Gps withholding pain relief meds why..because they dont want people addicted

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I have Addisons again on top of all my other health problems..just a few listed here..I have 4 dislodged discs in my back , severe knee pain and I sprained my ankle in may 2019..I tried the route of epidural injections didnt work. Myself and the gp discussed reducing meds as having injections..They have a report from a specialist saying the injections didnt work as I have cprs or crps not sure right initials..so to ease the pain originally I had 2 x 4 oxycodone and oramorph 3 x 5mg daily I have been bed ridden since October 2018 due to the severity of the pain even with the meds I was on originally and Addisons now I have 14 oxycodone to last a week so in severe pain 24 /7 the gp refuses to let me have meds again with his stance"we dont want anyone addicted".A home visit a few weeks ago the nurse prescribed my original meds and I was able to get to the bathroom and have a few hours pain free I asked for just two weeks meds as I had a pain management specialist follow up meeting in two weeks and hopefully a way forward..however I was given one weeks and the nurse made an error not sure what yet waiting for gps practice manager to inform me of the incident report etc..but witheld 2nd weeks meds so now back to being in agony again..1000s of other strong pain relief they can give but not interested ..I cannot wait living like this till may when next pain management app is in may .So I have decided to stop taking the hydrocortisone ( steroids ) to manage my Addisons ..I have exhausted all avenues I have had phone consultations with an nhs service who are trying to assist and they informed the gp .The gp rang me and said ..I can't use stopping steroids a bargaining chip..The gp should be diagnosing and treating severe pain and reading reports sent to them as to why other treatments haven't worked instead of focusing on addictions..I'm addicted only to finding a way for someone to take the pain I have seriously..sadly usually I go into Adrenal crisis as often it starts with serious sickness that never stops and have to be hospitalised as without steroids can be fatal..usually If I go into Adrenal crisis it is 999 and be IV steroids, anti sickness IV and oxycodone injections paracetamol IV, fluids etc and a week or longer in hospital unable to stop being sick or even sip water and no food for about 5 days but the pain will eventually ease however when I am discharged all the pain will return..I have not stopped taking steroids in order to get pain relief but to show why should I continue to take steroids but yet it just makes me have to endure another day of pain ..so I have no idea how long you can go without steroids days, weeks etc so in effect I am making my own health and life in danger because the gp doesn't want me addicted..I'm a middle aged woman educated and I understand they dont want people addicted however withholding medications that have a severe physical and psychological impact on patients I feel is a failure in duty of care, but everyone has a breaking point so que sera sera..Hopefully the person liasing with the gp can get them to listen and take it seriously I am not going to spend another 14 months in bed in agony due to a lack of duty of care by a gp when they know what meds work or find an alternative pain relief..funnily enough I have a neighbour who has some pain but is able to work etc and is on the same medication as me sounds awful but they know they don't need strong pain relief but get a months supply every month from same gps surgery..Due to Addisons and severity of pain I have left my home 4 timesin 14 months all times to go to hospital..and now I have to go as a relative has arrived to help me get to the bathroom..I've been desperate to go all day but cant even get the 5 yards from bedroom to bathroom even if I try crawl ..what is wrong with gps ..no empathy, no understanding of severe chronic pain and more concerned with addictions than letting people have a decent quality of life..it appears that they think medications are their own supply. And not willing to share but unless I'm wrong the medications belong to the NHS and its patients according to the NHS patients charter.

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4 Replies

  • Posted

    I'm sorry to hear that. It saddens me to know that people in legitimate pain are unable to get meds. it's about quality of life. I think that they went too far with this "opiate problem". It was proven that all these cuts in people's meds lead to more overdoses . people who are denied their meds often go to streets for relief. they often overdose or die. things need to change or it will get worse. good luck to you

    • Posted

      thankyou for your reply and yes you are correct some people may be forced to use unregulated panic relief ..I am trying to use meds by nhs I have been told that cannabis may help pain .I'm not going that route but by withholding meds I can see why people would then we may have addicts due to gps withholding basic right to have pain relief..my visitor last night on seeing the state of me and pain said if I was a dog etc I would have been put to sleep to stop the suffering how awful hopefully good news today

  • Posted

    So sorry to hear this shocking account of wht you're going through.

    I would imagine that the doctors are making all kinds of cruel decisions in treating their severely ill patients. And they should be sued for malpractice. That will stop them depriving people of the pain medications they so sorely need.

    Let him feel the pain you're feeling before he so glibly and uncaringly says "We dont want any addictions". Let him be sued for malpractice by a class action suit in which all of the patients he's thus deprived join together to sue the pants off him.

    These stupid doctors are not even reaching the true addicts with the measures they're taking. All they're accomplishing is to punish their patients who have a very legitimate need for pain medication.

    • Posted

      yes it is amazing they are allowed to do this ..what upsets me more is my meds are withheld but my husband is a manager in a large supermarket chain..they close at 4pm sundays and 7pm bank holidays but he has to stay in the store till 11pm because they have an in store pharmacy and he as to escort people in an out who go for their methadone..I'd rather they used that than heroin, but sorry it's a self inflicted addiction but they cater for them not people living with severe pain..needs a shake up

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