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  3. Polymyalgia Rheumatica and GCA

Got to Zero but now feel dreadful

Posted , 10 users are following.

jane0118
jane0118

This is one for Eileen probably!

Do I started on the PMR journey back in autumn 2014, when I was finally diagnosed with PMR  and given 15mg of Pred. It was truly a miracle worker and I improved dramatically after a single dose. I have tried to rest and reduced when I could. I finally got to zero in November.

Gradually I have started to stiffen, first my right shoulder, but maybe rotarar cuff injury, and now my hips.

I have had bloods but they showed nothing remarkable CPR and ESR 2 and 3.  The GP gave me anmitripylone to help with my neck and shoulder but it has not helped with the stiffness in my hips.

I have seen the (private) Physio who said it’s soft tissue not my joints - i’m 53- but I feel like an old lady.

I am absolutely exhausted the whole time.

Any suggestions on where to go as bloods were “normal”.

Thanks and regards!

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