Got my surgery date for my hepaticojejunostomy

I had my surgery 15 days ago. I believe I had a skilled surgeon as I had no significant bile leaks or other major complications. My pain was not well controlled during the first few days. I had an epidural with a numbing agent and fentynal (sp?). Fentynal caused me apnea so the resident turned it off (in the evening on a Friday night). So was in agony until a more experienced doc came and restarted with deloted (sp) which worked much better. Then random fever caused them to remove epidural and switch to pain pump. Worked ok. Being on heavy narcotics was not great. Alters emotions and my sense of self. So i got off those as quickly as I could. Tylenol and gabapentin at night is enough. Eating often and small is best. Protein rich, limited fat. Eggs do not agree with me which is too bad as my chickens started laying yesterday! Lots of walking around. Miso soup is nice as well as fennel and ginger tea. Getting JP drain and staples out tomorrow. What a strange experience it has been. From being wheeled into the OR and seeing the thousands of instruments lined up along the wall to waking up to rounds of a dozen residents and medical students staring at me as I'm being quizzed and examined. Tres bizzarre!

hi all, I have choledhocal cyst, I am 32 and I am advised to get it out with roux en y. I am asymptomatic but the surgery is freaking me out. please help.

Hi, I had this surgery, July 18, this year after a gallbladder removal gone wrong. Looking to connect with people that have experienced this.

It has been surreal for me. I am 43 years old female. Although, I am able to move around, I am still very weak, food is a daily adventure and my abdomen area still very swallowed. The incision looks good but there are times during the day, that I feel as if I have a tight belt around my stomach area.

It's been 11 months since my hepaticojejunostomy and I am still adjusting to my 'new normal'. Does anyone have digestive issues? I get diarrhea every morning and can't leave the house before I go to the toilet twice. 😦 And it doesn't matter what I eat, I guess this is just my new digestion now? any tips?

hello guys. I'm from the Philippines. I'm glad that I found this discussion because I have been looking for people who had this kind surgery. I had my Hepatojejunostomy surgery last year, March 2020. However, on December 2020 I got hospitalized because I develop Biloma. My doctor told me that it is one of the complications when you had Hepatojejunostomy surgery. so they drained out the bile from the biloma and went home with the tube left in my stomach to check my condition. Luckily, it all went well and just last week they pulled out the tube already. Hopefully I'll be okay moving forward and praying for no other complications in the future. Does anyone of you here experienced Biloma as well?

hello everyone,

thank you so much for this group. It gave me answers i was looking for prior to surgery. i was diagnosed to have type 1 choledocal cyst and gallstones. i had open surgery last thursday. i had epidural and pca for pain meds. i thought i was okay but apparently while i was in the recovery room i was experiencing respiratory distress. my BP went down to 90/50 which they taught might be due to me being dehydrated. they also said I had bile leakage in my drain. day 2 while I was in the CT scan room i found it hard to breath, as if i was drowning. found out that both of my lungs had fluid and had collapsed. they had put me on a high air flow oxygen and is taking it day by day. coughing and deep breathing is the worse for me.. but coughing phlegm feels so good. its been day 5 now in the hospital. from clear fluids (water, juice and jelly) i am now on a free fluid diet. i have opened my bowels which feels so good. what color was ur bowels when u first opened?

Hello ,

I been currently dealing with obstruction of the bile duct for the past 13 years im only turning 30 this year . during my gallbladder removal they injuried my bile duct .i finally found a specialist that took on my case and i currently have sents in place since nov but since then its been blocked again twice . my next step would be this surgery and i dont know if it will be worth it and i am scared any advice would help thank you

Luisa 😃

Im also very worried because i have a 6 in scar from my past surgery in 2008 to reopen all that scar tissue i dont know how that is going to go and the healing process

Hi all. My name is Linda and I live in Ireland. I had gallbladder removal 20yrs ago. My common bile duct was severed with that procedure which was keyhole, I was then opened to clean and bag this etc and a couple of days later I was transferred to another hospital and had the roux en y hepaticojejunostomy.

I am so delighted to have found this discussion because even after all these years it's very hard to find someone who has been through this.

Life was normal and everything was great for about 18yrs except I was dianosed with crohns 5 years ago which I am still not convinced is from this surgery and not crohns but anyway that is all okay for now but for the past year or so I've been hospitalised with fever, cholangitis and e-coli of the blood and was very sick. I spent 8 weeks on intravenous antibiotics. Since then I have been in and out of hospital with fevers etc. They are telling me my MRI is showing air and water bubbles around the reconstructed area which is normal after having this surgery? And now they are thinking that I have an infection somewhere else in my body that is travelling up to this area which is made easier because of air and water bubbles?

I am finding my own hospital don't know what to do with me and the surgeon who carried out the surgery is telling me it's coming from somewhere else and travelling up to that area and I don't think anyone knows what to do with me.

I have been told that we will have to get answers because I will get to the stage where the antibiotics won't work and then I'm in trouble.

Anyone else have anything like this going on please?

Hi everyone. I'm 32 years old and pregnant with my second daughter. My first daughter is a little under two years old. I was just diagnosed with gallstones and a type 1a choledochal cyst. Needless to say, all the possibilities of what could go wrong are constantly racing through my mind. I just keep thinking about what may happen to my daughter if I'm not there to raise her (even though my husband is incredible). I was so happy to see this thread and find others who have gone through with this surgery and lived for many years to tell the tale. I just met with the surgeon today, and he told me the risk of cancer goes almost to that of a normal person once the cyst is removed. I am feeling very depressed knowing I will need to spend so much time away from my babies and that I won't be able to lift my toddler for months based on what my surgeon is saying. This is the scariest thing I've ever encountered in my life. Does anyone on this board have kids who were young when you had your surgery? Were you able to be there for them in the way they needed you to be? I don't know what to think or feel right now.

Hi everyone,

I just wanted to let you all know there is a Facebook group simply titled "Choledochal Cyst Support Group" for anyone who has had this surgery due to the precense of a choledochal cyst. It has been very helpful for me as I prepare for my own HJ surgery this fall. It would be great to connect with some of you on there if you'd like to see what other folks who have overcome this condition are up to. I hope this message is received!!

Wishing you the best of an outcome and recovery with your surgery!