Got clots on my lungs

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Can anyone give me some advice constantly tied and get out of breath. Emotionally my life as changed I have gone from working 12 hours a day and doing high impact aerobic classes to doing nothing I struggle with breathing when mobilising been like this since September. Is there any advice for me not sure if I will improve or not. Thank you Belinda

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  • Posted

    Hi Belinda

    I am so sorry to hear that you are suffering like this.  What have the doctors said? Have you been to the hospital for any tests?

    Debby

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  • Posted

    Hi Belinda, I had a massive pulmonary embolism a year ago and I'm exactly the same ! I've gone from a fit 67 year old that could go to the gym and just go on all day with House work cooking etc ..now I struggle with just everyday things ! I'm still having tests .. but it's so debilitating and really  gets me down. I hope you improve.. I'm sort to be not be able to to give you better news !! But we are all different ..

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    • Posted

      Thank you for replying to my message it helps speaking to someone who's going through the same thing. My doctor said he suprised I am alive. The consultant at the hospital told me I had one large clot on my lung. I went to see a doctor he told me I had quite a few clots on my lungs. I agree with you it's very difficult not being able to do the things I used to do. I hope we can keep in touch how we are both doing. Thank you Belinda

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    • Posted

      I have been getting tests trying to find out why I got my PE. So far most blood tests coming back good. Specialist wants me to see a specialist in Clotting. That's all they study. So I go give them blood.

      They have been doing some tests on my heart and so far so good results should be in by Fri.

      I am just tired real tired. I cough a lot like I'm trying to get something out of my lung that shouldn't be so there

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    • Posted

      Good morning Belinda. We just have to hope we will improve.. like you I was lucky to survive! But we did and sometimes its rubbish feeling so tired.. I hope we keep in touch because I think it does help to know we aren't alone .. kind regards Linda 

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  • Posted

    According to my Dr I should do a little each day build my strength back up. I guess it sounds right if we lay around we are only going to get weaker. Makes sense?!

    I know it's hard. I work then sit then work some more. Do your warm ups your stretches. Keep moble just don't go over board right off the bat. Don't be the teacher be the student stay out of the do as I say not as I do mode.

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  • Posted

    Depending how big your pes are and where they are. Recovery is differnt for everyone. It will get better. Im like 14 15 weeks post my bilateral pes that where relitvly small and i still get chest pain. In time do as much as your body will alow. You need time to recover. Stay strong.
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  • Posted

    Hi Belinda. I agree with everyone. I have clots in both lungs. diagnosed last August. I was steadily improving. But find if I push myself too hard I suffer for it. The pressure on my chest and lower back pain can become really bad at times. Just take each day slowly . I am sure we will all get there. xx
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  • Posted

    Hi Belinda

    I saw the respiratory consultant yesterday as I keep getting breathless and the need to take deep breaths and then my chest hurts.

    He has said that i am hypoventilating and that he see's so many people who suffer with this after PE's.

    He is going to send me for another CT scan to see whether the clots have dispersed at all and arrange another echocardiograme.

    He has said that it is good to try and do a little each day and if your feel tired then rest.

    I know that it is really difficult at times but you will improve but it takes time, listen to your body and what your consultant says.

    Take care

    Debby x

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  • Posted

    Hi Belinda, I also was diagnosed with blood clots on the lungs, some quite large blood clots aswell. This was back at the beginning of May. Still to this day dont know why, suddenly had sharp stabbing pain in the right side of my chest which was extremely painful on breathing in and was taken to hospital by ambulance. I am now on rivaroxaban but still get out of breath very easily. I am 46 now and have 2 young children to look after on my own which isn't easy. I had already been diagnosed with several forms of arthritis and have trouble getting about on my right foot which I thought might have caused blood clots, because I spent alot of time with it up. You said you are quite active. Did you have a period of time where you weren't active before clots. Its kind of scary when you don't know what caused them, hope you are keeplng well x

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    • Posted

      Hi Laura. I was diagnosed with several clots to both sides in August. On Apixaban but still short of breath and low back pain if do too much. Have to do a bit and rest then do a bit more. Just take one day at a time. This seems to be common. I was very fit walker aged 64. No idea what caused PE. x
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