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GP Advice

Posted , 5 users are following.

Paul529
Paul529

After researching Fibro and living with the symptoms since Jan this year I now strongly believe this may be the cause.

Just wondering how best to approach the subject with my GP to get the ball rolling?

The GP is well versed in my problems since Jan, compression fracture, osteoporosis and coeliac diagnosis and then anxiety/depression

0 likes, 9 replies

9 Replies

  • judy1947
    judy1947 Paul529

    Posted

    You have injuries that are causing your pain. fibro

    Yalgia is widespread pain without an apparent cause

  • judy1947
    judy1947 Paul529

    Posted

    You have specific injuries connected to your pain. Fibromyalgia is widespread pain with no apparent cause
    • Paul529
      Paul529 judy1947

      Posted

      The spinal fracture has healed and neurology have confirmed the shoulder, neck arm and leg pain are not as a result of the spinal injury, the pain I have described is not as would be expected from a cord injury either, further to this, the break was in the upper thoracic (T5) and the back pain experienced is lower lumbar, also the persistent fatigue, sleepless nights (2.5 hours max) concentration I believe are not inter connected with the compression fracture
    • bronwyn97278
      bronwyn97278 judy1947

      Posted

      sorry Judy; I think you may find many sufferers (even those on this forum over the time), have ALL stated that their Fibro symptoms followed on from a traumatic event...eg car accidents and such.  One particular lady who has been on this forum for quite some time, had a Terrible car accident, and later developed severe Fibro, and is on an Invalid Pension now, due to the Fibro Symptoms, and not the Injuries from the accident.  It is quite possible Paul, and anyone else, can become affected by Fibro (and similar conditions) as a result of physical trauma.
  • juliect45
    juliect45 Paul529

    Posted

    You should go see a rheumatologist and have them check you because I think the gp just takes too long to diagnosis and when I was told I had it my gp was not the one now I work with a physiatrist so one of those I think will help you

    J

  • sukes
    sukes Paul529

    Posted

    Hi Paul,

    I am very lucky in that my GP is very supportive and when I hobbled doubled over into his surgery one day, he knew I was in trouble and after a lot of questions, it was him who suggested I should see a Rheumatologist.

    Some doctors just say 'try this pill, oh that didn't work OK try this one then' but the fact that you've had it confirmed that your pains are not as a result of the spinal injury plus other unexplained pains I would think that you really need to be referred to someone more specialised than a GP and a Rheumatologist is the next step.  I hope you get sorted.

     

  • bronwyn97278
    bronwyn97278 Paul529

    Posted

    Hi Paul, I am not sure which country you live in and the normal practice for following through and getting help/advice in your homeland; however, here and in some other countries, we ask our GP/primary caregiver for a Referral to a Specialist known as a Rhuematologist.  These specialists treat mainly Auto-immunine conditions (including Fibro / CFS/ OA etc).  If you are able to get this referral, then write a list of your symptoms, describing the type of pain/s and where they are.....does anything exacerbate the symptoms etc....and don;t be afraid to speak/tell the specialist (and your GP) all of what you feel/think.....they are there to help you, and if good, will do so.

    ​Continue asking questions of this forum too, as you will find many answers, and much support from those who have been there for many years with similar symptoms and emotions that you are feeling now.  Let us know how you get on getting that referral from your GP, and keep in contact...................will be waiting to hear back................Bron

    • Paul529
      Paul529 bronwyn97278

      Posted

      Hi Bron

      You're messages are received well, the trauma/events since Jan 2016 have been and continue to be never ending, my Bio message states it all.

      I'm In the UK and under the care of a rheumatologist at present as he has sorted out the first lot of osteoporosis meds although I'm not die for a review appointment until March 2017, so I'll need either the forum or GP's advise on best practice whether to contact rhumy direct or whether it needs another separate referral- after the spinal break I could not explain all the symptoms when admitted and two subsequent hospital stays as I thought it was all because of the fracture, but now upon much research into the connection with coeliac (immune disease) and a serious life event I and my wife are almost convinced it may be fibro as all the dots are aligned, three baths I had yesterday and 2.5 hours sleep and that has been typically on and off over the last 3 months, the GP thought it was RLS but since it's spread to arms, neck with shooting like waves from hips to feet and above my bottom.

      I've also joined a fibro discussion forum and I'm in shock hearing other people's struggle is so similar and sometimes spot on to what I feel and the changes that has taken place

      Thank you for all of you're support, it's priceless when it feels like you're always explaining to family etc and knowing they can never fully understand

      Paul

  • rachel01351
    rachel01351 Paul529

    Posted

    Hi Paul! I completely understand what your going through I too had to do my own research to help my gp find my diagnosis. I don't think they full understand the extent of the symptoms you may be experiencing. I would just let your gp know about the research you've done so they can move forward with doing all the appropriate test to rule everything else out, it can be a lengthy process but your health is worth it. Good luck 

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