Grave eye disease (Exophthalmos)
Posted , 6 users are following.
From last one year I have grave disease (hyperthyroidism).
My both eyes are bulging and swelling. Also I have diplopia and light senesitivity .plz help me by telling home remedies or natural treatment for bulging eyes. I am very disappointed and stressed...Regards
2 likes, 36 replies
imran_20678
Posted
icecool imran_20678
Posted
Are u in the UK?
Most eye hospitals have helplines?
Moorfields Eye hospital, London.
St Thomas's Hospital London has an eye clinic with drs from Moorfield Eye hospital in attendance. Please ask a dr for advice because you cannot put just anything into your eyes hoping it willwork. Your eyes are precious. I feel sure that the eye doctor will guide you. You can look around for an eye dr who has specialist knowledge about graves disease. The dr can order antibody tests as well .
I had antibody tests to exclude an auto immune disease of the eye.
tatiana12 icecool
Posted
thank you so much for the info. Unfortunately I am not in the UK . Neither the endos I have consulted with , nor the 3 ophtalmologists seemed too knowledgeable re the exhophtalmos.
Actually one took pics to show fellow doctors as he had never seen one before! ( note it is not a major case of bulging eyes)
the option they offered is the orbital decompression, which sounds like pretty heavy surgery from what i read. Not for me.
have worn sunglasses all my life due to light sensitivity, will just continue.Should you hear of alternative options to that invasive surgery, would really appreciate it if you d let me know.
what were the antibodies tests for your eyes they prescribed for you?
Imran, the bulging is due to compression from behind the eyes, which makes them " pop out" , as it were.
so no , ice cannot possibly help. It might even trigger an optic nerve reaction to cold.
icecool tatiana12
Posted
I will google exomphalomus and the treatment of bulging eyes diue to graves disease/thyroid dsease. Could u private message me I can send you links to Moorfield eye hospital in London. This is a world famous eye hospital with people coming from all over the world for treatment.
tatiana12 icecool
Posted
will pm you later.
imran_20678
Posted
more my eyes swelling is not improve ..
also now i use seleniium but i dont know how many selenium per day i use and for how long ?
Regards ,
Imran
linda187 imran_20678
Posted
icecool imran_20678
Posted
Brazil nuts contain selenium. Some people say that taking two a day is adequate.
Regards
Cindy x
imran_20678 icecool
Posted
i am taking selenium tablet that is 100um but dont know for how long i use it.
imran_20678 linda187
Posted
i am taking treatment from endocrinologist ,, dr. told me that neomarcazole 5mg take on second day. one day take and second day not.
now tsh and free t4 is normal. dr.told me that now stop taking neomarcazole and after one month again repeat tsh and free t4 test. if it is normal then it will be good. if tsh increase then dr.will advise me RAI radio active iodine therapy . i also reads on net this that RAI treatment increase eyes swelling and i have already swelling in my eyes.
i am very confuse.
linda187 imran_20678
Posted
There was a lady who posted to this Board that she had RAI treatment for her Graves disease. She did not have any eye problems at the time of treatment but got Graves eye disease 7 years after the RAI was done. That's because treatments like RAI and surgery do not treat the antibodies that are causing this disease. Also my lab results have been normal for quite some time and I am taking Methimazole 2.5 mg every other day for 4 days a week. I am happy that my Endo has not been in a hurry to take me off of this because I did have a flare of symptoms one day when I took this every other day for 3 days a week. If I had to take this the rest of my life, I would not mind as it is an extremely low dose and I feel okay on it.
icecool linda187
Posted
linda187 icecool
Posted
To my knowledge, they don't treat antibodies.. Often antibodies will lower into the normal range once patient becomes euthyroid (all thyroid tests normalized) but not always. I am still taking a very low dose of Methimazole. Some doctors stop meds when patients become euthyroid and they don't test antibodies. My Endo will not do that. He only stops meds when patient is both euthyroid and antibodies are within normal levels.
imran_20678 linda187
Posted
i had hyperthyrodisim ( grave disease ) from last two years. i had beenn using carbimazole 5 mg tablet. During this time i got exopthalmus ( bulging eyes) and my Tsh level imblance . when i increase dose it was normal but when i decrease carbimazole treatment my tsh went down. there were flatucation in my thyroid hormone. one month before i had RAI Therapy and used 1 radico active iodine 5 mci . with this i was taking steroid ( deltacotril ). now i am oncfuse that for how long i use steroid and when will i repeat my tsh test to know about thyroid hormone level.
regards.
imran_20678
Posted
(Hyperthyrodisim) and exophthalmos. i have been taking carbimazole 30mg per day then after two month reduce to 20mg per day and so on it reduce to 5mg per day. after two month i did TSH and FreeT4 test t, it showed that my TSH and FreeT4 again rise due to decrease dose of carbimazole. now doctor adivised me to RAI(Radio active iodine theropy) as i have already bulging eye (Proptosis).
Should RAI will decrease my eyes swelling or not. please friend guide me regarding this.i feel very nervous and fade up from bulging eyes.
Regards.
linda187 imran_20678
Posted
imran_20678 linda187
Posted
my Anti TPO test is normal. ...
i am sad very sad to my eyes swelling. i have used selenium as well but could not reduce my eyes swelling...
Guest imran_20678
Posted
Hi Imran, sorry to hear that your eyes are giving you problems again. Anti TPO is mostly raised in Hashimoto's thyroiditis patients. My Anti TPO test also showed normal (I have Graves' disease).
Have your thyrotropin receptor antibodies (TRAbs) been tested? In many Graves' patients the stimulating TRAbs are causing the hyperthyroidism.
The other thing: Did you have a scan of your thyroid? Is your thyroid creating additional problems by being swollen? Do you have hot nodules? In such cases thyroid surgery or RAI might make some sense.
But to recommend RAI just because your eyes are bulging makes little sense. It has been shown that even complete removal of the thyroid will not guarantee that the thyroid antibodies (that cause Graves' ophthalmopathy) will disappear.
imran_20678 Guest
Posted
no , i have not done TRAbs test yet ?
i have done CT Scan which only shows hyperthyrodisim. i have no nodules. my thyroid has no swelling.
sometime when i wake up from sleep my swelling is very increase and also have diplopia ...
one female in our family she has hyperthyrodism and also had nodules . she did RAI . now she is normal only taking thyroxcine.
Guest imran_20678
Posted
To decrease the swelling of your eyes after lying down it is recommended to sleep in a slightly raised position (for example by using with a big pillow).
Did your female relative also have Graves' eye disease?
Just to clarify, RAI will most likely take you from hyperthyroidism to permanent hypothyroidism. Like your relative you will then have to take thyroxine for the rest of your life. I just wanted to let your know that RAI will not necessarily cure your eye problems.
linda187 imran_20678
Posted