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Hi all, I posted a similar post in the anxiety section because, up until now, this has been the diagnoses given by doctors.
I first started experiencing symptoms just over 4 months ago and it has taken various testing (all of which has come back normal e.g. bloodwork, hearing tests, MRI) as well as failure of things like CBT and anxiety medication, for me to really look into Lyme Disease.
- started with sudden tingling/numbness up my right arm and right side of my face accompanied by blurred vision and lightheadedness. This lasted a minute or so then passed. But then recurred a few more times within about half an hour. I panicked thinking it was a stroke and went to A&E. They put it down to possible migraine and sent me on my way
- This happened a few more times throughout the week. I returned to A&E but was basically dismissed with no answers, then went to my GP who gave me Sumatriptan for migraines. It didn't work aside from getting rid of a bad headache I had at the time. I haven't had a recurrence of whatever all this was (the sudden tingling, numbness etc) since then
- I didn't feel well for the next week or so, experiencing random bouts of dizziness and just being very on edge that I felt 'off'
- about 2 weeks after initial symptoms I had sudden extreme dizziness with feelings of faintness and like i was going to vomit. Lasted about an hour, went to bed and woke up feeling dizzy and spaced out/foggy headed
- over the next few weeks I developed a blocked/clogged/full sensation in one of my ears (as well as hearing my voice 'echo' in that ear when I spoke), constant tinnitus and random bouts of dizziness/disequilibrium (felt like i was on a moving boat), sharp stabbing pains in my head in the same spot & head pressure, extreme tiredness/fatigue etc
- the dizzy feeling then began to persist and has done so ever since. I constantly 24/7 feel like I'm on a moving boat. The fullness in my ear went away but now it has started to come and go, that ear has never felt 100% since - it feels like theres fluid or something in it
- by maybe month 2/3 I started having random shortness of breath (i felt like i couldn't get a full, satisfying breath which would then cause me to panic). This would last an hour or so each time it happened
- also around this time I then started having tingling on the tip of my tongue/a metallicy taste which comes and goes throughout the day every day. Also have visual issues such as floaters, flashes/sparkles & visual snow which I never had previously.
- my muscles tire and get sore a lot more easily than they used to. i also went through 2 weeks where my back was in absolute agony for seemingly no reason at all, and neither physios nor painkillers could do anything to relieve it.
- If I hold my neck at a certain angle, my head/neck twitches almost like a tic although this isn't noticeable i can feel it. I get rushes of really bad head pressure too that last a few seconds
so far the symptoms I have had which have been 'chronic' and not gone away at all have been the constant dizzy, unsteady feeling, the tinnitus and other ear issues, headaches & head pressure, fatigue, tingling tongue and the most distressing of all this constant spaced out/foggy headed/depersonalisation. I constantly feel like I'm 'in a dream'.
I readily admit I am anxious, and I have always been an anxious person and went through a lot of stress in the 6 months or so before all of this happened. However, my symptoms don't worsen or lessen depending on my stress levels - they are constant. And the anxiety I feel isn't what I had before (purely social anxiety and just general negative thinking etc) - now it is extreme hypochondria (because i want to know WTF is wrong with me!!) as well as sometimes racing thoughts and general feelings of fear and uneasiness.
I have a doctors appointment next week where I am going to request a Lymes blood test, although I'm sure she will think it is unnecessary. I'm also aware this may well not be what I have...maybe it is all anxiety? But I live in the countryside and frequently walk my dog through long grass, I travel abroad every year and I lived in England whilst at uni where Lyme seems to be slightly more prevalent (I'm from Northern Ireland).
I'm actually just at the end of my tether..soo miserable and a shell of my former self.
I have no memory of ever being bitten by a tick & as far as i know never had the rash. However, I know that this basically means nothing. I get bitten by a lot of bugs when on holiday, my skin just seems to attract them & I always have a really severe reaction to bites (the bite will swell up like an egg, be super itchy and red and usually leave a scar), so I may well have been bitten and possibly even had the rash, but just dismissed it as being a usual extreme skin reaction.
I also, as far as i know, never had flu like symptoms. Which is the only thing that makes me question Lymes...is it possible to basically go straight to more neurological symptoms?? I've never had the flu in my life, the worst i've had is a bad cold and aside from the back pain i had for 2 weeks, i havent had any aching joints or anything. The only thing i can think of is for the past 6 months or so, maybe longer I'm not sure, I would get intermittent night sweats every so often. I would wake up in the morning and my top would be DRENCHED with sweat crumpled in a heap on the floor. I also was tired a lot, taking frequent day naps, although I put this down to being at Uni and being out late/having early morning classes.
I'm only 20 years old and my life is being torn apart. If i did have Lyme Diease, i have NO idea how long I may have had it for which doesn't help. If it has come from a bite I received potentially years ago, that scares the crap out of me because that would mean I'm years into the disease and that seems to make it so much harder to diagnose and treat.
I have no idea about how the disease works, I am totally new to all this. Is it possible that I was infected a long time ago and the recent stress brought it all to a head? Or does it just not work like that?
I don't know where to go from here. What do I do if i get a blood test and it comes back negative? What if it comes back positive? Ahh
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