got told i have crps but then they change there mind need help 7

Since developing CRPS 3 years ago , I have done lots of research  myself, spoken to many experts and come to the conclusion that at this point in time there is no cure for this debilitating condition. However last week new figures were released in the US showing that pain relief is very ineffective in treating CRPS.and comes with many undesirable side effects.  There are many new areas of investigation underway world wide that show great promise. The general conclusion amongst experts seems to be that this is a condition that rewrites the brain hard drive.MRI results show considerable brain changes once CRPS develops.  Some treatments being targeted  at re wiring the brain back to normal are Mirror Box Therapy, Noi research in Australia sell this or you can fashion one yourself. Graded Motor imagery, which tricks the brain.  High levels of Vitamin C are being used worldwide as is Intra venous Immunoglobbulin . Calmare pain program is another. All these treatments are scientifically tested and there is much information online. I've found that you have to do a lot of research yourself and tell Doctors who have blinkers sometimes and tend to fall back onto conventional treatment ie meds, even though they don't help. Every ores on with CRPS is different therefore what works  for one won't necessarily work for  another. Life can  become an endless  procession of visiting Dr after Dr , pain clinic and consultant Merry go round.. Very depressing.  I will be trialling IV immunoglobulin in the next few months , fingers crossed. Good luck to all those fighting this very difficult battle and of course your families who struggle as well.

Hi, Yes cups does effect family as well, very hard to understand the pain suffers go through, I do think some become dependant on pain killers and find it hard to stop taking them. Any advice welcome on this, consultant's seem treluctant to advise stopping meds if they haven't got an alternative solution.

Your treatment sounds awful,my wife's early treatment was very good. Regular physio to try and stimulate the limb daily for the first 3 months. Unfortunately treatment did not work so they tried stelate ganglion blocks,apology for spelling, this procedure was very distressing for my wife and gave some very short term relief. She has since tried lidocaine infusions but these too only gave short term relief. Now taking a cocktail of zomorph and pregablin,amiltriptyline and anti depressent.

The right hand is now distorted due to muscle wasting and contraction.

Been discharged from 3 pain clinics and is now under a neuro/gastro consultant to help with severe constipation . 

In the past my wife used to quite literally shatter teeth,caused by gritting due to the pain.

Also had an Ace procedure done but developed crps in the area of op.

Really wish I could persuade her to try and bin the meds and try alternative treatments.

It's easy for me to say but I'm not the one in pain.

I had to bin all my meds as the side effects actually hospitalised me . I have had to find other treatments instead.  There is another treatment called   mindfulness that improves pain tolerance by 64% which is significant. I had one visit to a  pain clinic and saw the psychologist who recommended and explained it to me. It helps  me.  For extreme  pain Ketamine infusions for some people seem to be very helpful.  Your wife sounds like she is suffering greatly, I wish  something more could be done to help.

I wish i didnt habe to take all the meds and everything bc i cant do the things i love to do my husband and i love going to the gun range but i cant shoot anymore bc of the pain i get so depressed im only 26 i want to go back to enjoy my life again and my husband is so supportive but i just feel like i fail with everything

Reflex Sympathetic Dystrophy, Prevention, and Management 

by Hooshang Hooshmand

I lookedup the book and it says the book cost 288.00 bucks