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I really need some advice.
I was recently diagnosed with fibro by my GP after 2.5 years of hell. He referred me to a rheumatologist for a treatment plan at the start of December. It was an urgent referral but I still don't have an appointment.
Cutting a long story short I decided after scrimping and saving to book a private rheumatologist appointment as I'm desperate. He asked that I bring my records with. I requested a copy of my records and was absolutely horrified to read them.
They are rubbish! I've been complaining of shoulder and neck ache for 2.5 years and there is literally no reference to it at all. I had conversations about hip and jaw ache but there's no mention of this in my records either.
Now I understand why it has taken so long for a diagnosis. I don't know what to do with this information. I feel betrayed and neglected that this whole time they never listened or cared.
Thanks in advance.
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