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I found this forum a few days ago and am so appreciative of reading everyone's experience. It really helps knowing there are others who know exactly what this is like. I have found very little information about the neurological symptoms such as burning/numbness/tingling/pulsing/internal vibration and the anxiety. Holy —— the anxiety!!!!!! It is so comforting to know others have these same symptoms. The whole thing is awful but the neuro stuff freaks me out. I was dx with EBV beginning of September but was having symptoms 2 months prior. I would say I’m 5 months in at this point.
I’m moving in the right direction but it feels like I’m painting a house with a child’s paintbrush. My symptoms cycle. I have symptoms everyday but everyday is different, which is it’s own kind of exhausting. It’s hard to imagine ever feeling like “me” again. I’m so grateful to read comments from people ahead of me in the healing process. It brings hope❤️
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