1. Community
  2. Ears, nose, throat and mouth
  3. Vertigo and Dizziness

Got diagnoses, could anyone help? Please

Posted , 5 users are following.

patty818
patty818

Hi

I finally did the VNG test on monday and the ENT said I have Vestibular Dsyfunction.  So he is sending me for therapy.  My dizziness is feeling of swaying or rocking when I sit is the worst and i have it laying down and standing and walking.  Its pretty much constant when it starts, I have days when it on and off and some days i get lucky and don't have it, but those are few and far between.  The ENT says it sound like dis imbarkment syndrome but i was never on a boat and he said there is a mechinism in the ear that tells the brain if you moving or not and mine seems to be stuck.  But believes the therapy will help it along to clear up quicker.  Does anyone else have this and did the therapy help?  I have also noticed in the past week when i'm sitting I feel like I'm falling thru space.  This is very scary to me and now causing more panick.  I'm trying my best not to panick but very hard.  The ENT also said I could take my xanax when needed but not all the time, he said this will calm the anxiety and the dizzienss, whick it does to a degree.

I then saw my endocrinologist becasue I am hypothyroid and have been for 15 years.  He asked me if the ENT checked for viral, because he has 2 other patients with this and nothing worked for them and now they are on anti viral meds.  Also saId the thyroid being auto immune can cause this to be worse.  

If anyone has any help please could you share it.  I'm so tired of this, its been going on since last July and i"m sick of being afraid and having anxiety.  

Thanks for any help.

Patty

 

0 likes, 12 replies

12 Replies

  • marion50354
    marion50354 patty818

    Posted

    Patty, I completely feel for you. Yes, I had vertigo (Vestibular Benign ? Syndrome. It is an awful feeling.

    My treatment started with doing the Epley Maneuver every day. Saw how to do it on youtube and also my physical therapist gave me a diagram on it.  I did it for many weeks--and I saw some improvement. But now all.

    Next---and most helpful--I had vestibular therapy. They take lot of dizzying tests to diagnose exactly which ear is involved. Sometimes the floor moved! Then they taught me exercises to do at home. They were hard but I did them faithfully. After 6 vestibular therapy sessions, I was somewhat better. But my therapist said I didn't need to come more. She sent me home with more exercises to do at home--some invoved turning the head while walking. AND  it worked. After many months the dizziness went away.

    But...from time to time if I lay down flat, get up too fast, or turn quickly to one side, I can get momentary dizziness. So outside and indoors I am careful and take things much slower. BTW, I am prone to seasickness, really sensitive.

    The conclusion is:  I probably have some sllight malformation in my ear--actually both. Why the vertigo comes on suddenly, no one knows. But I've had it before--I am a "relapse" case--and I noticed it that the times I got it I was going through a painful loss.

    Take heart. If you do what they prescribe, I think you'll get there. Good luck.

    • dee50000
      dee50000 marion50354

      Posted

      I'm glad to hear VRT worked for you. I am doing those now, and I also had the floor-moving test! Where you wear the harness and have to keep your balance for 30 seconds? Had that last week and I did worse than when they testing me with it last year. So no, the therapy is not sorking for me. Not vertigo anymore, just imbalance and unusual eye symptoms.
    • marion50354
      marion50354 dee50000

      Posted

      I also had the moving floor test, but it was a diagnostic test, not meant for curing. The first time I had the other diagnostic tests, with goggles and head turning, they located the problem in my left ear. My second visit they tested again because I was kind of worse. It turned out I had it in both ears.

      When I had a certain test where I had to look into some telescope like thing, they found that my eyemovements were curling to the left. I think thata's part of the imbalance problem. (I also got nauseas,) I was diagnosed with BPPV, and I think I read on the web or my vestibular therapist told me that the eye problem comes with BPPV;. But it stands to reason that any imbalance could cause that.

      I totally believe in the therapy. While you're doing it, you often feel worse; also when you do the home exercises. But apparently the treatment is trying to "coax a particle back into place." If you're doing the therapy now, it's possible that you need to do it longer. Mine took several months.

       

    • dee50000
      dee50000 marion50354

      Posted

      I don't mean to presume anything, but I think you might be mixing the two conditions up. The Epley (head maneuvers to get the particles back in place) is for the BPPV.

      And the vestibular rehab exercises at home are for retraining the brain to get use to the imbalance, creating new pathways that have been damaged, etc.

    • dee50000
      dee50000 marion50354

      Posted

      Yes, my "floor- and wall-moving" tests were to evaluate my balance. The eye movement you describe as going to the left, that is nystagmus, right? You might veer to the left (or whichever ear is worse) when you walk, too. I do.

       

    • Mary_McAvoy
      Mary_McAvoy marion50354

      Posted

      My physical therapist uses the floor moving and the harness as part of the therapy. She works me in the box and continues to make it harder throughout the session. I find it a very effective treatment since my whole system is learning to compensate while knowing that I can't fall and get hurt. 
  • johntran
    johntran patty818

    Posted

    Hi  Patty..Do yourself a favor. Look for a chiropractor  who knows  how to perform craniotherapy and manipulate your occipitals and neck. You will feel better. I just wonder where do you leave so i can recommend one for you...
    • patty818
      patty818 johntran

      Posted

      John

      What type of chiro is that? What do they do? I'm in sarasota fl. How does this help dizziness?

    • dee50000
      dee50000 patty818

      Posted

      I read something last year about a chiropractor in Sarasota. Well, actually it was a video on Youtube. If I can find it, I will send it along to you. I know people came from around the country and were very happy with what he did to fix their dizziness!
    • dee50000
      dee50000

      Posted

      It was Pinnical Chriropractic in Sarasota. Seems they helped a lot of people, but is probably not covered by insurance. Good luck.
    • johntran
      johntran patty818

      Posted

      Hello Patty..just go to the chiropractor recommended by De50000...when you see that chiropractor ask him/her to work on your cranial sutures (craniotherapy), adjust your bilateral occipital bones (occipital adjustment), manipulate your neck spine(cervical adjustment) and NET(neuro emotional technique). Unfortunately, not too many chiropractors know NET.
    • johntran
      johntran patty818

      Posted

      Two most common causes of headache and dizziness are dehydration (don't drink enough water) and occipital bones are misalignment (due to stress, poor posture, such as anterior head carrier-due to mostly spending long time sitting, using computer). By adjusting occpital bones, it will allow normal nerve flow and circulation to your head, which helps to relieve your headache and dizziness). By work on the sutures of your head (craniotherapy) will allow more blood circulation to the brain which helps to relieve your dizziness and headache as well. Neck spinal misaliagment also causes the headache. If the chiropractor doesn't know NET then you should practice mindfulness breathing technique (google it) to relieve your anxiety and stress. Good luck.
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.