Compared to what i was like when first discharged from hospital, i am much improved. It is very frustrating that you think you are improving and then get a bad day / week.

      x

  • Sway
    Sway debby01

    Posted

    I dont get breathless. I get chest pain. I too had a right heart strain. I go thursday for a ct scan. If the clots are gone and the heart is good i can get off blood thinners. I was diagnosed in novemeber of 2016 with small bilateral pes.
    • debby01
      debby01 Sway

      Posted

      Hi Samantha

      Good luck for Thursday smile x

    • lizzie70061
      lizzie70061 Sway

      Posted

      Hi Samantha. Will be thinking of you on Thursday. 🍀💐 x

    • lizzie70061
      lizzie70061 Sway

      Posted

      Hi Samantha. Hope your scan went ok today. 😍

    • Sway
      Sway lizzie70061

      Posted

      Thanks. I gwt the results tuesday from my hematologist. I hope there gone.
  • james85348
    james85348 debby01

    Posted

    I'm fairly new to this and the first week I was diagnosed with a couple of pe's I felt ok was going for walks and running, now I can't walk 500 meters without being out of breath but I have been told it's normal, hope you recover soon

    • debby01
      debby01 james85348

      Posted

      Hi James

      Thank you for this.

      Today I feel breathless just wandering around the house....

      Take care

    • lizzie70061
      lizzie70061 debby01

      Posted

      Sorry to hear you not so good today. Hope the sun is shining. Tomorrow is another day. Thinking of you. 😍?💐

    • debby01
      debby01 lizzie70061

      Posted

      Hi Lizzie

      Thank you for the lovely message. The sun has been shining and that always helps...smile

      I hope your day is going good and you are enjoying the beautiful weather  x

    • lizzie70061
      lizzie70061 debby01

      Posted

      Hi Debbie. I have had several good days in a row. !! Managed to catch up with a few things I had neglected. Must admit have slowed down a lot. Takes me twice as long now. But all good progress. Hope all ok with you. x😍

    • debby01
      debby01 lizzie70061

      Posted

      Hi Lizzie

      Sorry for the late reply, went away for a few days smile

      Fantastic that you have been able to catch up with things and that you have had a good few days  feeling good smilesmile it makes you feel so much more positive and great progress.

      Keep up the good work smile x

    • lizzie70061
      lizzie70061 debby01

      Posted

      Hope you had a good break away Debbie and didn't do anything too energetic 😍. Fingers crossed still feeling a lot better thanks. Xx

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